rosered221's hugs (55)
rsdcrpsfire gave rosered221 a Hug
05/23/2013 04:29 PM
"Sending much love, care, healing prayers and thoughts out to each of you. I've missed you and the time many of us shared together.
Just diagnosed with Gastritis by ERCP 2 days ago. My stomach a lining is extremely inflamed and swollen. A biopsy was taken, stones found beneath my liver and the gall bladder tissue regrowth. My gall bladder was removed nearly 15 months ago. Needles to say the pain is horrible in addition to CRPS.
I will be getting the photos from the RSDSA SF Conference edited onto my blog soon. I promise!
2 procedures and a surgery to go.
As always I wish you pain eased days and nights, please always be as well as you can be.
Warm wishes,
~Twinkle V.
Sent from Kindle Fire"
Just diagnosed with Gastritis by ERCP 2 days ago. My stomach a lining is extremely inflamed and swollen. A biopsy was taken, stones found beneath my liver and the gall bladder tissue regrowth. My gall bladder was removed nearly 15 months ago. Needles to say the pain is horrible in addition to CRPS.
I will be getting the photos from the RSDSA SF Conference edited onto my blog soon. I promise!
2 procedures and a surgery to go.
As always I wish you pain eased days and nights, please always be as well as you can be.
Warm wishes,
~Twinkle V.
Sent from Kindle Fire"
scorpioj gave rosered221 a Hug
05/03/2013 02:13 AM
"Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
​We see
our
main​
job
​as ​
ensur
​ing
that this forum is a positive experience for all members: a place you can find friendship, learn about
​our
condition, and find
​a safe ​
space to express your experiences
​and feelings​
.
You can read about our new, simplified group rules here:
http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group,
and read about
​each of ​
our goals for the group in our leadership profiles here:
http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie"
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
​We see
our
main​
job
​as ​
ensur
​ing
that this forum is a positive experience for all members: a place you can find friendship, learn about
​our
condition, and find
​a safe ​
space to express your experiences
​and feelings​
.
You can read about our new, simplified group rules here:
http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group,
and read about
​each of ​
our goals for the group in our leadership profiles here:
http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie"
jpcrps gave rosered221 a Hug
03/18/2013 01:24 PM
"Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group.
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
Mahalo,
Jenny"
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
Mahalo,
Jenny"
rsdcrpsfire gave rosered221 a Hug
01/03/2013 06:38 PM
"Dear my RSD/CRPS, Chronic pain friends and others.
It was a hard 2012. In fact the last few years have been hard. My husband had Quad bypass open heart surgery December 21st 2012, I spent Christmas in the hospital with him. I brought him home 8 days later. They took an artery from his left arm (12 inch incision) and a vein from his right leg (Approx 6-8 in incision) his heart has another 12 inch scar and 4 smaller horizontal beneath it approx 1.5-2 inches each where the large tubes were draining blood from the surgical site and his lungs. Tomorrow will be a week since we've been home. I spent the first 2 nights in the van at the hospital, during a storm, very cold, while he was in the first ICU. Another day in the van and after that I was able to stay with him in the second ICU and then in Cardiac recovery unit. I've been doing all I can to care for him, lift him, bathe him, feed him etc. It's been really hard but he's done it all for me. In August we had renewed our 25th wedding vows in a church ceremony. As you can imagine fear got the better of me on a few occasions, I thank God every day for the Christmas gift of life he gave me (and him) for bringing him through it. The day of his surgery was the day the world was suppose to end. As he was being wheeled into surgery our sky lit up bright orange and a rainbow appeared. Our daughter was walking to work and captured it happening on her cell phone. It was like God saying... it will be okay and this is my sign to you. Our niece also captured a photo, a double rainbow, but without the sky turning orange. I miss you all. I've had to take leave from the work I do for the time being. Our son Kurtis got his drivers permit only days before we found out my husband needed the surgery after an angiogram. He's been our driver. My husband gets his staples out in 2 weeks. We both have doc appointments tomorrow. I see a Pulmonary Specialist at the end of this month. Previously scheduled for the same day as my husbands surgery which I had to post pone. My sleep study came back abnormal. Much love and care to all of you. ~Twinkle"
