Aunt Rinn
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| Gender: | Female |
| Website: | www.myspace.com/rinnstar |
| Blog: | http://www.progressiveu.org/blog/kmkohio |
| Birthdate: | 12/03/1978 |
| City: | Columbus |
| State: | Ohio |
| Occupation: | Assistant Business Office Manager/Skilled Nursing Facility |
| Online Status | OFFLINE |
| Member Since | 09/27/2007 18:01:51 |
| Last Online | 05/02/2008 18:57:28 |
| Rank | Member |
| A little about me: | Updated 1/8/08 - So, it's time to switch it up a bit. Not much has changed from the previous description, but the medications have. I've had real issues with my physician. She tried to drug test me on my last visit for a possible stomach flu, or vomiting b/c of the pain (that happens frequently). I'm not sure what being so sick has to do with needing pain medication b/c she doesn't supply me enough to become an addict like that. What's even more weird is I didn't even ask for the pain medication b/c I didn't want to be given a hard time, she offered. I was "afraid" so to speak to say yes, but I did. I didn't end up doing the test b/c I didn't have insurance to pay for it. Awww, too bad. I mean, even if she did find something, what would that mean, that I self-medicate, well of course, sometimes we all do what we have to do to get through each excruciating day. Plus, she asks me "why are you so sick all the time, you never smile anymore". Immediately I think to myself, why would I go see the doctor when I'm well? Would that be more believable that I felt like I was dying that day if I was happy about it? Please, give me a break with that nonsense. I met a new physician the other day. Actually, he gave me my prework physical when I was hired back in October. He spoke of some really interesting things about how he felt about Fibro and he seemed really concerned. Basically, I got a free Fibro consultation with him that day. So, I finally got up the courage to ask him questions the other day when he was doing rounds at my facility. I asked if he knew and General family physicians that could help me with my Fibro b/c of the a fore mentioned situation and others with my current doc. He said "I do" with a smile and gave me a clue into how he would go about treating me. Lyrica for the Fibro pain and pain meds for the breakthrough. He also mentioned Elavil and Cymbalta. He seems to already know what he wants to try. But trying new medications is scary because it's hard to wait for the buildup and kick in of new meds. I'm going to ask him for something that lasts longer than a Percocet for break through until I can see a difference in the morning when I get up feeling like my legs can just do no more. I swear, I must run a marathon in my sleep for all the lactic acid buildup feeling that I go through. I figure maybe it will pass over if I'm looking for longer periods of relief, rather than requesting something stronger. We shall see. He also asked if I had been "worked up", lab wise that is, and I told him just about every work up in the book. Every Arthritis Panel, every Thyroid Panel, and so on, you all know the deal. He seems comfortable with the fact I have, but I get the sense he wouldn't be opposed to looking again. I'm willing to have blood work again, I mean, really, if this is really something else that someone else has missed and is "fixable" I think that's all of our dreams come true, that we could be cured in some way. I would hate to miss the opportunity to get rid of the issue by giving into what previous labs have said. Further, the last testing I had done was years and years ago. That's something else my primary doc NEVER did. I had other tests done and med records transferred to her, but other than that, she just took things at face value. I only really saw her before the Fibro got so bad, was minor flu/cold/not well feelings. I was supposed to go see the Rhuemy back in November, but again, no insurance coverage cost me that visit. My parents offered to pay for the visit, but I wouldn't have been able to get the medications. Sort of a wasted visit I thought. I will try again because this new doc had told me previously that the Rheumy I was referred to was "a good guy". He'll make another referral when the time arrives. I'm struggling with stress right now over this family situation. Struggling with a capital S. I'll update on that just as soon as I get a chance but today has been an exhausting draining day. Actually, I woke up feeling that way. You know when you get that funny taste in your mouth when you are really, really super tired. Well, I couldn't get that to go away today. I promised to go to bed early for a 5:55 wake up time, but it's 11 pm now with a Tornado Watch until 4 am for my county and many of the surrounding counties. I'll just freak if I hear those warning sirens! |
My Purple Ribbon:
"I wear this ribbon as a symbol of a condition that I share with others. I want FM awareness to increase to more than just an "in your mind" chronic pain condition. "
"I wear this ribbon as a symbol of a condition that I share with others. I want FM awareness to increase to more than just an "in your mind" chronic pain condition. "
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My Hugs
 | Thinking about ya and miss ya! Hope you've been feeling less pain these days. ~gentle hugs~ |
| ~YAY~ You're BACK!!! :o) |
| Hi Aunt Rinn, I wish there was a dream pill as well. Thank you so much for hugging me. I needed that. |
| Hi Aunt Rinn, My hubby Dennis and I were reading your post and he wanted me to give you a hug from not only be but from him as well. If you didn't know all ready, he also has chronic pain and other problems such as severe depression, bipolar disorder, etc. I know that he has a horrible time sleeping as well and is tormented by horrible dreams also. Please try not to be afraid of the pain. We are all here for you through good and bad. |
| JRA is juvenile rheumatoid arthritis. As for where I get my info...I've collected links and other sources for over 10 years now. I got a lot from a mentor who had me take over a newsletter she started. I just compulsively keep resources. And I am subscribed to approx. 1000 newsletters a week. So that's part of it. |
Give Aunt Rinn...
My Diary
| Diary Description: | Just a bit about the everyday things... | ||
| Diary Statistics: | Total entries: 3 | Total comments: 4 | Total combined hits: 311 |
| – Saturday, September 29 2007 – | |
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Wow, what happened?
After such a good day yesterday with my FM symptoms, today was by far the worst that I've had in a long time. This "spell" started...
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1 117
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| – Friday, September 28 2007 – | |
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Today was a good day...
I can't remember feeling this good in quite a few days. I think it's partly to do with the weather today. It was 75 and beautiful,...
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3 118
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| – Thursday, September 27 2007 – | |
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Oh the joys of FM - Not so much
So, I thought that the letter I received from my new doc was nice and convincing that he cared about his patients. Supposedly, I should be able ...
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0 76
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Read Aunt Rinn's Diary
My Forum Posts
| Recent Forum Posts | |||
|---|---|---|---|
| Date | Subject | Category | Hits |
| 30 January 2008 | Fibro Basher! | General & Support | 90 |
| 29 January 2008 | Letters to Editor in response to NY Times Article | General & Support | 259 |
| 29 January 2008 | Fibro Basher! | General & Support | 90 |
| 23 January 2008 | I wanted to whack my husband upside the head | General & Support | 329 |
| 23 January 2008 | Cymbalta anyone? | Introductions & Personal Stories | 472 |
| 14 January 2008 | I wish I had insurance | General & Support | 153 |
| 13 January 2008 | Being Robbed of Good Sleep | General & Support | 292 |
| 13 January 2008 | just wondering.... | General & Support | 290 |
| 13 January 2008 | Fibro, Pain and Substance P | General & Support | 463 |
| 13 January 2008 | just wondering.... | General & Support | 290 |
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