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Pericarditis Support Group
A community of patients, family members and friends dedicated to dealing with Pericarditis, together.
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Latest Pericarditis Diaries
kli
 
"As of now, my sweet daughter is only on 400mg of ibuprofen a day, which is great!  We are weaning her off ibuprofen by reducing slowly, 200mg every 5th week.  Before plaquenil, she has never..."
pandahead "After a year of steroid therapy and various other drugs, I am finally reaching out to a support group. Here I hope to share my experience, so others may learn or have some input. I also would like to "
willow1878
 
"A Night of uncomfortableness (if thats a word) Hiatus Hernia was a nightmare  and possibly the most painful so far, but thankfully the Amitripyline knocked me out before it could get too bad. "
willow1878
 
"Two weeks of dizziness has left me with the most horrendous of headaches.It  had subsided for a few weeks,  but now its all over me like a cheap suit.A day of  updating"
kli
 
"I hate to even say much, fear of jinxing things.  My daughter has started taking Plaquenil a few months ago.  This drug has a build up effect and so it takes time for it to show if its worki..."
bdtennis "Hi everyone. I just joined this group and am amazed to see how many people are going through what I am going through. I had ASD surgery about 2 years ago to patch up 2 holes in my heart.  Unlucki..."
kli
 
"Well, since her fluid has come back, she saw a rheumatologist for the first time, nothing new to report from that other than the rheumatologist is trying out a new drug, plaquenil.  Not sure yet"
kli
 
"Went to emergency cardiologist apt. last Friday, fluid has come back, even though it is a small effusion, it is still a little disappointing.  Fluid has not been a part of her pericarditis since"
kli
 
"Since my last time I wrote, things have only gotten worse for my daughter.  Even though I increased her ibuprofen doses, that has not helped.  It seems that she is affected by the heat and s..."
kli
 
"Well, after almost 2 months of being on the lower dose of ibuprofen (1,000mg per day), she had an attack or flare up.  I knew it was coming, but tried to hold off on increasing her ibuprofen to"
kli
 
"My daughter has been on 1000mg ibuprofen now since March 1st.  But signs of it coming back are appearing.  She is overly tired all the time, even though she sleeps quite a lot.  Her fac..."
kli
 
"I haven't written in a while.  Since last November and the last really bad attack, my daughter has actually been doing really well.  It's like I want to say that in a very hushed "
RPinkerton
 
"After I had a few run ins with pericarditis I realized I never went a day without feeling my heart. I basically had an attack of pericarditis every day for a very long time. This fueled my anxiety "
RPinkerton
 
" So at the moment I am not feeling well. That being said I am a little agitated.   How I got pericarditis. I had my wisdom teeth removed when I was 21years old and the dentist"
kli
 
"The start of a horrible week was that Saturday night when she had the awful chest pains.  I thought it was because she was scared from the minor earthquake, but I guess not.  I think that"
kli
 
"Saturday night, we had an earthquake.  Where we live is more well known for tornados, not earthquakes.  I did learn that our state is on a fault line, but it has been inactive, or the quakes"
kli
 
"My daughter had an echo, shows that her pericardium is still very red.  Also showing a bulging atrial septum.  Wondering what that is about.  Going to have to put her through another"
nmarie
 
"So, I went for my treatment on Monday. It hurt a lot. Injections in keliod scars HURT. I went about my normal day and noticed I wasn't getting a lot of pain. On Tuesday night my husband talked "
roy
 
"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the"
kli
 
"What now....  Took my daughter back to cardiologist yesterday.  He wants to do another cardiac MRI.  The last one (and only one) she had was very hard on her.  I don'"
kli
 
"I have never had a flu shot, I do not believe in getting one.  As a child, I had the flu, but as an adult I have never had any problems like getting the flu.  However, in 2009 my daughter"
nmarie
 
"So I was finally ready to look into some really expensive holistic clinics after having pericarditis for a year. I found two in Calgary and the price was sooooo disappointing. Both would cost me at"
kli
 
"My daughter, who is now 14, has had pericarditis since she was 12.  She was not immediately diagnosed, it took me 6 months and several visits to our local emergency room and her doctor and finall..."
roy
 
"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working"
roy
 
" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)"
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