It was a hard 2012. In fact the last few years have been hard. My husband had Quad bypass open heart surgery December 21st 2012, I spent Christmas in the hospital with him. I brought him home 8 days later. They took an artery from his left arm (12 inch incision) and a vein from his right leg (Approx 6-8 in incision) his heart has another 12 inch scar and 4 smaller horizontal beneath it approx 1.5-2 inches each where the large tubes were draining blood from the surgical site and his lungs. Tomorrow will be a week since we've been home. I spent the first 2 nights in the van at the hospital, during a storm, very cold, while he was in the first ICU. Another day in the van and after that I was able to stay with him in the second ICU and then in Cardiac recovery unit. I've been doing all I can to care for him, lift him, bathe him, feed him etc. It's been really hard but he's done it all for me. In August we had renewed our 25th wedding vows in a church ceremony. As you can imagine fear got the better of me on a few occasions, I thank God every day for the Christmas gift of life he gave me (and him) for bringing him through it. The day of his surgery was the day the world was suppose to end. As he was being wheeled into surgery our sky lit up bright orange and a rainbow appeared. Our daughter was walking to work and captured it happening on her cell phone. It was like God saying... it will be okay and this is my sign to you. Our niece also captured a photo, a double rainbow, but without the sky turning orange. I miss you all. I've had to take leave from the work I do for the time being. Our son Kurtis got his drivers permit only days before we found out my husband needed the surgery after an angiogram. He's been our driver. My husband gets his staples out in 2 weeks. We both have doc appointments tomorrow. I see a Pulmonary Specialist at the end of this month. Previously scheduled for the same day as my husbands surgery which I had to post pone. My sleep study came back abnormal. Much love and care to all of you. ~Twinkle"
Fletch2ya gave rosered221 a Hug
01/03/2013 07:32 AM
"Hello everyone.....
I hope that everyone had a great Christmas. I know it is a very stressful time, but yet it can be a wonderful time for your heart and soul to open up and be re-filled with the real reason for the season....
I also hope that you had a good New years eve... And brought in this new year with much happiness... and I hope that you all have a wonderful NEW Year.
I would like to also WELCOME all our new members, I hope that you will just make yourself at home here. As I hope you will come to feel about this place as I do. The members here are like family to me....And this is my safe place to come to for help, and advice. Also to just vent when I need...
And as always I have to ask this.. Will every one that has not yet filled out there profiles, please do. As this is a wonderful way for the other members to get to know you better. Also to get to know how and why you came to be here with us in this group...
Again...I hope the best for every one and you are in my thoughts and prayers.
I hope you all have a Wonderful New Year. And Welcome to all the new members....
Craig"
I hope that everyone had a great Christmas. I know it is a very stressful time, but yet it can be a wonderful time for your heart and soul to open up and be re-filled with the real reason for the season....
I also hope that you had a good New years eve... And brought in this new year with much happiness... and I hope that you all have a wonderful NEW Year.
I would like to also WELCOME all our new members, I hope that you will just make yourself at home here. As I hope you will come to feel about this place as I do. The members here are like family to me....And this is my safe place to come to for help, and advice. Also to just vent when I need...
And as always I have to ask this.. Will every one that has not yet filled out there profiles, please do. As this is a wonderful way for the other members to get to know you better. Also to get to know how and why you came to be here with us in this group...
Again...I hope the best for every one and you are in my thoughts and prayers.
I hope you all have a Wonderful New Year. And Welcome to all the new members....
Craig"
revvanbus gave rosered221 a Hug
11/22/2012 06:41 AM
"Happy Thanksgiving to all. I thank God for my friends, for a roof over my head and food to eat, for this group: you who keep me sane and as healthy as I can be. Thanks for you!
Rev."
Rev."
Fletch2ya gave rosered221 a Hug
09/14/2012 07:34 PM
"HI...Everyone... just thought I would say hi. Wanted to Welcome all the new members to the group.
I hope that you will just make yourselves at home here. Post any questions and comments you might have in regards to RSD and it effects it has on you and your family.....
Also I wanted to remind everyone that has not yet filled out their profiles please do so. As this is a great way for the other member to get to know you better and faster... It is also a good way for you to tell everyone how you came to be here with us.....
Also I have a couple of reminders...
Please try to stay on subject with the title of the Thread... It really helps when you want to research any subject and you don't have to wade through all the off the wall stuff that does not pertain to the subject. Making it harder to find the facts about about that subject.
Also Please, please please... this is a Policy of MDJ...
We do not have discussions here on Religion or Politics. This is not what we are here for, we are here to discuss our problems with RSD.
Again WELCOME to all the new members.... Also HELLO to all the older members, and I hope all of you will please post, we have a lot of new areas to post to, in our forums..... Tell us about your day, your pain, your feelings.... good and bad... We are here for you...
