|Member Since||04/07/2009 10:51 PM|
|Last Online||09/02/2010 08:13 PM|
|Occupation:||Disabled Jane of all trades.. Lifting up others.. Loving with all my being..|
|A little about me:||I am a happy go lucky, free spirit who loves to have fun. I love motorcycles, bands, music, playing the guitar which I haven't done in a long time, I love to sing, dance, which is quite hard to do and even funnier to watch probably, but I am trying.. My physical therapist just sent me a set of exercises to do to help my muscles firm up after not using them for so long. I hope it works out good, as my legs are 3 feet long! no really they are from ankle to hip!! lol.. Now if I can just fix the rest of this body which they say will never be done.. My doc tries to keep up with my will but I am likened to a wild mare when it comes to my will, it is very strong, must be the Libra nature in me.. who knows, I think I was meant for great things, and RSD was nature's way of slowing me down so I don't screw it up completely? I don't know.. God knows and no one's telling.. :) I have amazing kids, but they don't know it yet.. they are all grown, two broke my heart, well one really shattered it to pieces recently, totally sent my RSD into a tailspin, the other two well they are fine, my son is my hero basically, he is so smart and kind.|
My Awareness Ribbons
|"I have full body RSD/CRPS and am a 28 year SURVIVOR! I also had experiences with people I love who self mutilated. I was suspected of having leukemia when I was little, and a family member died of this disease. I fully support anyone trying to recover from addiction of any kind... Peace, light, love, hugs"|
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|Sending much love, care, healing prayers and thoughts out to each of you. I've missed you and the time many of us shared together.
Just diagnosed with Gastritis by ERCP 2 days ago. My stomach a lining is extremely inflamed and swollen. A biopsy was taken, stones found beneath my liver and the gall bladder tissue regrowth. My gall bladder was removed nearly 15 months ago. Needles to say the pain is horrible in addition to CRPS.
I will be getting the photos from the RSDSA SF Conference edited onto my blog soon. I promise!
2 procedures and a surgery to go.
As always I wish you pain eased days and nights, please always be as well as you can be.
Sent from Kindle Fire
|Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
that this forum is a positive experience for all members: a place you can find friendship, learn about
condition, and find
​a safe ​
space to express your experiences
You can read about our new, simplified group rules here:
and read about
​each of ​
our goals for the group in our leadership profiles here:
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie
|Sending BIG WARM GENTLE HUGS to all.
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