|Member Since||04/07/2009 10:51 PM|
|Last Online||09/02/2010 08:13 PM|
|Occupation:||Disabled Jane of all trades.. Lifting up others.. Loving with all my being..|
|A little about me:||I am a happy go lucky, free spirit who loves to have fun. I love motorcycles, bands, music, playing the guitar which I haven't done in a long time, I love to sing, dance, which is quite hard to do and even funnier to watch probably, but I am trying.. My physical therapist just sent me a set of exercises to do to help my muscles firm up after not using them for so long. I hope it works out good, as my legs are 3 feet long! no really they are from ankle to hip!! lol.. Now if I can just fix the rest of this body which they say will never be done.. My doc tries to keep up with my will but I am likened to a wild mare when it comes to my will, it is very strong, must be the Libra nature in me.. who knows, I think I was meant for great things, and RSD was nature's way of slowing me down so I don't screw it up completely? I don't know.. God knows and no one's telling.. :) I have amazing kids, but they don't know it yet.. they are all grown, two broke my heart, well one really shattered it to pieces recently, totally sent my RSD into a tailspin, the other two well they are fine, my son is my hero basically, he is so smart and kind.|
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|"I have full body RSD/CRPS and am a 28 year SURVIVOR! I also had experiences with people I love who self mutilated. I was suspected of having leukemia when I was little, and a family member died of this disease. I fully support anyone trying to recover from addiction of any kind... Peace, light, love, hugs"|
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|Hi Everyone -
The responses to the survey about this forum posted in early August seem to have stopped at 46 responses. If no further responses appear between now and October 1, we'll consider the survey as complete as its going to get.
If you haven't responded, please do! Here's the link:
Thanks very much to everyone who responded! It will be very helpful to analyze the responses, which we will share with you in summary form. We're looking forward to using your input to help make our forum even better!
Howard, Jenny, and Julie
|Hi Everyone -
Not long ago, I distributed the link to an important survey the three leaders co-authored. The goal is to discover how members feel about several important issues in the forums, to try to increase participation.
After over a month, we've received only 24 responses from nearly 1,000 members! I realize we lose members for many reasons, but this doesn't explain such a low response rate.
PLEASE RESPOND TO THIS SURVEY!! It's only a few questions, it's totally anonymous, and it's the only way we have to solicit input from every single member. Whether you post all the time or have never posted once, we NEED your responses! Without a sufficient number of surveys, we won't be able to trust that the results are representative of the group as a whole.
THANK YOU to the 24 folks who have already responded! To the others, here's the link to the survey - PLEASE click it; in 5 minutes you'll be done: http://www.surveymonkey.com/s/LTT5DPV
A survey is being done to gather opinions from the members about our forum. Please answer the five multiple choice questions, even if you don't post!
The link to the survey is http://www.surveymonkey.com/s/LTT5DPV
Thanks to everyone who's responded! It's vital that as many members as possible complete the survey, so please help us improve your forum!
Howard, Jenny, & Julie
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