Take care everyone, and you are all in my thoughts.
Craig"
I hope that you will just make yourselves at home here. Post any questions and comments you might have in regards to RSD and it effects it has on you and your family.....
Also I wanted to remind everyone that has not yet filled out their profiles please do so. As this is a great way for the other member to get to know you better and faster... It is also a good way for you to tell everyone how you came to be here with us.....
Also I have a couple of reminders...
Please try to stay on subject with the title of the Thread... It really helps when you want to research any subject and you don't have to wade through all the off the wall stuff that does not pertain to the subject. Making it harder to find the facts about about that subject.
Also Please, please please... this is a Policy of MDJ...
We do not have discussions here on Religion or Politics. This is not what we are here for, we are here to discuss our problems with RSD.
Again WELCOME to all the new members.... Also HELLO to all the older members, and I hope all of you will please post, we have a lot of new areas to post to, in our forums..... Tell us about your day, your pain, your feelings.... good and bad... We are here for you...
Take care everyone, and you are all in my thoughts.
Craig"
Fletch2ya gave rosered221 a Hug
08/06/2012 09:33 AM
"HI... Wow..I can not believe that its August already.... Where has this yr. gone.... I do hope you are doing ok.... I want to welcome all the new members we have here in the group....I hope you all will make yourselves at home here and post any comments, questions and if needed, just vent... We are family here....
Also please fill out your profile... if you are an old member and have not please do this also... as you all know this is a great tool for everyone to get to know each other better.
Just a little update here, the "Forum" changes will be made here in the next couple of days according to Roy. I hope these new changes will make it easier to research our topics here. And with that in mind..... Please when posting, please try to keep your post on subject, as we have said before this helps member who want to do research on a subject find the information they need, without a lot of unrelated stuff to sort through....
Well as for me.... I am doing ok. RSD is up.... I have been in a flare since my neck surgery... but nothing new... hope to be returning home soon.... maybe next weekend...
I hope that you all are doing well.... I hope that if you have been one of the unlucky one that have lived in all the heat that has been around.... I hope you get some relief soon.... Right now where I am its 95 degrees and 88% humidy... expecting RAIN... again.....yuck.....
Anyway... hope you are at least able to find a place to cool off. I also hope and Pray your pain levels are down and will stay down... Also I hope your families are doing well, as I know how if they are having problems, it causes us more pain.. if from nothing else... just the stress......
Well I hope you have a Great day today.... AND a MUCH better day tomorrow..... Please... send a hug to someone you know here today.... I know it will make them feel better.....
Take care my friend....
Craig"
Also please fill out your profile... if you are an old member and have not please do this also... as you all know this is a great tool for everyone to get to know each other better.
Just a little update here, the "Forum" changes will be made here in the next couple of days according to Roy. I hope these new changes will make it easier to research our topics here. And with that in mind..... Please when posting, please try to keep your post on subject, as we have said before this helps member who want to do research on a subject find the information they need, without a lot of unrelated stuff to sort through....
Well as for me.... I am doing ok. RSD is up.... I have been in a flare since my neck surgery... but nothing new... hope to be returning home soon.... maybe next weekend...
I hope that you all are doing well.... I hope that if you have been one of the unlucky one that have lived in all the heat that has been around.... I hope you get some relief soon.... Right now where I am its 95 degrees and 88% humidy... expecting RAIN... again.....yuck.....
Anyway... hope you are at least able to find a place to cool off. I also hope and Pray your pain levels are down and will stay down... Also I hope your families are doing well, as I know how if they are having problems, it causes us more pain.. if from nothing else... just the stress......
Well I hope you have a Great day today.... AND a MUCH better day tomorrow..... Please... send a hug to someone you know here today.... I know it will make them feel better.....
Take care my friend....
Craig"
dano gave rosered221 a Hug
07/23/2012 11:32 AM
"My very deepest to all of you.I realize what type of unusual pain we all live through. My very best sentiments and best wishes for all of you."
Fletch2ya gave rosered221 a Hug
07/20/2012 11:31 AM
"HI.... Just wanted to say hi to all my friends....
I hope that you are having a better day today than the one you had yesterday.... and tomorrow will even be better....
I hope that you will join me in a prayer for the families and victims of the shooting in CO.. Also a prayer for the family of the person who committed this terrible crime, as they need our prayers in trying to understand what could have driven their family member to do such a terrible thing.....
