bornsickie
 |
| Rank | New Member |
| Online Status | OFFLINE |
| Member Since | 10/20/2008 07:29 AM |
| Last Online | 05/04/2012 02:13 PM |
| Gender: | Female |
| City: | Gulf side |
| State: | Florida |
| A little about me: | I have had neck lumps for over 18 years. There has not been a Dr. diagnose these at all. I found it with some help on the web about 8 months after loosing my insurance. I am now up to 56 lumps in my neck, knees, legs, ankles, head/neck, throat, nose (internal)and last but, not least... my tongue. Of course I have all the other diseases that are diagnosed before Decrums is ever considered. IBS, Irratle bowel, irritable bladder, female problems, kidney problems, swollen liver and spleen for over 5 years now. The list is endless. I have emailed over 300 Dr.'s, hospitals, clinics, etc. to no avail. When they find out I have 3 different swollen nodes they are in a panic to get me! When they find out I lost my insurance they drop me like a hot potato! Well, I have lived with this undiagnosed disease for over 18 years now I guess I can keep going until something happens. I do have these episodes of passing out for no reason. I have been informed I loose potassium at the drop of a hat for no reason. I believe these "episodes" are the potassium leaving my body. I have had 2 heartattacks that have been atributed to nothing! Does not make sense! During these episodes I feel I am loosing controll of my bodily functions. The first feeling I get is a sick in the stomach feeling then comes the bowel feelings, then comes the body not responding to my commands like... putting out my arms to stop from hitting my head when I fall... it just does not happen. I feel paralized. nothing moves when I command it too. Anyway, I hope to post my symptoms here in the hopes that someday someone will help an uninsured person have some semblence of life again. Thanks for making this site. Posting on other sites have made me feel like a hypochondract and people say really nasty things thinking I am looking for pity which I am not. I hope this site is different. It looks to be promising. I look forward to sharing stories, notes, symptoms, etc. with eveyone and reading about their endevours as well. |
My Hugs
 | Hi Peeps..I want to thank each of you for making 2012 such a productive year. I hope 2013 will be even better! Your participation is helping many! |
| Wishing you a healthy 2012 with lots of people, helping people! |
| BIG hug for you & yours! We wish you an amazing 2011, May all your wishes come true & all your troubles fade away. We hope that together our community will continue to prosper and help so many all over the globe. People helping people at its best ;-) |
Give bornsickie...
My Diary
Daily symptoms
Well the lumps in my throat are growing and hurting worse. I am not down to eating all things liquid. I love baby food so, that helps with getting the right vitamins. And it does not kill my tummy. My fingers and feet are getting worse too. I just realized the other day that there is a lump on my nose!
I am not sleeping well at all. I was up at 4am today. A nap sounds in order.
I am constipated again. I dont know how after drinking so many liquids. And my skin is soooo dry! My skin looks like its 70 years old!
I go back to the clinic on Friday. Hopefully the Dr. will be ready to discuss DD.
The last few days I feel I have been voiding more than I am taking in! OMG the trips to urinate are getting worse as well. The pain in my right lower side is acting up. Surprisingly enough, the enlarged liver and spleen are quiet today. I am sitting up which is rare for me to do. My lumbar and left leg are hurting really bad. I usually can deal with it but, this is pretty bad lately.
Massive headaches have been pretty frequent especially with all the low pressure systems all around Florida and then topped with the DD lumps it has gotten so bad I can barely hold my head up at times.
My yellowing is now beginning to be an all over yellow the last 2-3 months. Sometimes it lasts for a couple of days sometimes just a few hours.
I dont know how the following plays into DD but, I have always had lots of cavities (we always went to the dentist and I wore braces). Plus my nails are extremely brittle. But, now they have hard lines going down the nail bed. Weird. They have always been easy to break, crack and split.
I believe I may have re-fractured my right hand again. This is getting to be a real pain in more ways than one.
Last week I thought I had fractured a toe, but, after another day or so several toes on my left foot began to hurt as badly. I came to the realization that they are DD tumors growing causing this tremendous fracture like pain. And the blood vessels in my toes have been breaking as well. I was only rubbing my foot when I broke a vessel! When my kids were little I rarely spanked them because it always hurt me more than it did them! Blood vessels would break in my hands and fingers every time! It had to be something really, really bad for me to spank them! lol
Now its happening to my toes when I am walking without slippers or rubbing my toes. Weird again! lol
Well the lumps in my throat are growing and hurting worse. I am not down to eating all things liquid. I love baby food so, that helps with getting the right vitamins. And it does not kill my tummy. My fingers and feet are getting worse too. I just realized the other day that there is a lump on my nose!
I am not sleeping well at all. I was up at 4am today. A nap sounds in order.
I am constipated again. I dont know how after drinking so many liquids. And my skin is soooo dry! My skin looks like its 70 years old!
I go back to the clinic on Friday. Hopefully the Dr. will be ready to discuss DD.
The last few days I feel I have been voiding more than I am taking in! OMG the trips to urinate are getting worse as well. The pain in my right lower side is acting up. Surprisingly enough, the enlarged liver and spleen are quiet today. I am sitting up which is rare for me to do. My lumbar and left leg are hurting really bad. I usually can deal with it but, this is pretty bad lately.
Massive headaches have been pretty frequent especially with all the low pressure systems all around Florida and then topped with the DD lumps it has gotten so bad I can barely hold my head up at times.
My yellowing is now beginning to be an all over yellow the last 2-3 months. Sometimes it lasts for a couple of days sometimes just a few hours.
I dont know how the following plays into DD but, I have always had lots of cavities (we always went to the dentist and I wore braces). Plus my nails are extremely brittle. But, now they have hard lines going down the nail bed. Weird. They have always been easy to break, crack and split.
I believe I may have re-fractured my right hand again. This is getting to be a real pain in more ways than one.
Last week I thought I had fractured a toe, but, after another day or so several toes on my left foot began to hurt as badly. I came to the realization that they are DD tumors growing causing this tremendous fracture like pain. And the blood vessels in my toes have been breaking as well. I was only rubbing my foot when I broke a vessel! When my kids were little I rarely spanked them because it always hurt me more than it did them! Blood vessels would break in my hands and fingers every time! It had to be something really, really bad for me to spank them! lol
Now its happening to my toes when I am walking without slippers or rubbing my toes. Weird again! lol
| Title | Date | Views | Comments |
| Good & Bad News Two Dr. visits, several questions and thoughts | 09/08/2010 | 240 | 2 |
My Health Topics Contributions
I started discussions in the following health topics:
Dercum Disease, xavier dercum, xavier dercums orig paper.
Dercum Disease, xavier dercum, xavier dercums orig paper.
My Photos
My Friends
My Recent Posts
| Does anyone haveXavier Dercum'... | 05/04/2012 | ||
| Does anyone haveXavier Dercum'... | 05/04/2012 | ||
| Does anyone haveXavier Dercum'... | 05/04/2012 | ||
| Does anyone haveXavier Dercum'... | 05/03/2012 | ||
| CT Scan | 09/25/2010 | ||
| CT Scan | 09/25/2010 | ||
| Celebrity with possible DD | 09/25/2010 | ||
| Hello Everyone | 03/13/2009 | ||
| Decrum's OTC relief? | 12/01/2008 | ||
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