NDPH
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7 Forum posts tagged with "NDPH":
status
by oliviamom
In NDPH Support Forums > General & Support
"took my ndph daughter to an infectious disease specialist. he says almost everyone in the world tests positive for epstein-barr so that is meaningless. he basically told us we didn't belong there because she doesn't have a disease but did order some test for her for common diseases that cause chronic fatigue (which she has). he recommended a TB test among others. a little internet research revea"
In NDPH Support Forums > General & Support
"took my ndph daughter to an infectious disease specialist. he says almost everyone in the world tests positive for epstein-barr so that is meaningless. he basically told us we didn't belong there because she doesn't have a disease but did order some test for her for common diseases that cause chronic fatigue (which she has). he recommended a TB test among others. a little internet research revea"
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Hello
by Wombat
In NDPH Support Forums > Introductions & Personal Stories
"Hi,
I was only diagnosed with NPDH a few days ago, but have a headache for over 20 years. I have been prescribed topamax to see if that will reduce the pain, otherwise my nest step will probably be a DHE infusion.
Have any of you had any success with either of these treatments?
I am an Aussie - and look forward to 'meeting' others who have this sort of headache.
Cheers
Wombat"
In NDPH Support Forums > Introductions & Personal Stories
"Hi,
I was only diagnosed with NPDH a few days ago, but have a headache for over 20 years. I have been prescribed topamax to see if that will reduce the pain, otherwise my nest step will probably be a DHE infusion.
Have any of you had any success with either of these treatments?
I am an Aussie - and look forward to 'meeting' others who have this sort of headache.
Cheers
Wombat"
Related Discussions:
Ache ...or.....Tension
by JTKarp
In NDPH Support Forums > General & Support
"Hi...newbie to the group here.
I'm curious as to whether most people experience NDPH as an 'ACHE' or as 'TENSION".
I've had a persistent tension in the temple areas for over 20 yrs. It came on right after I got married and even though I divorced 12 yrs ago, the condition has persisted.
I've had a few appointments at MHNI including with Dr. Rozen but so far, nothing has helped"
In NDPH Support Forums > General & Support
"Hi...newbie to the group here.
I'm curious as to whether most people experience NDPH as an 'ACHE' or as 'TENSION".
I've had a persistent tension in the temple areas for over 20 yrs. It came on right after I got married and even though I divorced 12 yrs ago, the condition has persisted.
I've had a few appointments at MHNI including with Dr. Rozen but so far, nothing has helped"
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My intro to NDPH...
by Trishdre
In NDPH Support Forums > Introductions & Personal Stories
"I have experienced mind blowing headaches in the last 3 years and have been hospitalized twice due the uncontrolable pain. The first time in the hospital they did a spinal tap looking for meningitis and it came back negative, I was running a fever of 102, nech swollen vomitting, abdominal swelling, and on a scale for 0-10, the pain was at a 10 and nothing would helo reduce the pain. After 8 days i"
In NDPH Support Forums > Introductions & Personal Stories
"I have experienced mind blowing headaches in the last 3 years and have been hospitalized twice due the uncontrolable pain. The first time in the hospital they did a spinal tap looking for meningitis and it came back negative, I was running a fever of 102, nech swollen vomitting, abdominal swelling, and on a scale for 0-10, the pain was at a 10 and nothing would helo reduce the pain. After 8 days i"
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Clinical Trial
by tdeannie
In NDPH Support Forums > Medicine & Treatments
"I checked clinicaltrials.gov and saw that a Dr. William B. Young at Jeff was conducting research on NDPH. I sent him an email inquiring about the study. Has anyone volunteered for this study or does anyone know about it? More info at: http://clinicaltrials.gov/show/NCT00335803"
In NDPH Support Forums > Medicine & Treatments
"I checked clinicaltrials.gov and saw that a Dr. William B. Young at Jeff was conducting research on NDPH. I sent him an email inquiring about the study. Has anyone volunteered for this study or does anyone know about it? More info at: http://clinicaltrials.gov/show/NCT00335803"
Related Discussions:
Japanese Study of NDPH posted in New Daily Persistent Headache
Research study posted in Fibromyalgia Support Group
Research study posted in Fibromyalgia Support Group
Re:New Daily Persistent Headache Support Group
by jasmine09
In NDPH Support Forums > General & Support
"Welcome everybody,
As you suggested we made the main color burgundy. I think it looks nice !
I need your help on choosing the right image to represent the group (instead of the hugging couple). Joanna’s idea was to get an image that represents NDPH without making it too sad/depressing.
Bellow are 5 images I found in istock. Tell me what you like and I’ll buy it.
Looking forward to get your opi"
In NDPH Support Forums > General & Support
"Welcome everybody,
As you suggested we made the main color burgundy. I think it looks nice !
I need your help on choosing the right image to represent the group (instead of the hugging couple). Joanna’s idea was to get an image that represents NDPH without making it too sad/depressing.
Bellow are 5 images I found in istock. Tell me what you like and I’ll buy it.
Looking forward to get your opi"
Related Discussions:
Re:intro - new here
by joanna524
In Community Forums > Introductions
"Hi there... So, my name is Joanna, I'm 22, a recent college grad, living in MA, originally from CT. I joined the site because of my 3 years (and still going...) with daily headaches.
My diagnosis is New Daily Persistent Headache (NDPH). Basically, they don't know why it started, and there's no one cure that works for everyone with this. [b]I woke up with a bad"
In Community Forums > Introductions
"Hi there... So, my name is Joanna, I'm 22, a recent college grad, living in MA, originally from CT. I joined the site because of my 3 years (and still going...) with daily headaches.
My diagnosis is New Daily Persistent Headache (NDPH). Basically, they don't know why it started, and there's no one cure that works for everyone with this. [b]I woke up with a bad"
Related Discussions: