fibromyalgia support
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1 Forum post tagged with "fibromyalgia support":
In FMS Support Forums > General & Support
"how do you pronounce fibromyalgia?
is it from latin?
i was thinking its spelled fibromialgia...
thanks,
Guy"
Written by sideline
In Fibromyalgia Support Group
"As a Fibro sufferer of a little over 5 years I seek to educate others on this frustrating condition. By overcoming the pain we become stronger as we persevere."
Written by auggie
In Fibromyalgia Support Group
"
Hello - this is what i have being sent out on Wednesday to Radio & TV program Directors. This will bE delvered via Fax and email.
Because this is to attract attention and prompt interest (and because we have no single CONTACT here ) we are focusing on ONE CALL to action. To GET interested - to at bare minmium mention it BUT if not to at least broadcast about -- SEE Sound Bites.
Attention -- Interest -- Desire -- Action.
NOTHINg will ever say it all - but hopefull this will NOT be galnced at. Teh request for Action is "get interested" please. Then the FACT sheet (ALSO PUBLISHED HERE) will be attahced with suggested "blurbs" (sound bites). NOT a "sniper" but a "tighter grenade" that i will sned to approx 2,000.
"Written by auggie
In Fibromyalgia Support Group
"
LETTER STYLE: Personal and individualized. I have also added their "Fact Sheet" (which is what I am blasing out on Wednesday to Program Directors -- Radio & TV) -- luv Auggie
For those of you who want to write YOUR STORY -- to polticians, newspapers, etc. These are GOOG guidleines from National Fibromyalgia Association. Your story - your path - your experinece voiced is powerful - Keep up the great work! I am posting 2 other copies 1.) The PR awareness letter I created and 2.) A letter you may or may not desire to use.
National Fibromyalgia Association (NFA) is a non-profit [501 (c) (3)] organization. www.FMaware.org (714) 921-0150
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Written by PamelaG
In Fibromyalgia Support Group
"
May 12 is National Fibromyalgia Awareness Day.
You may or may not know what Fibromyalgia is, or you may have caught brief glimpses of commercials on tv for medicines for Fibromyalgia. The purpose of National Fibromyalgia Awareness Day is, of course, to bring awareness to the general public. It was first discovered in the year 1815 and yet it is still not recognized by much of the World's population, and even a large percentage of the Doctors don't have knowledge on it. Diagnosis depends on how good and how knowledgeable your Doctors are. It can take anywhere from a year to 5 or 6 to fully diagnose it.What is Fibromyalgia?
Fibromyalgia (FM) is a chronic pain disorder characterized by widespread musculoskeletal aches, pain and stiffness, soft tissue tenderness, general fatigue, and sleep disturbances. The most common sites of pain include the neck, back, shoulders, pelvic girdle, and hands, but any body part can be affected. Fibromyalgia patients experience a range of symptoms of varying intensities. Pain is not centered just on the tender points and can move all over the body. Some times you might have pains in the leg, and an hour or day later have pain in the back, hips, etc. The intensity ranges from very uncomfortable to completely debilitating. Sometimes Fibromyalgia and Lupus are misdiagnosed as the other but Lupus can be correctly diagnosed with blood work, etc. "Written by seawench
In Fibromyalgia Support Group
" Fibromyalgia is the one thing in my 52 years of living that just literally stopped me dead in my tracks. I never saw it coming. But then, most life changes are like that, unexpected. This is an ongoing article."