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grandmasylvia"MDJ has been "a soft place to fall" for me as Dr Phil says. I have this very painful rare disease Dercum's Disease and take comfort in finding others here who share their knowledge and compassion. Many
members have helped me just by understanding my anguish and validating
my pain. We are working together to encourage research toward a cure.
" (grandmasylvia)

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AmandaR03
AmandaR03
Rank Member
Online Status OFFLINE
Member Since 05/31/2009 02:28 PM
Last Online 05/27/2011 07:37 PM
Gender: Female
City: Coon Rapids
State: Minnesota
A little about me: Hi, I am Amanda and I was diagnosed with Turner Syndrome when I was 5 years old. I am now 25. It has affected my growth, I took growth hormones until I was in middle school. Since then, I have been on estrogen replacment therapy due to the issues TS causes that whole system of your body. I am also on thyroid medication. I feel it also does affect my communication skills, like a lot of the research I have read says it does. But, I feel I live a pretty normal life. Am just looking for some support as I enter adult life with this and hope to encourage others of you dealing with this by sharing my experiences. I currently am in grad school working on my Masters in Special Education, live at home with my parents, have been working as a special education para, and am trying to find a job that will work well with my schedule finishing grad school next year. Most likely that will end up being substitute teaching.
My Hugs
EricaAAH gave me a Hug
03/09/2012 10:08 PM
a HugHey guys, just another reminder to check on your discussion posts! I haven't received any replies. :) Have a good day.

EricaAAH gave me a Hug
02/26/2012 10:48 PM
a HugHello, members. Remember to check on your posts! I have recently become a leader of the Alopecia Group and I have been responding to some posts without and replies. Don't hesitate to send me a personal message if you'd like. I'm pretty open about everything I have been through and I am more than happy to help you out when I can whether it's advice or if you just need someone to bounce your thoughts off of. I know how important that can be. Anyway, keep your chins up and remember that this disease does NOT define you. We are all beautiful. With OR without hair! :D

zobag gave me a Hug
01/25/2012 02:57 AM
a HugThank you so much I haven't been on here for a while its been a rollercoaster of emotions but I'll be ok I jusyt wanted to say thank you so so much :) xx

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