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Mucopolysaccharidosis Support Group

A community of patients, family members and friends dedicated to dealing with Mucopolysaccharidosis, together.

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Current Mucopolysaccharidosis Discussions

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Mucopolysaccharidosis Videos on MDJunction

"Hi - it's me again... I got many PMs from members asking to upl..."

by roy

in Maroteaux-Lamy General & Support

Diagnosis of Mucopolysaccharidosis

"would a regular blood test help diagnose Mucopolysaccharidosis?"

by MouthCancer
in Maroteaux-Lamy General & Support

Treatment of Mucopolysaccharidosis

"Currently there is no cure for these disorders. Medical care is ..."

by Mucopolysaccharidosis
in Maroteaux-Lamy General & Support

Symptoms of Mucopolysaccharidosis

"Mucopolysaccharidoses share many clinical features but have vary..."

by Mucopolysaccharidosis
in Maroteaux-Lamy General & Support

About Mucopolysaccharidosis

"Mucopolysaccharidoses are a group of metabolic disorders that ar..."

by Mucopolysaccharidosis
in Maroteaux-Lamy General & Support

Welcome to the Mucopolysaccharidosis Support Group

"Hello, Welcome to the Mucopolysaccharidosis Support Group. T..."

by roy

in Maroteaux-Lamy General & Support

Making the most of the Mucopolysaccharidosis Support Group experience

"The Mucopolysaccharidosis Support Group is full of ways to inter..."

by roy

in Maroteaux-Lamy General & Support

How to Join the Mucopolysaccharidosis Support Group

"OK. The No. 1 of all No.1 questions ;-) "I can't seem to be ab..."

by Alon

in Maroteaux-Lamy General & Support

Technical stuff related to the Maroteaux-Lamy support group

"Hi , I'm Alon, nice to meet you all ;-) I'm in charge of a..."

by Alon

in Maroteaux-Lamy Introductions & Personal Stories

Hello Mucopolysaccharidosis Support Group, I’m roy

"Hello, My name is Roy. Alon and I run MDJunction. We hope ..."

by roy

in Maroteaux-Lamy Introductions & Personal Stories

Latest Group Diary Posts

Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."

MDJ autumn updates
"Hello friendsIt’s time for autumn updates.Th..."

MDJ going green
"Happy days on MDJ... The green logo you guys chose..."

UV has a sister !
" I’d like to apologize to the many people w..."

Other Groups We're On

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Genetic & Metabolic
Rare Diseases

Maroteaux-Lamy Group Activity

	DorisAnn gave roy a Hug
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Mucopolysaccharidosis Videos

Dangers of Metabolic Disorders	What Causes a Fishy Body Odor?	Parasitic Worms For Weight Loss?	Obesity May Increase Risk for Memory Loss
Maroteaux-Lamy Videos

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