I hope the weather where you live is treating you well, here where I am now is "HOT" very ""HOT"" heat index right now is said to be about 124 degrees...
but I have to say, I like seeing the sun a lot better than seeing all the rain we have had here of late.... We are going to have more rain as of Sunday.... which I am not looking forward too... but that is just the way it goes...
As for me... my neck and back are a little better... my neck wound from my surgery is finally healed..THANK GOD!!! And with my PMD help, my headaches and lower back pain are at a min...so right now I have a lot to be thankful for.... MY RSD is like always.... at about a 6...
I have to go in on Monday for a CT scan of my head, lol to see what is going on in there... and to have blood work on my kidneys.. seems like it is always something....
Well I hope you all are doing well.... and I truly hope you are doing better than the last time we spoke....... MY thoughts and prayer are with you all....
Craig"
I hope that you are having a better day today than the one you had yesterday.... and tomorrow will even be better....
I hope that you will join me in a prayer for the families and victims of the shooting in CO.. Also a prayer for the family of the person who committed this terrible crime, as they need our prayers in trying to understand what could have driven their family member to do such a terrible thing.....
I hope the weather where you live is treating you well, here where I am now is "HOT" very ""HOT"" heat index right now is said to be about 124 degrees...
but I have to say, I like seeing the sun a lot better than seeing all the rain we have had here of late.... We are going to have more rain as of Sunday.... which I am not looking forward too... but that is just the way it goes...
As for me... my neck and back are a little better... my neck wound from my surgery is finally healed..THANK GOD!!! And with my PMD help, my headaches and lower back pain are at a min...so right now I have a lot to be thankful for.... MY RSD is like always.... at about a 6...
I have to go in on Monday for a CT scan of my head, lol to see what is going on in there... and to have blood work on my kidneys.. seems like it is always something....
Well I hope you all are doing well.... and I truly hope you are doing better than the last time we spoke....... MY thoughts and prayer are with you all....
Craig"
Fletch2ya gave rosered221 a Hug
07/04/2012 09:35 AM
"HI Everyone....
I want to wish you all a Happy Forth of JULY... This is a day we are to celebrate our Nations Independence. I hope and pray that you all will be able to do the things that you wish to this day.....
I also want to welcome all the new members. I am sorry I have not welcomed you all before, but I guess better late than never....lol..
I want to also ask all of you again, to please fill out your profile as this is a wonderful tool for all to get to know you better and quicker..... so please... fill out your profile.
As for me...my neck has finally healed... and I can go outside with our all the bandages.... I want to thank everyone for all your prayers and well wishes..... THEY really meant a lot to me......
Again... Happy 4th of July and welcome to all the new members.....
I hope you all will have as pain free a day as GOD will allow, please take care of yourselves, and have a great day, and an even better week ahead.....
Craig"
I want to wish you all a Happy Forth of JULY... This is a day we are to celebrate our Nations Independence. I hope and pray that you all will be able to do the things that you wish to this day.....
I also want to welcome all the new members. I am sorry I have not welcomed you all before, but I guess better late than never....lol..
I want to also ask all of you again, to please fill out your profile as this is a wonderful tool for all to get to know you better and quicker..... so please... fill out your profile.
As for me...my neck has finally healed... and I can go outside with our all the bandages.... I want to thank everyone for all your prayers and well wishes..... THEY really meant a lot to me......
Again... Happy 4th of July and welcome to all the new members.....
I hope you all will have as pain free a day as GOD will allow, please take care of yourselves, and have a great day, and an even better week ahead.....
Craig"
Fletch2ya gave rosered221 a Hug
05/15/2012 09:32 AM
"HI all..... Just wanted to say hi to all my friends here at MDJ. I hope that you all are doing well....
As for me, the surgery went well, and the recovery is slow... but I am doing ok....
I am looking forward to being able to go back to TN. soon..... But the Doctors want me to stay around for another 5 weeks...... until I am healed a little better....
I hope that you all are doing well, and are as painfree as possible.....
Just wanted you to know you were in my thoughts.....
Take care...
Craig"
As for me, the surgery went well, and the recovery is slow... but I am doing ok....
I am looking forward to being able to go back to TN. soon..... But the Doctors want me to stay around for another 5 weeks...... until I am healed a little better....
I hope that you all are doing well, and are as painfree as possible.....
Just wanted you to know you were in my thoughts.....
Take care...
Craig"
Fletch2ya gave rosered221 a Hug
05/05/2012 09:32 AM
"HI everyone... I hope you all are having as pain free a day as possible....
