MDJunction - People Helping People
 

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

more testimonials
fibrochicky
fibrochicky
Rank Member
Online Status OFFLINE
Member Since 06/13/2007 05:32 PM
Last Online 10/19/2011 09:54 AM
Gender: Female
Birthdate: 07/01/1965
City: Phila
State: Pennsylvania
Occupation: disabled since 2000 due to fms etc../run support groups
Website: http://amyjillsfibrochicks.com
A little about me: Hi, my name is Amy I am 45 from Phila.,Pa. Before getting sick I was in the Pharmacy field for over 18 yrs, I was dx 7 yrs ago with adrenal gland insuff / cushings and fibro, in addition since then I have diabetes, severe rls, ibs, narcoelpsy, seziures,,mvp, depression, hypothyroidism, endometrosis, osteopoena, oa , asthma think thats about it sorta..I am a strong advocate for fibromyalgia and all invisible illness, I own and run a wonderful website called fibrochicks, where we share info, vent, cry and laugh together..I have been lucky to meet about 6 of my chicks and some more. I also ran several chats on paltalk, AOL, and my site. I cannot do any kind of pt due to the my muscles being so spastic, nobody can work on me. I am married for almost 14 yrs to my wonderful hubbie Tim. who w/o Idk what I would do,,he does everything for me and is my rock..Never regretted getting into this mess with me..lol..I also have 2 kitties, tigger and oreo who are my babies..

wow been a long time since i have been here, much to update. My latest thing is Osteoporsis in spine and all over now. Broke wrist in 2008 and this year broke arm and wrist...had to get pins put in and been wearing cast for 2 months now.
My Awareness Ribbons
 
"I wear this ribbon because I have fibro and for all my fellow fibromites,,lupies and others out there battling this dreadful dd,,and for all other illnesses it may represent"
 
"for narcoelipsy"
 
"I wear this for several reasons. Osteoporsis, Child Abuse and CFS AWARENESS"
 
"Mommy died of lung cancer at 46, this was 23 yrs ago. Now I am almost the same age, weird"
 
""
 
"For my best friend Jackie who suffers from PKD"
Awareness Ribbons

My Hugs
broken gave me a Hug
08/05/2012 10:23 AM
a Hugthank you for being you..

Adewyn gave me a Hug
04/07/2012 05:49 PM
a HugWishing all my family love and hope on there Easter or passover day!.. Happy bunny day! i love you all!!

hatbox121 gave me a Hug
04/05/2012 05:15 AM
a HugHappy April! And Happy Easter!

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I started discussions in the following health topics:
cfs etc, fms.
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Hi there fellow fibrochickies, gentle huggies
 

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