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"For my daugher with Cp caused by CMV" (Gawadeluvr)
Retinitis Pigmentosa Support Group
A community of patients, family members and friends dedicated to dealing with Retinitis Pigmentosa, together.
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Latest Retinitis Pigmentosa Diaries
shazz09
 
"hi all well this is the second day of my connors trip to dawlish warren with the collage .an iv been so tempted to ring the collage but iv held back till now . iv decided that tomorrow im going to rin..."
motherhen
 
"Will we are going back to the spicialist for problem 3 months now in stead of 6 months. So they most of found somrthing in your blood work. So we will have to go see what they found out in Jan. I can&..."
motherhen
 
"it has been hard on me lately for about a 3 weeks I have not had my trazone med. or my lyrcia for 2 months. My insurance or Title 19 said that my husband retirement check and my son SSI. We are making"
BlackLabel
 
"On May 23,2009 I ran out of the specialists office because if I didn't hear it then I didn't have to acknowlegde it. After going to dr after dr and telling them something is wrong with my chil..."
motherhen
 
"I'm glad that I was e-mail it brought me back, plus I have a computer helps too. I can write my feels down. No body judges my mixed up world. I have a place called Patencelikeme to keep track of"
rmbeckman
 
"Yes I realize there are still days left in the summer, however with school starting back for me on the 20th and my daughter's schooling on the 10th I might as well write it off.  Decided to"
roy
 
" Hello my friends ;-)I love summer. That big yellow thing in the sky just makes me automatically"
BuXar "So from what I have learned since finding out I have RP is that I have probably had this disease since i was a child or young teen. What struck me as odd is the fact that I have worn glasses pretty"
rmbeckman
 
"Winding down the spring semester of classes this week.  Waiting for grades to be finalized will be the hardest part for me.  I get all antsy about that.  I intend to distract myself by "
shoora
 
"Like the bird who refsed to fly because he was always to afraid to fallHe sat in the nest for many winters keeping his fear and shyness to himselfThen one day he spread his wings among"
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