I wanted to say welcome to all our new members.. I hope that you will all make yourselves at home here.
Also I would like to ask you to please fill out your profiles...As this is a great tool for the other members to get to know you....and you to know all of us.
The second thing here is to ask you all to make sure you use the right forum title to make your post.
Forum
Topics
Introductions & Personal Stories
RSD Support Group members are welcome to introduce themselves.
Tell your story, share experiences, success stories and failures.
04/30/2012 01:06 PM
by revvanbus
General & Support
RSD Support Group questions and answers. Ask the community for their help, provide help for others.
Share your dilemmas, your feelings and experiences. This is the main forum section of the RSD Support Group.
Medicine & Treatments
The place to write and ask about RSD treatments, medication, doctor suggestions, etc.
Lounge - Off topic discussions
This is where group members can share and discuss their day to day, favourite jokes, fun & games and everything not directly related to RSD.
Using this make it easier for people to do research here for the topics they need...
And as for me, I go into the hospital on Tues. not sure what time exactly, but they will call me on Monday night to tell me... They are going to do my neck surgery. In someways I am looking forward to it...and in others.... aaaa not so much....
But the doctor said if I don't have it done I will lose the use of my arms real soon...sooo not much choice......
Again..WELCOME to all our new members and to everyone I hope and pray that you have a great week and many more to come...
Remember if you need anything, that I can help you with, please feel free to PM me...
Have a great pain free day..... or as pain free as possible...
Craig
The Role of Activated Glia
The role of Glia, Microglia, Glia activation, chronic pain, immune system and new targets for the treatment of Neuropathic Pain and RSD/CRPS.
4
16
04/06/2012 05:25 PM
by cfthb"
I wanted to say welcome to all our new members.. I hope that you will all make yourselves at home here.
Also I would like to ask you to please fill out your profiles...As this is a great tool for the other members to get to know you....and you to know all of us.
The second thing here is to ask you all to make sure you use the right forum title to make your post.
Forum
Topics
Introductions & Personal Stories
RSD Support Group members are welcome to introduce themselves.
Tell your story, share experiences, success stories and failures.
04/30/2012 01:06 PM
by revvanbus
General & Support
RSD Support Group questions and answers. Ask the community for their help, provide help for others.
Share your dilemmas, your feelings and experiences. This is the main forum section of the RSD Support Group.
Medicine & Treatments
The place to write and ask about RSD treatments, medication, doctor suggestions, etc.
Lounge - Off topic discussions
This is where group members can share and discuss their day to day, favourite jokes, fun & games and everything not directly related to RSD.
Using this make it easier for people to do research here for the topics they need...
And as for me, I go into the hospital on Tues. not sure what time exactly, but they will call me on Monday night to tell me... They are going to do my neck surgery. In someways I am looking forward to it...and in others.... aaaa not so much....
But the doctor said if I don't have it done I will lose the use of my arms real soon...sooo not much choice......
Again..WELCOME to all our new members and to everyone I hope and pray that you have a great week and many more to come...
Remember if you need anything, that I can help you with, please feel free to PM me...
Have a great pain free day..... or as pain free as possible...
Craig
The Role of Activated Glia
The role of Glia, Microglia, Glia activation, chronic pain, immune system and new targets for the treatment of Neuropathic Pain and RSD/CRPS.
4
16
04/06/2012 05:25 PM
by cfthb"
Fletch2ya gave rosered221 a Hug
04/10/2012 05:34 PM
"Hi Everyone.... I hope you all had a great Easter...
I wanted to say hi to all the new members, and say welcome...
We are so glad you found us. I think you will find that the people here have hearts of gold, and the info is awesome.
I would also like everyone that has not, TO PLEASE!!!! Fill out your profile, as this is a great tool for the other memberst to get to know you better.... So please..fill out your profile.
And to everyone... I hope that you are having a great day, and the pain is as controlled as well as you possibly can.....
Take care everyone, and post any concerns, comments or if you need, just vent. We are here for you, so make yourself at home...... were family here...
Craig"
I wanted to say hi to all the new members, and say welcome...
We are so glad you found us. I think you will find that the people here have hearts of gold, and the info is awesome.
I would also like everyone that has not, TO PLEASE!!!! Fill out your profile, as this is a great tool for the other memberst to get to know you better.... So please..fill out your profile.
And to everyone... I hope that you are having a great day, and the pain is as controlled as well as you possibly can.....
Take care everyone, and post any concerns, comments or if you need, just vent. We are here for you, so make yourself at home...... were family here...
