|Member Since||02/12/2009 07:24 PM|
|Last Online||04/23/2010 06:37 AM|
|Occupation:||Soils Lab Technician|
|A little about me:||I was diagnosed with Lyme Disease and Fibromyalgia in January 2009. I've had medical problems almost all my life and every doctor I went to said...I don't know what is wrong with you. Well, now I know. I'm 44 years old and can't remember a lot from my past.
I am currently on aggresive treatments. I am on 17 medications right now...a total of 31 pills a day, shots 2 times a week. I had my port put in my chest on March 30th and have started IV Rocephin on March 31st. I am doing Rocephin IVs twice a day, four days a week for at least the next 4-6 months. I'm on Family Medical Leave through my job right now and I'm not sure what will happen in the future with my job and insurance.
I've been on medication for three months now and have gotten worse instead of better. The doctor said it's going to be a LONG road back. I take each day and try to make it my happiest whether I'm up or laying in bed. I'm taking pain medication just to be able to function.
My brother was diagnosed with Lyme in Sept. 2008. His note said he couldn't live with the disease anymore and he committed suicide Dec. 17, 2008. He was 38 yrs. old. He was in a wheelchair for a while but once he started treatment, he was getting better. I seen the improvements myself. It's hard to understand why he took his life when he was getting better, but he did. He didn't know that we all had it. If he had, maybe he would have stuck around longer to get through it together. But I know he's in heaven watching over us.
In Feb., I took my 2 daughters and my mom to be tested. My oldest daughter, who is 15, tested positive. She began treatment on March 10th. She is currently on 8 medications. My youngest, who is 13, and my mom both tested negative but have enough antibodies in their blood to need treatment also. They went to our LLMD on March 23rd. The doctor is ruling out a few things before saying YES YOU HAVE LYME. After these things are checked, he will make a decision on whether or not to begin lyme treatmetns on them. This is the hardest thing I've had to go through next to my brother's death.
My Awareness Ribbons
||"I wear this greem ribbon because I have LD and I wasn't diagnosed until I was 43 yrs. old. I've probably had it since birth or very early in my life. Maybe by wearing this ribbon, more people will be diagnosed earlier in their fight with this disease. More people need to know about it."|
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|Just sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone...
|Sending hugs and prayers to you, my fellow Lyme Warriors.... Let us stand strong and united this weekend for Worldwide Lyme Disease Protest day... Let us speak the truth... the ugly, shocking, scary, unbelievable truth... Let us be heard... and Let us be healed. *hugs and prayers* purple
|Hugs to all my fellow Lyme Warriors and Lyme Supporters :)~~~~~~~
Until the site problems are cleared up. ~~~~~Please use the GREEN REPLY button instead of the quick reply box when responding to a post.~~~~~
hugs and blessings, purple
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