Why wear a ribbon?

"Chiari Malformation, Crohn's Disease, Fibromyalgia, ADHD, Chronic Pain & Migra..." (chiarichic)

MDJunction to me

"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv" (Macv)

more testimonials

Mobius Syndrome Support Group

A community of patients, family members and friends dedicated to dealing with Mobius Syndrome, together.

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Current Mobius Syndrome Discussions

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Mobius Syndrome Videos on MDJunction

"Hi - it's me again... I got many PMs from members asking to upl..."

by roy

in Mobius General & Support

Diagnosis of Mobius Syndrome

"Because of the early age at which Möbius syndrome is visible, pa..."

by Mobius
in Mobius General & Support

Treatment of Mobius Syndrome

"There is no known specific treatment for Moebius syndrome. Treat..."

by Mobius
in Mobius General & Support

Symptoms of Mobius Syndrome

"Physical findings depend on the case definition of Möbius syndro..."

by Mobius
in Mobius General & Support

About Mobius Syndrome

"Moebius syndrome is a rare birth defect caused by the absence or..."

by Mobius
in Mobius General & Support

Welcome to the Mobius Syndrome Support Group

"Hello, Welcome to the Mobius Syndrome Support Group. This Su..."

by roy

in Mobius General & Support

Making the most of the Mobius Syndrome Support Group experience

"The Mobius Syndrome Support Group is full of ways to interact an..."

by roy

in Mobius General & Support

How to Join the Mobius Syndrome Support Group

"OK. The No. 1 of all No.1 questions ;-) "I can't seem to be ab..."

by Alon

in Mobius General & Support

Technical stuff related to the Mobius support group

"Hi , I'm Alon, nice to meet you all ;-) I'm in charge of a..."

by Alon

in Mobius Introductions & Personal Stories

Hello Mobius Syndrome Support Group, I’m roy

"Hello, My name is Roy. Alon and I run MDJunction. We hope ..."

by roy

in Mobius Introductions & Personal Stories

Latest Group Diary Posts

Finally.. MDJ communit...
"Happy spring everyone!It seems I have totally negl..."

MDJ autumn updates
"Hello friendsIt’s time for autumn updates.Th..."

MDJ going green
"Happy days on MDJ... The green logo you guys chose..."

UV has a sister !
" I’d like to apologize to the many people w..."

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Genetic & Metabolic
Rare Diseases

Mobius Group Activity

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Mobius Syndrome Videos

National Institutes of Health on Health Issues	HIV-Vaccine Trial Shut Down When It Doesn't Work	Watch the Sammies Winners: The Science and Environment Medal Goes To...	Watch The Sammies Winners: Federal Employee Of The Year Goes To...
Mobius Videos

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.