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Porphyria Support Group Porphyria
Online Support Group
A community of patients, family members and friends dedicated to dealing with Porphyria, together.
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Current Porphyria Discussions
Need an Arizona Doctor to treat Porphyria
"Hi Brunk - I had similar symptoms as your husband, howev..."
by winnrobin in Porphyria Medicine & Treatments - 13 days ago.
New to the group
"Hello Deborah, My husband has PCT. I have a post unde..."
by brunk in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"I too have started keeping a diary for my husband. The f..."
by cloj in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"So we were diagnosed at the same time with VP. I also do..."
by winnrobin in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"He was actually diagnosed in March of this year. He also..."
by cloj in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"Our stories aren't so different. I had been blistering f..."
by winnrobin in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"We originally went to the Dermatologist for skin tearing/..."
by cloj in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"Hi- Glucose and carb loading (breaks down to sugars) is ..."
by winnrobin in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"Four Corners area is where the four courners of Colorado,..."
by cloj in Porphyria Introductions & Personal Stories - 13 days ago.
New to the group
"Hi- I don't know where the four corners area is, could y..."
by winnrobin in Porphyria Introductions & Personal Stories - 13 days ago.
Latest Group Diary Posts
Health Products on MDJunction
" Hello everyone, I am very happy to announce that starti..."
What plagues my mind
"I wrote this in a thread and then decided I wanted in in my ..."
Where did I lose y'all?
"When I first found out I was bipolar, this group was my life..."
Porphyria Group Activity
Chase4ever gave roy a Prayer
jessicaharris9 gave Alon a Hug
charmplace gave Alon a Salute
Alon gave jessicaharris9 a Cheer Up
zoot gave Alon a Hug
roy gave jaime1978 a Cheer Up
charmplace gave Alon a Happy for You
outsider gave roy a Hug
Auntie3285 gave roy a Salute
hanginginthere gave roy a Hug



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