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A community of patients, family members and friends dedicated to dealing with Spina Bifida, together.
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Spina Bifida Community› Spina Bifida Diaries
Latest Spina Bifida Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"Here is the link: " |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
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" 77% of the votes!!...not a big surprise to anyone who read some of" |
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" Hello Fellow members! I’ll keep this short and Sweet… It’s time to give MDJ a little face lift & we want" |
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" Hi Everyone, I hope this finds YOU in good health & spirit! Today we launched a few upgrades that, as always, were requested by your fellow members and are all improvements of your " |
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"Just a quick note for those of you who would like to be posted:I have been very blessed these past few days to have very little pain. Today is the first day, in fact, in a while that I don&#" |
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"Two girls.Trying to be my friend.They hate each other and I can't understand why.We're four. We're not supposed to know" |
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"He is one of you, but isn't.He is a human, like you, but isn't treated like it.He's an agnostic man and lies are spread about him."He is the spawn of Satan" |
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"My mystery illness may be solved in a matter of a few days. Then again, I may have yet another doctor telling me, "Sorry, can't tell ya what's wrong!" This is my third trip to IA Cit..." |
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"I just wanted to write... since I only have enough time to type not write it out... I am so confused with Crohn's. I haven't had any flare ups... after having one EVERY DAY to now I haven&#" |
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"what a day................. today has to be the worse day so far. ive been stuck in bed all day with my back and leg, i hate to say it but today has reduces me to tears.i think im feeling it" |
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" I woke up this morning not so bright nor early to the feeling of dull pain in my lower back and going through a slight wthdrawal form my Sych meds." |
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" What am I going to do with myself? I should be ashamed, sitting here complaining to myself about the pain that I am in...I'll start form the beggining...several and yes I said" |
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" I have always wondered what life would be like if I did not have the series of diagnoses that have been charted down in my medical files. I began" |
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"So today I have been super busy... and anyone with Crohn's knows exactly what that means for the end of the day... it means upset stomach, diarrhea, body aches, and no sleep... because" |
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"So... tonight for the first time in his 23 years of life... Zach got drunk! I was shocked... lol but it was whatever. His cousin, her husband, Zach, and myself were mainly drinking. But his sister " |
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"I am trying to figure out my whole college thing. And its honestly stressful. I just wish that I had someone to help me figure this all out. I am so worried that once I fill out the application that" |
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"Its amazing how I get so stressed because of crohns. Then in return... Crohns comes right back at me with another PANG of pain. I am trying to teach myself to relax. Not let things bother me" |
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"I had a really long and frustrating day today. I spent 10 hrs at work, with a boss who didn't stop complaining until she left, and normally I can handle that pretty well, but today was different. " |
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"So back to the doctor again today. He was supposed to be going in for a procedure, I believe a scope to check the scarring in the urethra, but they discovered ANOTHER infection in the culture, so more" |
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"I was diagnosed with Crohn's in June. Right before my sisters birthday. I had to be in the hospital for about a week. Never understanding why I was there until the day before I left after" |
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"My Dear MDJ Family ;-) Once again it looks like i'm falling behind on my diary updates. almost 3 months since the last one.... :? BUT at least I bring good news... starting now" |
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