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A community of patients, family members and friends dedicated to dealing with Polycystic Kidney Disease , together.
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Kidney Disease Community› Kidney Disease Diaries
Latest Polycystic Kidney Disease Diaries
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"Happy spring everyone!It seems I have totally neglected writing in my diary lately, I do hope to write more now - let it be my spring resolution ;-)As opposed to my diary... a lot of work was put into..." |
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"You were not the forgotten one. You were the one on the top of everyones mind, at all times. The one we always worried about because we knew your struggles. We couldn't forget you, you were the on..." |
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"Welp, another Monday. Wana know what is bothering me more than anything today; fatigue! OMG! It is getting so bad. I know it isn’t the narcotics because I have been on the same dose for quite so..." |
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"I went to the graveyard today with my dad. It was only the second time I have returned there since her death, four years ago. It went good. I did not cry, but I believe that to be because I spent the ..." |
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" Four years ago today I lost the most special person I haveever had the pleasure of knowing, my foster mother, Cathy. The foster motherpart is a very long story so I won't explain that now. &..." |
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"I find it hard to smile. My world is going to be much different very soon. I have been at my job for 17 years and they are finding anything, any way possible to get rid of me because they are downsizi..." |
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"First of all, let me give you all an update on me and the hubby. Long story short, we are going to go to a counselor and attempt to salvage this otherwise broken marriage. So in that, I am okay for no..." |
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"Sometimes I surpass being any idiot and cracking myself up! lol You say to yourself, "oh she is not an idiot and I am going to tell her!" STOP! Don't do it! Just being silly!What I am tr..." |
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"So I attempted this entry last night but I seem to of dragged across my laptop mouse somehow and lost the entire entry. So here goes again!So far, in my opinion, one of the most important things a per..." |
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"It just seems that since i seen my kidney specialist in the last two weeks, and i found out that i am not going for the fistula, it seems so surreal that i have reached this point of the disease!" |
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"It has now been 1 year since this all began, my big rebellion! I planned it and it didn't go exactly as planned but the mission was accomplished. It came with a minor set back when I tried to go" |
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"Today marks 3 months that he has been gone. I have to say I have become a much stronger person. He has not stopped "hoping" things are going to work out between us. I feel sorry for him, but" |
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"In the last entry I wrote I left out a couple of important details. Before I got my part time job, I ended up in the hospital several more times, I saw several primary care doctors. I had to change" |
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"I can't remember the airplane ride home. I don't remember who I sat next to, what my husband and I talked about or if I got any sleep or not. What I do remember is that when we finally made" |
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"I remember the day that I got sick. My husband was stationed at Camp Humphreys in South Korea on a two year tour. It was date night, every weekend on saturday night sense we have been married we have" |
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"Have you ever wanted to go somewhere secluded and just scream your lungs out and cry until you couldn't scream or cry any more? I wish I could do that today, heck... I've wished I could do " |
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"Today is a new day, of a new year. I had to come here because it has become increasingly difficult to deal with the emotions. I know that I do not want to ever go back, I know that I never will so " |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"It has been awhile since I have written anything. I have been feeling so many emotions this past week it's so hard to even crack a smile. I feel like there is a curse on me or something bcuz I jus..." |
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"I am a 38 year old woman with 3 children (and of course I have passed this disease onto the two oldest children). I have a very long line of family members who have died from the PKD disease " |
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"I think this is the quiet before tge storm cuz he has been real quiet and not really arguing with me lately. He did bring up some of the same ol accusations yesterday but he eventually shut up. I did " |
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"I am ready mentally. I think it is time. So today I am looking to create my safety plan. I am taking thur off to register my son for high school but since he will be at work I am also going to use tha..." |
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"I wonder to myself all the time, what am I still holding on for? Now he is kissing my ass royally, he took the passcode off his phone and deleted all the snap shots of my conversations with "guys" |
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"I've been trying to get up the strength to leave, I'm not sure why it has not occured to me that it's only getting worse the longer I stay. A fear of being alone? Sharing custody and being" |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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