lilwarden
 |
| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 12/23/2008 05:43 PM |
| Last Online | 05/31/2011 11:25 AM |
| Gender: | Female |
| State: | Missouri |
| A little about me: | I have had RSD since November 2006 started after having carpal tunnel surgery. I've been dealing with w/c and them refusing alot of my treatment so the RSD has spread from my hand all the way up to my shoulder and now am having problems with my foot. Waiting on the approval for a spinal cord stimulator trial. They won't pay for anymore stellate ganglion blocks which definitely helped. Dealing with RSD is bad enough but when you have to fight for everything that just adds more stress. |
My Hugs
 | Sending much love, care, healing prayers and thoughts out to each of you. I've missed you and the time many of us shared together. Just diagnosed with Gastritis by ERCP 2 days ago. My stomach a lining is extremely inflamed and swollen. A biopsy was taken, stones found beneath my liver and the gall bladder tissue regrowth. My gall bladder was removed nearly 15 months ago. Needles to say the pain is horrible in addition to CRPS. I will be getting the photos from the RSDSA SF Conference edited onto my blog soon. I promise! 2 procedures and a surgery to go. As always I wish you pain eased days and nights, please always be as well as you can be. Warm wishes, ~Twinkle V. Sent from Kindle Fire |
| Dear Members of the RSD Support Group, This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD. Our new leadership team has developed a Mission Statement we would like to share with you: "To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand." ​We see our main​ job ​as ​ ensur ​ing that this forum is a positive experience for all members: a place you can find friendship, learn about ​our condition, and find ​a safe ​ space to express your experiences ​and feelings​ . You can read about our new, simplified group rules here: http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group, and read about ​each of ​ our goals for the group in our leadership profiles here: http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you! With Love, Peace, and Aloha, Howard, Jenny and Julie |
| Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group. I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare? I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience. I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family. I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering. I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation. Thank you for this opportunity to be of service, Mahalo, Jenny |
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My Recent Posts
| Lawyer | 12/01/2010 | ||
| New Laser Treatment for CRPS | 11/24/2010 | ||
| TD | 11/22/2010 | ||
| Mental Health assessment for S... | 11/21/2010 | ||
| ssdi and rsd | 10/06/2010 | ||
| no bragging, but working out n... | 10/03/2010 | ||
| spial cord stimulator | 09/15/2010 | ||
| spial cord stimulator | 09/15/2010 | ||
| Physical Therapy | 08/09/2010 | ||
| Instead of Asking, Try searchi... | 07/21/2010 | ||
| Instead of Asking, Try searchi... | 07/19/2010 | ||
| SCS for arm and hand RSD | 07/19/2010 | ||
| SCS Limitations | 07/10/2010 | ||
| Mirror pain? | 07/07/2010 | ||
| Trileptal | 06/16/2010 | ||
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