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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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Deidre
Deidre
Rank Member
Online Status OFFLINE
Member Since 03/09/2009 12:43 PM
Last Online 03/29/2012 03:22 PM
Gender: Female
City: Anchorage
State: Alaska
A little about me: I am a 42 year old , with fibro for possibly 13 years. I also have Hep c and some of the symptoms parrelle each other so it's hard for me to know what's what.
My Awareness Ribbons
 
"There are many ribbons I could wear, but this I wear in hope of a cure, for those with geno type 1a, that coventional treatments on are 30% effective, after using harsh interferion and Ribbavorin for a year. These drugs cause problems all on their own. A new treatment is needed."
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My Hugs
leigha83 gave me a Hug
05/03/2013 03:51 PM
a HugFor the month of May, I want you to all know how brave you are because of the battles you have fought within yourself and with society. You are all hero's! (Rape Forum Leader)

The hero is no braver than the ordinary man, but he is brave five minutes longer
- Ralph Waldo Emerson

heysunshine gave me a Hug
05/03/2013 01:52 PM
a HugHUGS to you all! sorry i havent been around in awhile...craziness with school but im glad to be back!! hope you all have been good :)

Nicolet gave me a Hug
04/25/2013 07:49 AM
a HugHey everybody.. just passing by to wish you a lovely and OCD free day... remember one day at a time.. it takes small stepts to reach your goal :) .. good luck, hugs!

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My Diary
Another day in my bedroom in Alaska
My husband called from work today, he's at a new job.He told me his supervisor is one of those grumpy old men that seem to yell all the time, but usually don't mean anything by it. He said the guy yelled at him, and one of the other guys told the sup, you are suppose to encourage the new guy, not hurt his feelings. He looked up and said, ( my husband) don't worry about it, I have no feelings, drives my wife crazy. Everybody laughed. He thought this was funny enough to share with me. I didn't. I thought "sad but true" he has tuned out to me. He is the only person I know in Alaska and it doesn't matter to him anymore if I say I'm hurting. He acts like I said the sky is blue. If I try to say something about how I'm feeling he says " I know, I'm the bad guy like usual" than turns over and goes to sleep. I am alone again It's starting to affect my personality. There is nothing to look forward to any more. I am a nuise on his neck. My plac is just within these four walls, It dosen't matter if I cry. I ca't effect a change. Last night I went as far as to say,Why did you let me divorce someone that loved me, if you weren't going to? He said the grass is always greener on the otherside, don't let the door hit you in the ass. He knows I have no money, and no where to go, My mother constantly reminds me, to not aske bad questions, and to play nice or make up, because there are no alternatives. Meaning no where for me to go. He went to sleep after that. I actually looked online at womens shelters. But he's not abusive. How long will it take before he kicks me out? What would I do, when I can barely get out of bed?Who would pay for my subscriptions? He woke me this morning to say he was dropping his 5 year old son off this morning, instead of this night with his mother, he used the excuse, that he thought I needed a break. I thought, hmm does that mean he has made plans for himself this evening. He had mentioned earlier inthe week running into an old friend at costco, and they had invited him over to play video games. While it may sound like he was trying to be nice to me, that's not the way he works. Either he made plans, or he thought I was unable to take care of Alex. Many times I feel like he only keeps me around to watch his kids. Was he showing me he didn't need me? He knows I feel this way. I have voiced it. The usual response is 'think what you want, your gonna think it anyway".
TitleDateViewsComments
The Haunting 03/28/2010  93 0
sex 05/03/2009  129 3
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