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A community of patients, family members and friends dedicated to dealing with Pericarditis, together.
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Pericarditis Community› Pericarditis Diaries
Latest Pericarditis Diaries
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"As of now, my sweet daughter is only on 400mg of ibuprofen a day, which is great! We are weaning her off ibuprofen by reducing slowly, 200mg every 5th week. Before plaquenil, she has never..." |
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"After a year of steroid therapy and various other drugs, I am finally reaching out to a support group. Here I hope to share my experience, so others may learn or have some input. I also would like to " |
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"A Night of uncomfortableness (if thats a word) Hiatus Hernia was a nightmare and possibly the most painful so far, but thankfully the Amitripyline knocked me out before it could get too bad. " |
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"Two weeks of dizziness has left me with the most horrendous of headaches.It had subsided for a few weeks, but now its all over me like a cheap suit.A day of updating" |
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"I hate to even say much, fear of jinxing things. My daughter has started taking Plaquenil a few months ago. This drug has a build up effect and so it takes time for it to show if its worki..." |
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"Hi everyone. I just joined this group and am amazed to see how many people are going through what I am going through. I had ASD surgery about 2 years ago to patch up 2 holes in my heart. Unlucki..." |
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"Well, since her fluid has come back, she saw a rheumatologist for the first time, nothing new to report from that other than the rheumatologist is trying out a new drug, plaquenil. Not sure yet" |
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"Went to emergency cardiologist apt. last Friday, fluid has come back, even though it is a small effusion, it is still a little disappointing. Fluid has not been a part of her pericarditis since" |
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"Since my last time I wrote, things have only gotten worse for my daughter. Even though I increased her ibuprofen doses, that has not helped. It seems that she is affected by the heat and s..." |
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"Well, after almost 2 months of being on the lower dose of ibuprofen (1,000mg per day), she had an attack or flare up. I knew it was coming, but tried to hold off on increasing her ibuprofen to" |
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"My daughter has been on 1000mg ibuprofen now since March 1st. But signs of it coming back are appearing. She is overly tired all the time, even though she sleeps quite a lot. Her fac..." |
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"I haven't written in a while. Since last November and the last really bad attack, my daughter has actually been doing really well. It's like I want to say that in a very hushed " |
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"After I had a few run ins with pericarditis I realized I never went a day without feeling my heart. I basically had an attack of pericarditis every day for a very long time. This fueled my anxiety " |
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" So at the moment I am not feeling well. That being said I am a little agitated. How I got pericarditis. I had my wisdom teeth removed when I was 21years old and the dentist" |
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"The start of a horrible week was that Saturday night when she had the awful chest pains. I thought it was because she was scared from the minor earthquake, but I guess not. I think that" |
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"Saturday night, we had an earthquake. Where we live is more well known for tornados, not earthquakes. I did learn that our state is on a fault line, but it has been inactive, or the quakes" |
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"My daughter had an echo, shows that her pericardium is still very red. Also showing a bulging atrial septum. Wondering what that is about. Going to have to put her through another" |
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"So, I went for my treatment on Monday. It hurt a lot. Injections in keliod scars HURT. I went about my normal day and noticed I wasn't getting a lot of pain. On Tuesday night my husband talked " |
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"Hello friendsIt’s time for autumn updates.The first thing you probably noticed is that the left pane is on the left again!You guys voted & although it was close, the" |
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"What now.... Took my daughter back to cardiologist yesterday. He wants to do another cardiac MRI. The last one (and only one) she had was very hard on her. I don'" |
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"I have never had a flu shot, I do not believe in getting one. As a child, I had the flu, but as an adult I have never had any problems like getting the flu. However, in 2009 my daughter" |
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"So I was finally ready to look into some really expensive holistic clinics after having pericarditis for a year. I found two in Calgary and the price was sooooo disappointing. Both would cost me at" |
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"My daughter, who is now 14, has had pericarditis since she was 12. She was not immediately diagnosed, it took me 6 months and several visits to our local emergency room and her doctor and finall..." |
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"Happy days on MDJ... The green logo you guys chose dictated the rest but we tried to keep as many elements the same or similar. I really hope you like it!!It looks to us as everything is working" |
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" I’d like to apologize to the many people whom I didn’t answer the past few days… as you can see I had a very good reason… ;-)" |
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