deputy643
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| Gender: | Female |
| Birthdate: | 07/07/1967 |
| City: | St. Louis Park |
| State: | Minnesota |
| Occupation: | disabled from Chronic Lyme disease |
| Online Status | OFFLINE |
| Member Since | 09/22/2007 23:06:26 |
| Last Online | 10/13/2008 11:51:06 |
| Rank | Member |
| A little about me: | My sister and I are both disabled from Chronic Lyme disease. We co-founded an advocacy group in Minnesota. We help hundreds of people from many other states, besides Minnesota. We provide them help in finding Lyme Literate Doctor's, we listen, we help with resources and provide them factual information on Lyme disease. I went 10 years, misdiagnosed, and now have lesions in my brain, spinal cord and liver. I was given multiple diagnosis' during my journey. I was so ill in 2004, they thought that I had cancer. Went through a painful bone marrow biopsy, to rule that out. I had been seen by over 50 doctor's, all of them did not believe in Lyme disease. We are an epedemic state! We raise awareness, educate, teach prevention and make sure that our voices are heard, so that no one else has to suffer like we have. |
My Green Ribbon:
"For Lyme disease!"
"For Lyme disease!"
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My Hugs
 | Hello! My name is Tammy and I live in Ct. I believe I have had lymes for quite sometime being told i had pinched nerves becuse of my complaints of neck pain, headaches, and tingling in my hands, with no kinds of tests, I put my health in my Doctor's hands and did not even think to question his opinion,. I know better now. I ham currently on IV ?Rocephin for the next 24 days. I was wondering what kinds of tests should I request to see how my Lymes have affected me. Do I have nerve damage etc etc I would love to hear from you to get some input.Gotta Go Tammy |
 | I wish I could have had the privledge to know Leslie... Her LEGACY has touched me profoundly. To all of Leslie's family & friends,.. my prayers are with you. The world has lost a hero, but Heaven most certainly has gained one. God bless. (((hugs))) Tahnee |
 | Even though I never met or talked to her my heart goes out to her family. My prayers are with you all! Barbara-Fibromyalgia |
| RIP,My heart is broken,i just cant even believe it,,I WILL MISS U,and how u always had my back,,U r the best,and will be missed,,JENN |
| May God comfort you during this difficult time. My deepest sympathies are with your family right now. I'm so sorry. |
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My Diary
| Diary Description: | Venting in an appropriate way and being able to just write it down | ||
| Diary Statistics: | Total entries: 0 | Total comments: 0 | Total combined hits: 0 |
My Forum Posts
| Recent Forum Posts | |||
|---|---|---|---|
| Date | Subject | Category | Hits |
| 08 October 2008 | New article on the "Deadly Dozen" | Introductions & Personal Stories | 190 |
| 08 October 2008 | New article on the "Deadly Dozen" | Introductions & Personal Stories | 190 |
| 15 July 2008 | Just checking in. | General & Support | 56 |
| 15 March 2008 | Patient Advocate Foundation | General & Support | 70 |
| 11 March 2008 | POST your SUCCESS story HERE! | General & Support | 675 |
| 10 March 2008 | gee, don\'t I look normal | General & Support | 454 |
| 10 March 2008 | gee, don\'t I look normal | General & Support | 454 |
| 10 March 2008 | gee, don\'t I look normal | General & Support | 454 |
| 05 March 2008 | where is everybody? | General & Support | 99 |
| 05 March 2008 | cherry juice | General & Support | 149 |
My Articles
No published articles.
