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djfilippone"Before I found this site I felt so alone.  Watching my daughter struggle with IH and being treated like she had two heads from doctors.    I have plenty of family and friends but there was nobody that really knew what she was going through.
I not only have support and love from others who will listen and share their
story, but I have made some forever friends.  Having this support site does make a difference to many.
" (djfilippone)

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dharma79
dharma79
Rank VIP Member
Online Status OFFLINE
Member Since 10/23/2008 10:25 AM
Last Online 03/30/2011 01:54 PM
Gender: Female
Birthdate: 06/27/1974
State: New Jersey
A little about me: I was infected while on an overnight camping trip less than 5 miles from my home in the early spring of 1994.

Of course, I didn't know that at the time. Several weeks later, I became horribly ill.

I was 20 years old with an active lifestyle and my whole life ahead of me, and suddenly I was sleeping 19 hours a day and losing weight rapidly and couldn't understand why I felt like I imagined someone who had gotten hit by a bus would.

Of course I went to the doctor. I was diagnosed with Epstein Barr and told to get some rest and take a few B12 shots. (that doc neglected to tell me Lyme could be a concern and that I should be tested again in 6 weeks...)

It turned out to be the first of many doctor visits, to many doctors for multiple misdiagnoses.

I was finally diagnosed clinically and treated for Lyme in 1999, after my mom and I both finally recalled the suspicious "ringworm" that I had post camping and pre-flu like illness.

After almost a year of antibiotic therapy and few more years of being on maintainence drugs to treat the ridiculous list of symptoms I was still struggling with daily as a result of being mishandled by the medical community, I made a choice to stop taking all the pills.

I had plateaued and was reaching a point in my life where I wanted to think about getting married and having a family and trying to move forward in my life.

It worked for a little while. A met a wonderful man and he and I had a daughter in May of 2007.

My pregnancy went great. I felt better than I had in years, but postpartum, my Lyme came back with a vengance and is making my daughter's toddler years more terrifying for me than I expected.

And to settle our minds we had our daughter tested and she is also positive although she doesn't seem very symptomatic as of yet.

So, now, I am a new mom who is trying to survive Lyme with my baby too and looking for the support to do it.

I also want to get proactive and try to be part of the solution to this complicated problem.

I don't want to sit idly by and let Lyme or Lyme related corruption dictate my quality of life. My life and that of my family's depends on it.
My Awareness Ribbons
 
"Because Lyme has taken enough from me and my family already."
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My Hugs
purpleyogamat gave me a Hug
05/07/2013 12:06 AM
a HugSending hugs and prayers to you, my fellow Lyme Warriors.... Let us stand strong and united this weekend for Worldwide Lyme Disease Protest day... Let us speak the truth... the ugly, shocking, scary, unbelievable truth... Let us be heard... and Let us be healed. *hugs and prayers* purple

purpleyogamat gave me a Hug
04/04/2013 06:38 PM
a HugHugs to all my fellow Lyme Warriors and Lyme Supporters :)~~~~~~~

Until the site problems are cleared up. ~~~~~Please use the GREEN REPLY button instead of the quick reply box when responding to a post.~~~~~

hugs and blessings, purple

Santinagirl gave me a Hug
02/23/2013 11:41 PM
a Hug(((HUGS)))

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