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MDJunction to me

jpcrps"When I found MD Junction, I was in the beginning stages of RSD/CRPS. I was scared, lacked knowledge about the condition, and felt very alone.

MD Junction changed all of that for me. I found friendship and terrific information from people who had first-hand knowledge of this syndrome. It was and still is a big part of my life.

MDJ was my first step on the journey of grief; from denial to acceptance. I am now inspired to help others by sharing this amazing site and sharing my own experiences. I am very impressed that one forum site can provide hope and inspiration to people suffering from so many different conditions. I am proud to be a part of this community.
~ Jenny
" (jpcrps)

more testimonials
BB7 BB7's hugs (36)

scorpioj gave BB7 a Hug
05/03/2013 02:13 AM
a Hug
"Dear Members of the RSD Support Group,

This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.

Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."

​We see
our
main​
job
​as ​
ensur
​ing
that this forum is a positive experience for all members: a place you can find friendship, learn about
​our
condition, and find
​a safe ​
space to express your experiences
​and feelings​
.

You can read about our new, simplified group rules here:
http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group,

and read about
​each of ​
our goals for the group in our leadership profiles here:
http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders

We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!

With Love, Peace, and Aloha,
Howard, Jenny and Julie
"
jpcrps gave BB7 a Hug
03/18/2013 01:24 PM
a Hug
"Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group.

I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?

I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.

I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.

I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.

I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.

Thank you for this opportunity to be of service,
Mahalo,
Jenny
"
Fletch2ya gave BB7 a Hug
01/03/2013 07:32 AM
a Hug
"Hello everyone.....

I hope that everyone had a great Christmas. I know it is a very stressful time, but yet it can be a wonderful time for your heart and soul to open up and be re-filled with the real reason for the season....

I also hope that you had a good New years eve... And brought in this new year with much happiness... and I hope that you all have a wonderful NEW Year.

I would like to also WELCOME all our new members, I hope that you will just make yourself at home here. As I hope you will come to feel about this place as I do. The members here are like family to me....And this is my safe place to come to for help, and advice. Also to just vent when I need...

And as always I have to ask this.. Will every one that has not yet filled out there profiles, please do. As this is a wonderful way for the other members to get to know you better. Also to get to know how and why you came to be here with us in this group...

Again...I hope the best for every one and you are in my thoughts and prayers.
I hope you all have a Wonderful New Year. And Welcome to all the new members....

Craig
"
revvanbus gave BB7 a Hug
11/22/2012 06:41 AM
a Hug
"Happy Thanksgiving to all. I thank God for my friends, for a roof over my head and food to eat, for this group: you who keep me sane and as healthy as I can be. Thanks for you!
Rev.
"
Fletch2ya gave BB7 a Hug
09/14/2012 07:34 PM
a Hug
"HI...Everyone... just thought I would say hi. Wanted to Welcome all the new members to the group.
I hope that you will just make yourselves at home here. Post any questions and comments you might have in regards to RSD and it effects it has on you and your family.....

Also I wanted to remind everyone that has not yet filled out their profiles please do so. As this is a great way for the other member to get to know you better and faster... It is also a good way for you to tell everyone how you came to be here with us.....

Also I have a couple of reminders...

Please try to stay on subject with the title of the Thread... It really helps when you want to research any subject and you don't have to wade through all the off the wall stuff that does not pertain to the subject. Making it harder to find the facts about about that subject.

Also Please, please please... this is a Policy of MDJ...
We do not have discussions here on Religion or Politics. This is not what we are here for, we are here to discuss our problems with RSD.

Again WELCOME to all the new members.... Also HELLO to all the older members, and I hope all of you will please post, we have a lot of new areas to post to, in our forums..... Tell us about your day, your pain, your feelings.... good and bad... We are here for you...

Take care everyone, and you are all in my thoughts.

Craig
"
Fletch2ya gave BB7 a Hug
08/06/2012 09:33 AM
a Hug
"HI... Wow..I can not believe that its August already.... Where has this yr. gone.... I do hope you are doing ok.... I want to welcome all the new members we have here in the group....I hope you all will make yourselves at home here and post any comments, questions and if needed, just vent... We are family here....

Also please fill out your profile... if you are an old member and have not please do this also... as you all know this is a great tool for everyone to get to know each other better.

Just a little update here, the "Forum" changes will be made here in the next couple of days according to Roy. I hope these new changes will make it easier to research our topics here. And with that in mind..... Please when posting, please try to keep your post on subject, as we have said before this helps member who want to do research on a subject find the information they need, without a lot of unrelated stuff to sort through....

Well as for me.... I am doing ok. RSD is up.... I have been in a flare since my neck surgery... but nothing new... hope to be returning home soon.... maybe next weekend...

