BeccaSpitfire gave rsdcrpsfire a Hug
06/17/2013 05:30 PM

"When you get to the end of your rope, tie a knot and hang on. Franklin D. Roosevelt
((hugs)) Have a great evening!"
((hugs)) Have a great evening!"
1magicman gave rsdcrpsfire a Hug
06/14/2013 05:58 PM

"Hay guys you got children. Then Happy Fathers Day too you. May your day be filled smiles, love,joy, and happiness.
( Hope To Cope ) Scott"
( Hope To Cope ) Scott"
NanaBWK gave rsdcrpsfire a Hug
05/25/2013 02:11 PM

"So many challenges!! Though I don't participate and haven't really connected well, I feel for you and wish you lessened pain, increased strength, and healing as you face more surgery and procedures. Prayers and good thoughts for you!"
scorpioj gave rsdcrpsfire a Hug
05/23/2013 11:22 PM

"Thinking of you Twinkle and sending thoughts and prayers for healing.You have been through so much but, you are strong and will conquer this.Lots of love and many hugs to you sweet lady."
revvanbus gave rsdcrpsfire a Hug
05/23/2013 08:24 PM

"Sweetie, You know I send hugs and love back to you. And all my best hopes and prayers for you procedures and surgery. You are always in my prayers.
Rev."
Rev."
suelynnes gave rsdcrpsfire a Hug
05/20/2013 05:29 AM

"Hi, I have been a mess this last year, but I have noticed the support from everyone. Thank you. Susan"
1magicman gave rsdcrpsfire a Hug
05/12/2013 04:00 PM

"Happy Mothers Day to all the moms here on MDJ. My the rosses smell sweet on your special day.
( Hope To Cope ) Scott"
( Hope To Cope ) Scott"
scorpioj gave rsdcrpsfire a Hug
05/03/2013 02:13 AM

"Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
​We see
our
main​
job
​as ​
ensur
​ing
that this forum is a positive experience for all members: a place you can find friendship, learn about
​our
condition, and find
​a safe ​
space to express your experiences
​and feelings​
.
You can read about our new, simplified group rules here:
http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group,
and read about
​each of ​
our goals for the group in our leadership profiles here:
http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie"
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
​We see
our
main​
job
​as ​
ensur
​ing
that this forum is a positive experience for all members: a place you can find friendship, learn about
​our
condition, and find
​a safe ​
space to express your experiences
​and feelings​
.
You can read about our new, simplified group rules here:
http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group,
and read about
​each of ​
our goals for the group in our leadership profiles here:
http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie"
1magicman gave rsdcrpsfire a Hug
04/22/2013 06:03 PM

"Hi all me friends. Sorry i have not been around here lately. I have been making some changes and restructuring my life. I have been feeling great lately and wanted to not keep it to myself but share the inner feeling with you. My son that had so so many problems in school has really changed over the past few months. And he sees he happy where he is now. Thats all i wanted for him. No nightmares for him nor me for months. We feel now that the road is getting smother. With all this we keep it in a pocket next to our hearts for safe keeping to look upon the good times when we need it most. I share this with you so you can keep the strength that i feel in your pocket next to your heart when you need it most.
( Hope To Cope ) Scott"
( Hope To Cope ) Scott"
1magicman gave rsdcrpsfire a Hug
03/28/2013 07:16 PM

"We can never change what has happen in the past. But hope is something we all can look forward to and to be proud of.
( Hope To Cope ) Scott"
( Hope To Cope ) Scott"
TheGreatCreator gave rsdcrpsfire a Hug
03/27/2013 04:05 AM

"I miss you all.
I encourage you al to read my updated Profile"
I encourage you al to read my updated Profile"
jpcrps gave rsdcrpsfire a Hug
03/18/2013 01:24 PM

"Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group.
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
Mahalo,
Jenny"
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
Mahalo,
Jenny"
mrslaurie gave rsdcrpsfire a Hug
02/14/2013 03:14 PM

"Soft hugs to all. Hope Everyone's enjoy their Valentine's Day. And it's been awhile since i been on. Hope everyone is doing their best-"
1magicman gave rsdcrpsfire a Hug
01/16/2013 06:35 PM

"You are appreciated, You are liked, You are loved. But within all that there is no word to express how i feeling that i have for you all. You all and the ones that i didn't know when i was young and still nothing known. I still fall but get up because that's not where i want to be and that the number one thought i have to hold on to. I'm not perfect we are not perfect. But we can look forward to a brighter future.
( Hope To Cope ) Scott"
( Hope To Cope ) Scott"
Colleenj gave rsdcrpsfire a Hug
01/11/2013 06:49 AM

"Just a hello to all and I hope to see you posting to the group soon."
NanaBWK gave rsdcrpsfire a Hug
01/05/2013 02:32 PM

"What amazing strength you have shown through your recent crises with your husband. May 2013 be a much easier and healthier year for you and all your family! Thank you for continuing to support and help all of us with RSD/CRPS. Though I haven't written on here in a long time, it means a lot to know the group is here."
scorpioj gave rsdcrpsfire a Hug
01/05/2013 12:42 AM

"Hugs for a Happier,Healthier,more prosperous New Year.May 2013 bring you many joys and blessings in abundance!"
