Fibromyalgia Support Group
| 5 forum posts | 4 articles | 0 doctors |
In FMS Support Forums > Introductions & Personal Stories
"Hey y'all
I found this site... hmm... don't remember where I found it, but I'm happy I did LOL!
My name is Wendy, and I've had Fibro for nearly 8 years, but only diagnosed about 3 years ago. I am married and live in Florida, where I care for my Mom when I'm not working. We have three kitties who are more like children than pets. I am still (barely) able to hold down a full time job a"
New 2 Group and j... posted in Fibromyalgia Support Group
In FMS Support Forums > Introductions & Personal Stories
"[color=#800080]Hi everyone, just wanted to introduce myself, My name is Amy and I have fibro along with several other problems. I am from Philly, married and have 2 kitties that r like kids,,I also run and own a website for fibro and invisible illness and do several chats when I can,,lately not to much,,I hope to meet and get to know you here. looking forward to chatting with you all.[/colo"
Inforational Fibr... posted in Fibromyalgia Support Group
In FMS Support Forums > Introductions & Personal Stories
"I'd like to properly introduce myself,so I'm going to repost my story in the group as well.I'm fighting along my sister,and her condition affects me psychologically as much as it affects her physically:
It took years to figure out what was wrong.She hurt all over,she had terrible migraines,couldn't sleep well,she was dizzy,always tired,always lacking energy,and doctors kept diagnosing her w"
New to Fibromyalg... posted in Fibromyalgia Support Group
In FMS Support Forums > Introductions & Personal Stories
"Hi everyone and welcome to this brand new group started by our good friend Roy. For without his help and dedication to placing us on the Internet map we would not have this amazing opportunity to share vital information that could very well help the lives of us that suffer every day with a condition that is rarely treated properly.
I've suffered from Fibromyalgia since a boy, but never really"
New to Fibromyalg... posted in Fibromyalgia Support Group
In FMS Support Forums > General & Support
"Hi Guys,
this is the first post in the Fibromyalgia Support Group.
many of you have asked us to start this group, and we are hoping it would be a new home for you all.
so come in - introduce yourselves, and start helping each other
if you have any ideas how to make this group better, please tell us.
roy"
Fibromyalgia Supp... posted in Fibromyalgia Support Group
Written by sideline
In Fibromyalgia Support Group
"As a Fibro sufferer of a little over 5 years I seek to educate others on this frustrating condition. By overcoming the pain we become stronger as we persevere."
Written by auggie
In Fibromyalgia Support Group
"
Hello - this is what i have being sent out on Wednesday to Radio & TV program Directors. This will bE delvered via Fax and email.
Because this is to attract attention and prompt interest (and because we have no single CONTACT here ) we are focusing on ONE CALL to action. To GET interested - to at bare minmium mention it BUT if not to at least broadcast about -- SEE Sound Bites.
Attention -- Interest -- Desire -- Action.
NOTHINg will ever say it all - but hopefull this will NOT be galnced at. Teh request for Action is "get interested" please. Then the FACT sheet (ALSO PUBLISHED HERE) will be attahced with suggested "blurbs" (sound bites). NOT a "sniper" but a "tighter grenade" that i will sned to approx 2,000.
"Written by auggie
In Fibromyalgia Support Group
"
LETTER STYLE: Personal and individualized. I have also added their "Fact Sheet" (which is what I am blasing out on Wednesday to Program Directors -- Radio & TV) -- luv Auggie
For those of you who want to write YOUR STORY -- to polticians, newspapers, etc. These are GOOG guidleines from National Fibromyalgia Association. Your story - your path - your experinece voiced is powerful - Keep up the great work! I am posting 2 other copies 1.) The PR awareness letter I created and 2.) A letter you may or may not desire to use.
National Fibromyalgia Association (NFA) is a non-profit [501 (c) (3)] organization. www.FMaware.org (714) 921-0150
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Written by seawench
In Fibromyalgia Support Group
" Fibromyalgia is the one thing in my 52 years of living that just literally stopped me dead in my tracks. I never saw it coming. But then, most life changes are like that, unexpected. This is an ongoing article."