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A community of patients, family members and friends dedicated to dealing with Sjogren's Syndrome, together.
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Sjogren's Community› Sjogren's Diaries
Latest Sjogren's Syndrome Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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" Sitting in the doctor office today with my wife and older sister and doctor what the hell was I thinking I musta been stone out of my mind. I mean boy did I get torn out of &n..." |
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" It's me again just sitting here today thinking an wondering what would happen to me next. It's that time again for me to get that tube check and see if the doctors are goin..." |
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"Today is a tough one. I woke up feeling awful thinking I should call in to work...again. Then I realized that the daycare (essential on bad days) is five minutes from my work, so if I am t..." |
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"It's just plain old me sitting an wandering what the hell was I thinking of when I let them put me out to pasture. Yes what the hell was I thinking of when the doctors told me that that I had to r..." |
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"My daughter and her four children, daughter-9 yrs & three boys-6 yrs, ,3 yrs & 2 months came to stay while her hubby and father-in-law redid their bathroom. They arrived on the 16th and left l..." |
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"Its getting harder and harder for me to give the support to other members here because of my own health issues. I was hoping by now some would step up to the plate to help me but so far I only receive..." |
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" I am just hanging on they way it seem to me; everyday there is this same feeling of wanting to feel better but can't. Yesterday I visited the hospital for about 6 hours in the ..." |
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"I went to the eye doctor today and after a week of steroid drops, I got the punctal plugs. It was rather a 'different' feeling. Not hurting but maybe uncomfortable. I do think they are going t..." |
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"Just like that old Timex that sit in the drawer that next to the bed which is next to the nitestand. I am still ticking like a model T or a 57 Chevy. There be times that I am down an out but there giv..." |
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"Headache, every day. Eyes so bother me. My right one feels as though the eyelashes are constantly needing to be pulled which does nothing. It feels like sand paper. I put restasis in every morning and..." |
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"I am getting very frustrated lately with the doctor's I see for MG. I have been diagnosed since March of 2011 and have had 4 neurologists. They have all told me different things. ..." |
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"Only 3 days lift on disability. I am so nervous about going back to work. I'm ready because I can't stand sitting around anymore. But nervous because now I have bronchitis and my RA has been r..." |
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"My parents live in Alaska. They are in their mid 80's and doing pretty well. I miss being with them and living in California. I don't know if it makes it easier or harder on ..." |
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"Today is February 8th 2013. So much has happened. I decided to go back to this blog to help myself process through my life with Lupus. I began Benlysta infusions last Summer. &..." |
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" Rainy morning to wake up today storms all over the southeast and here at home; there is lightening and everything else going on here. Today I have to go out find foods for the hous..." |
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"I have had panic attack after panic attack for days now. I know I have a lot going on I only wish I could control them. They are worse then ever. Being out of work since November 16. 2012 for decompre..." |
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" One day at a time is all that it take for me to to let my inner child just run free and wild. One day at a time is all I need to discover new and wild pleasures that I never knew b..." |
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"My body again is keeping me from doing what I need to do. I want to go to dad's funeral Friday in kansas but with this lung infection, very low heart rate due to these lumps pressing on my chest. ..." |
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" Why I can't get enough of life is for the fact I see myself with so little time left to all those things that I have always wanted to do. I see my running out time in doing eve..." |
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" Happy New Year to all of my friends @ MDJ I hope that the coming year brings everyone some sort of peace and a lot of better tomorrows. I know that the last ye..." |
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"African American GraphicsGoogle Homepage Wallpapers" |
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"Woke up to the sounds of my young flatmate working on his car and all my cranky bubbled to the surface. I am spending this morning reminding myself to let go. LEt it go. It means little, that the sink" |
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"I am back my dear, and back on the MTX, the dirty old drug that I left with wings on my heels in February after a week in hospital with pneumonia. Those unknowing here is the tale; I have had SLE for" |
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"Dam if I do and dam if I don't somebody need to find a way for people to just get alone with each other. I woke this morning without a single care in the world but somewhere down the line someone" |
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