I hope that you all are doing well.... I hope that if you have been one of the unlucky one that have lived in all the heat that has been around.... I hope you get some relief soon.... Right now where I am its 95 degrees and 88% humidy... expecting RAIN... again.....yuck.....
Anyway... hope you are at least able to find a place to cool off. I also hope and Pray your pain levels are down and will stay down... Also I hope your families are doing well, as I know how if they are having problems, it causes us more pain.. if from nothing else... just the stress......

Well I hope you have a Great day today.... AND a MUCH better day tomorrow..... Please... send a hug to someone you know here today.... I know it will make them feel better.....

Take care my friend....

Craig
"
Fletch2ya gave BB7 a Hug
07/20/2012 11:31 AM
a Hug
"HI.... Just wanted to say hi to all my friends....

I hope that you are having a better day today than the one you had yesterday.... and tomorrow will even be better....

I hope that you will join me in a prayer for the families and victims of the shooting in CO.. Also a prayer for the family of the person who committed this terrible crime, as they need our prayers in trying to understand what could have driven their family member to do such a terrible thing.....

I hope the weather where you live is treating you well, here where I am now is "HOT" very ""HOT"" heat index right now is said to be about 124 degrees...
but I have to say, I like seeing the sun a lot better than seeing all the rain we have had here of late.... We are going to have more rain as of Sunday.... which I am not looking forward too... but that is just the way it goes...

As for me... my neck and back are a little better... my neck wound from my surgery is finally healed..THANK GOD!!! And with my PMD help, my headaches and lower back pain are at a min...so right now I have a lot to be thankful for.... MY RSD is like always.... at about a 6...
I have to go in on Monday for a CT scan of my head, lol to see what is going on in there... and to have blood work on my kidneys.. seems like it is always something....

Well I hope you all are doing well.... and I truly hope you are doing better than the last time we spoke....... MY thoughts and prayer are with you all....

Craig
"
Fletch2ya gave BB7 a Hug
07/04/2012 09:35 AM
a Hug
"HI Everyone....
I want to wish you all a Happy Forth of JULY... This is a day we are to celebrate our Nations Independence. I hope and pray that you all will be able to do the things that you wish to this day.....

I also want to welcome all the new members. I am sorry I have not welcomed you all before, but I guess better late than never....lol..

I want to also ask all of you again, to please fill out your profile as this is a wonderful tool for all to get to know you better and quicker..... so please... fill out your profile.

As for me...my neck has finally healed... and I can go outside with our all the bandages.... I want to thank everyone for all your prayers and well wishes..... THEY really meant a lot to me......

Again... Happy 4th of July and welcome to all the new members.....

I hope you all will have as pain free a day as GOD will allow, please take care of yourselves, and have a great day, and an even better week ahead.....

Craig
"
Fletch2ya gave BB7 a Hug
05/15/2012 09:32 AM
a Hug
"HI all..... Just wanted to say hi to all my friends here at MDJ. I hope that you all are doing well....
As for me, the surgery went well, and the recovery is slow... but I am doing ok....

I am looking forward to being able to go back to TN. soon..... But the Doctors want me to stay around for another 5 weeks...... until I am healed a little better....

I hope that you all are doing well, and are as painfree as possible.....
Just wanted you to know you were in my thoughts.....
Take care...

Craig
"
Fletch2ya gave BB7 a Hug
05/05/2012 09:32 AM
a Hug
"HI everyone... I hope you all are having as pain free a day as possible....
I wanted to say welcome to all our new members.. I hope that you will all make yourselves at home here.
Also I would like to ask you to please fill out your profiles...As this is a great tool for the other members to get to know you....and you to know all of us.
The second thing here is to ask you all to make sure you use the right forum title to make your post.

Forum

Topics


Introductions & Personal Stories
RSD Support Group members are welcome to introduce themselves.
Tell your story, share experiences, success stories and failures.

04/30/2012 01:06 PM
by revvanbus

General & Support
RSD Support Group questions and answers. Ask the community for their help, provide help for others.
Share your dilemmas, your feelings and experiences. This is the main forum section of the RSD Support Group.

Medicine & Treatments
The place to write and ask about RSD treatments, medication, doctor suggestions, etc.

Lounge - Off topic discussions
This is where group members can share and discuss their day to day, favourite jokes, fun & games and everything not directly related to RSD.

Using this make it easier for people to do research here for the topics they need...

And as for me, I go into the hospital on Tues. not sure what time exactly, but they will call me on Monday night to tell me... They are going to do my neck surgery. In someways I am looking forward to it...and in others.... aaaa not so much....
But the doctor said if I don't have it done I will lose the use of my arms real soon...sooo not much choice......

Again..WELCOME to all our new members and to everyone I hope and pray that you have a great week and many more to come...
Remember if you need anything, that I can help you with, please feel free to PM me...
Have a great pain free day..... or as pain free as possible...

