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What RA is Like: A Letter For Family and Friends
Written by Wayney
In Rheumatoid Arthritis Support Group

" It is possible to walk to the park one day and be unable to do so another day.  The reverse is also true.  Some days just moving around the house is hard enough. Some days I need splints, a cane, ACE wraps, or even a wheelchair.  Other days I don’t.  Just because I don’t always need those helps, doesn’t mean I’m faking it.   My pain can travel from joint to joint from day to day or in fact, hour to hour.   I sometimes need a handicapped spot.  I don’t like it.  But, I need it.  I may look healthy enough that I don’t need it but walking out of the store, I will likely be having problems walking.  The medicines I take may have nasty side effects.  I know this.  I don’t need reminders of this from someone who doesn’t live in my body and feel my pain.  I don’t enjoy taking the medications but I have a disease that needs to be medicated. 

 

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