|Website:||Dercum's Disease Support Group|
|Blog:||My Dercum's Story|
|A little about me:||Hi! I am 67 and live in central Ohio. I retired from a major insurance company after 23 years working as a customer service trainer and overpayment recovery specialist.
I have had DD for at least 50 years but was only diagnosed 7years ago. I had previously been diagnosed with fibromyalgia. At the present time there is no cure for DD. I use every palliative measure I can think of to make it through the chronic pain. My DD has progressed steadily and now I am pretty much an invalid from the DD combined with diabetes and degenerative arthritis. Dr Karen Herbst is doing research on fat disorders and I have hope for the future that a cure will be found. I have a wonderful husband, two children and 4 grandchildren so I have a lot to make me happy. I love life despite the pain and other manifestations of DD. I want very much to be of help to all of my fellow sufferers.
We are committed to actions that will bring the diagnosis of Dercum's Disease to the attention of the medical community and the general public. Dercum's is considered a rare disease but I believe that it is really just under diagnosed. We are here to help those who need to obtain a diagnosis and to pass on our hard-gained knowledge. We hope to help lessen the impact of this disease on our lives. Each group member is precious to me.
Enjoy Life! Hugs, Grandma Sylvia
|Hi Sylvia, It is so good to hear from you. I see you and comment on your facebook posts, however, I don't come here often enough. I guess I need reminders like these hugs. Thanks for the hug. Love and hugs, Celeste.
|If you only knew....I'm always saying to my husband,"Grandma Silvia says this, or GS said that!" I even quoted you to Dr Herbst! LOL. I had to explain about MDJunction and that you weren't my "real" grandma...
Seriously, the pain was so bad and the kaiser doctors had written me off. I was very near to ending this bodily existence and praying that God would forgive me. That my husband and my children could too. I begged Him to take me, night after night. Without finding this site and finding others who had perfect understanding...and gave comfort that, somehow, my family couldn't and that even my Bible felt too distant. The Word still gives great comfort and even greater meaning, every day. There is just something blessed about this group. Something this good usually has His hand on it.
May God Bless you and this Forum,
|One must really have suffered oneself to help others."
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My Support Groups
My Recent Posts
|Dr. Herbst Appointment||12/02/2013|
|I thought i would share with m...||12/02/2013|
|Link to Dercum's Article||11/30/2013|
|Doctor in Toronto, Canada||11/30/2013|
|DD & Statins?||11/30/2013|
|Where Did Fatdisorders.org Go?||11/29/2013|
|Petition Please Sign Dercum's ...||11/26/2013|
|Dercum's Disease petition||11/26/2013|
|Dercum's Disease petition||11/25/2013|
|Happy Thanksgiving Dercum's Di...||11/24/2013|
|NIH recruiting Dercum's patien...||11/24/2013|
|National Inst of Health travel...||11/23/2013|
|Other types of lipamatosis||11/21/2013|
|Any Canadian DD doctors??||11/20/2013|
|DD patients by State link to s...||11/19/2013|