Craig







The Role of Activated Glia
The role of Glia, Microglia, Glia activation, chronic pain, immune system and new targets for the treatment of Neuropathic Pain and RSD/CRPS.


4

16

04/06/2012 05:25 PM
by cfthb
"
Fletch2ya gave BB7 a Hug
04/10/2012 05:34 PM
a Hug
"Hi Everyone.... I hope you all had a great Easter...

I wanted to say hi to all the new members, and say welcome...
We are so glad you found us. I think you will find that the people here have hearts of gold, and the info is awesome.

I would also like everyone that has not, TO PLEASE!!!! Fill out your profile, as this is a great tool for the other memberst to get to know you better.... So please..fill out your profile.

And to everyone... I hope that you are having a great day, and the pain is as controlled as well as you possibly can.....

Take care everyone, and post any concerns, comments or if you need, just vent. We are here for you, so make yourself at home...... were family here...

Craig
"
Fletch2ya gave BB7 a Hug
03/19/2012 11:31 AM
a Hug
"HI Just wanted to say hi, and hope you are having a good day...
I wanted to say "WELCOME" to all our new members... I hope that you all will make yourselves at home here and post any questions or comments you might have. I would also ask that if you have not filled in your profile, please do so.. As this is one great way for the other members to get to know you better, and it helps the leaders to keep our little family safe from people that really don't belong here.....

Again... I hope that everyone is doing better today than they were yesterday......

Again WELCOME to all our new members and a BIG HI to everyone else.......

Craig
"
Fletch2ya gave BB7 a Hug
02/22/2012 10:50 AM
a Hug
"HI all.... Wanted to say hi to everyone, and wish them well....
I also want to welcome all the new members.... I hope you find the help and support you need... Please fill out your profiles, as this is a great tool for everyone to get to know you a little better and it helps the leader to keep this group safe.
Again... welcome to all the New members... And HI to all ... I hope and pray all of you will have as good a day as this monster(RSD) we all have will allow.....

Take care...

Craig
"
revvanbus gave BB7 a Hug
01/01/2012 07:57 AM
a Hug
"May 2012 bring good health, good love, good joy (don't know there is any other kind of joy) to you all! And lots of hugs!
Rev.
"
MDJStaff gave BB7 a Hug
01/01/2012 04:51 AM
a Hug
"Wishing you a healthy 2012 with lots of people, helping people!"
Fletch2ya gave BB7 a Hug
12/24/2011 05:13 PM
a Hug
"Merry Christmas to all my friends... I hope that this Christmas finds you doing well...
I also hope the season fills you with hope and goodwill....

HAPPY NEW YEAR to everyone, I hope that you have an AWESOME,fantastic, wonderful year ahead........

You are in my thoughts and prayer my friends.......

Craig
"
revvanbus gave BB7 a Hug
12/23/2011 04:54 PM
a Hug
"I send a big hug to everyone! May this holiday weekend find your pain lower, your rest better, your love shared by all you care about, and your Christmas filled with joy.
Rev.
"
Fletch2ya gave BB7 a Hug
12/08/2011 06:09 PM
a Hug
"Hi everyone.... and welcome to all the new members....
I hope that everyone has filled out their profiles, as this is a great tool for the other members to get to know you better....
I wanted to say that I am sorry I have not been around for a while, as I have had to return to Fl. to see a couple of doctors and have some test run...I hope to be back with you around the first of next week if all goes well...
I do hope all of you are doing well, and I wanted you to know you all were in my thoughts and prayer.....
{{{{{gentle hugs}}}}} for all...
Craig
"
revvanbus gave BB7 a Hug
11/22/2011 10:33 AM
a Hug
"We in the USA enter our period of Thanksgiving for all the blessings we share in this country. For all the pains and hurts I lift my voice to support you. But for at least a day or a week, can we look at the good for there are always blessings even if we have to seek them out. Think about what our lives would be if we lived in the Sudan or Ethiopia with our disease and what we have that they do not. And count your blessings. Above all else this Thanksgiving I give thanks for you; for all of you and give you a big hug. And I pray that this week gives you food on your table, a roof overheard, a friend or family to talk to and laugh with and a heart filled at least a little with thanks.
Rev.
"
Fletch2ya gave BB7 a Hug
11/18/2011 07:28 PM
a Hug
"HI To all my friends... I hope you all are doing well, and are having as pain-free a day as possible...
Well we have another weekend a head of us..... Hope you all have good plans set up so that you can have a relaxing, fun weekend....
As for me... I have some friends coming up from Fl. should have a great time...
It been cold here.. it was like 24 degrees lastnight, but it got up to 47 degrees.... Bright sun shining.... blue skys... It was awesome outside today...
My pain levels have been much the same... somewhere about a 6... starting to go up a bit, not sure why, maybe its the weather or just normal RSD.....
Again I hope you all will have a great weekend....
Hope to talk to you all soon....
Craig
"
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