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mabri"When I was diagnosed about 18 months ago with fibromyalgia, I didn't know where to turn. I got on my computer and looked for a support group where I could talk to other people with the same disease and get some help...Information, suggestions, mostly just what I can do now that I have this.....disorder/disease/syndrome...I didn't even know what to call it. I found MDJ, and yes, there was a support group for fibro. I started a post, and figured I would never get an answer. However, very quickly I was welcomed in, and became really involved in the group. I received help, support, friendship and the feeling of being truly cared about by these strangers who had become like family to me. Now, I have been here for about a year and a half...I have become a group leader, and love every minute of it. It is so wonderful to be able to help others. I still receive help and answers from the members in this group. The fibromyalgia is where I go to help, support, listen, care and even laugh. I don't know what I would do without this group." (mabri)

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deputy643
deputy643
Rank Member
Online Status OFFLINE
Member Since 09/22/2007 11:06 PM
Last Online 10/13/2008 11:51 AM
Gender: Female
Birthdate: 07/07/1967
City: St. Louis Park
State: Minnesota
Occupation: disabled from Chronic Lyme disease
A little about me: My sister and I are both disabled from Chronic Lyme disease.

We co-founded an advocacy group in Minnesota. We help hundreds of people from many other states, besides Minnesota. We provide them help in finding Lyme Literate Doctor's, we listen, we help with resources and provide them factual information on Lyme disease.

I went 10 years, misdiagnosed, and now have lesions in my brain, spinal cord and liver.

I was given multiple diagnosis' during my journey. I was so ill in 2004, they thought that I had cancer. Went through a painful bone marrow biopsy, to rule that out. I had been seen by over 50 doctor's, all of them did not believe in Lyme disease. We are an epedemic state!

We raise awareness, educate, teach prevention and make sure that our voices are heard, so that no one else has to suffer like we have.
My Hugs
cmany gave me a Hug
05/21/2013 10:13 AM
a HugJust sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone...

purpleyogamat gave me a Hug
05/07/2013 12:06 AM
a HugSending hugs and prayers to you, my fellow Lyme Warriors.... Let us stand strong and united this weekend for Worldwide Lyme Disease Protest day... Let us speak the truth... the ugly, shocking, scary, unbelievable truth... Let us be heard... and Let us be healed. *hugs and prayers* purple

purpleyogamat gave me a Hug
04/04/2013 06:38 PM
a HugHugs to all my fellow Lyme Warriors and Lyme Supporters :)~~~~~~~

Until the site problems are cleared up. ~~~~~Please use the GREEN REPLY button instead of the quick reply box when responding to a post.~~~~~

hugs and blessings, purple

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