Craig"
rsdcrpsfire gave rosered221 a Hug
04/05/2012 09:49 PM
"Hi everyone.
As some of you know, I had emergency Gall Bladder removal surgery on the 24 of March and am still recovering. I had my JP drain removed yesterday after having it in since the surgery week. Had it inside me at home for about a week. I have 4 port (incision) sites and all are healing well. The only painful one is the largest incision where the JP drain was located.
I had been sick for quite some time and had no idea what was causing it. Finally on the mend I hope.
Hopefully will become more active again. Have missed you all. Have read your emails even though I became behind while in the hospital.
Wishing each of you the best Easter Sunday and Spring break (Easter Vacation) possible.
Praying that if added activity causes you a rise in pain that the trade off is worth it and that the pain subsides the best it can again soon.
Much love and care to each of you,
~Twinkle"
As some of you know, I had emergency Gall Bladder removal surgery on the 24 of March and am still recovering. I had my JP drain removed yesterday after having it in since the surgery week. Had it inside me at home for about a week. I have 4 port (incision) sites and all are healing well. The only painful one is the largest incision where the JP drain was located.
I had been sick for quite some time and had no idea what was causing it. Finally on the mend I hope.
Hopefully will become more active again. Have missed you all. Have read your emails even though I became behind while in the hospital.
Wishing each of you the best Easter Sunday and Spring break (Easter Vacation) possible.
Praying that if added activity causes you a rise in pain that the trade off is worth it and that the pain subsides the best it can again soon.
Much love and care to each of you,
~Twinkle"
Fletch2ya gave rosered221 a Hug
03/19/2012 11:31 AM
"HI Just wanted to say hi, and hope you are having a good day...
I wanted to say "WELCOME" to all our new members... I hope that you all will make yourselves at home here and post any questions or comments you might have. I would also ask that if you have not filled in your profile, please do so.. As this is one great way for the other members to get to know you better, and it helps the leaders to keep our little family safe from people that really don't belong here.....
Again... I hope that everyone is doing better today than they were yesterday......
Again WELCOME to all our new members and a BIG HI to everyone else.......
Craig"
I wanted to say "WELCOME" to all our new members... I hope that you all will make yourselves at home here and post any questions or comments you might have. I would also ask that if you have not filled in your profile, please do so.. As this is one great way for the other members to get to know you better, and it helps the leaders to keep our little family safe from people that really don't belong here.....
Again... I hope that everyone is doing better today than they were yesterday......
Again WELCOME to all our new members and a BIG HI to everyone else.......
Craig"
Fletch2ya gave rosered221 a Hug
02/22/2012 10:50 AM
"HI all.... Wanted to say hi to everyone, and wish them well....
I also want to welcome all the new members.... I hope you find the help and support you need... Please fill out your profiles, as this is a great tool for everyone to get to know you a little better and it helps the leader to keep this group safe.
Again... welcome to all the New members... And HI to all ... I hope and pray all of you will have as good a day as this monster(RSD) we all have will allow.....
Take care...
Craig"
I also want to welcome all the new members.... I hope you find the help and support you need... Please fill out your profiles, as this is a great tool for everyone to get to know you a little better and it helps the leader to keep this group safe.
Again... welcome to all the New members... And HI to all ... I hope and pray all of you will have as good a day as this monster(RSD) we all have will allow.....
Take care...
Craig"
rsdcrpsfire gave rosered221 a Hug
02/13/2012 10:03 PM
"Sending hugs all around! Thinking of you all and hoping you are getting by the best that you can.
Hoping Spring time makes a difference in our pain levels.
A little warmth will do us all some good. :)
Here's some "warm" wishes, ~Twinkle"
Hoping Spring time makes a difference in our pain levels.
A little warmth will do us all some good. :)
Here's some "warm" wishes, ~Twinkle"
rsdcrpsfire gave rosered221 a Hug
01/28/2012 06:55 PM
"Sending positive thoughts and lots of hope around that pain is minimal or at least tolerable.
When it gets bad..
Breathe in, breathe out...
And let a sense of calm rush over you with each breath
xoxo,
~Twinkle"
When it gets bad..
Breathe in, breathe out...
And let a sense of calm rush over you with each breath
xoxo,
~Twinkle"
revvanbus gave rosered221 a Hug
01/01/2012 07:57 AM
"May 2012 bring good health, good love, good joy (don't know there is any other kind of joy) to you all! And lots of hugs!
Rev."
Rev."