MDJunction - People Helping People
 

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

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kvnj
kvnj
Rank Group Leader
Online Status OFFLINE
Member Since 10/02/2008 05:50 AM
Last Online 05/24/2013 06:50 PM
Gender: Female
City: Suburban
State: New Jersey
A little about me: As of January 2013, I am working mom of two, diagnosed with RA in October 2008. This is an exhausting and frustrating disease.. Some days it's difficult just to get out of bed, let alone take care of the kids, go to work, take care of the house, etc.. I am very thankful for the good days, and try to make the best of them without overdoing it. That's difficult though.. MTX isnt working so well for me, but reluctant to begin Humira shots... I'm not a big fan of taking meds so I keep resisting. Maybe still a little in denial too... I realize there are far worse things I could have, so I try not to complain too much. Just looking for some support, because it doesn't exist at home at all. Doctor added Fibromyalgia to my list of ailments in October 2010, and of course I'm in denial of that as well!lol What can you do? When life hands you lemons, make lemonade!

Please note: While I am a Group Leader, I am NOT qualified to give medical advice. I am not a doctor, a nurse, or a medical professional. I am a person seeking information just like you. If you have a question of a medical nature regarding your illness, please see your physician! Thanks!! :-)
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"To further the education and research into Rheumatoid Arthritis"
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My Hugs
LiviesMom gave me a Hug
05/21/2013 03:56 AM
a HugHoping you have a peaceful and pain free day !

staci0820 gave me a Hug
04/12/2013 04:00 PM
a HugHaving a bad night.

staci0820 gave me a Hug
03/31/2013 07:07 AM
a HugThank you so much!

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My Diary
TitleDateViewsComments
blah 05/08/2013  51 5
I've joined the high enymes club 02/25/2013  75 1
Shoulder stuff 01/26/2013  119 2
Knees, ankles, wrists 10/02/2012  95 3
Pain killers 06/30/2012  135 2
Still recuperating 06/19/2012  108 3
All dressed for work... 04/27/2012  106 2
This migratory beast 03/30/2012  143 4
still 03/27/2012  135 6
pain 03/01/2012  120 3
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