fluffyluggage
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| Rank | VIP Member |
| Online Status | OFFLINE |
| Member Since | 09/02/2008 04:07 PM |
| Last Online | 03/04/2013 11:31 AM |
| Gender: | Female |
| Birthdate: | 01/10/1975 |
| City: | Atlanta |
| State: | Georgia |
| Country: | United States of America |
| Occupation: | housewife |
| Website: | http://psychicmentalchatter.proboards59.com/index.cgi |
| Blog: | fluffyluggage.livejournal.com |
| A little about me: | When I first joined MDJ, I became heavily involved in the Lyme forum. I put my life on hold from a lot of other things for quite some time! After 18 years of searching and asking all the right questions, I have finally been diagnosed, despite negative tests, and I'm pretty convinced that the diagnoses of CFS and FMS are actually Lyme, thanks to a number of friends and a LOT of investigation. I'm active with the GA Lyme Association (www.GeorgiaLymeDisease.org), as active as I can be, and I really appreciate all the info they and MDJ have given me! I was diagnosed with FMS first, then CFS several years ago, after suffering from symptoms that date back over the course of about 18 years. I found a diagnosis of Raynaud's Syndrome in my medical records while reviewing them for an appointment with a new doctor. Very distressing, actually. It was never mentioned to me, so I had to investigate it myself. And it turns out that I do, indeed, fit the description. Scary that doctors wouldn't bother to mention these things! I also believe I probably have hypothyroidism, as I have just about all the classic symptoms, but my tests always come back "normal." So I suppose it's not surprising that my lyme tests still come back negative? lol! My research shows that's pretty common in many cases where patients have hypothyroidism, but I still can't get a doctor to do a trial treatment! I've also had GERD and IBS for some time now, almost everything relates (for me) back to when I had the horrible flu in 1994, and it's all rather gradual as to WHEN exactly things happened. The last 10 to 12 years have been rough--that's probably about when the GERD and IBS really got bad. I've had IBS probably all my life, but the GERD has been around about as long as the Lyme. LOL--fun times! I also have had esophageal stenosis, a complication that can arise from GERD. More fun! Having been sick that long can be distressing to some, but I try to keep myself as upbeat as possible. I also suffer from migraines (have had them since I was 8 years old, so about 30 years now--EEEK!), asthma for about 18 years--yeah, relates back to the Lyme, allergies, TMJ for several years (another thing that got put in my medical records without my being told!), and chronic pain issues, so I guess to me, it's fairly normal! LOL I was just diagnosed with IC and OAB a couple years ago, which makes a lot of sense. I had been suffering symptoms for about 6 months or more, and I finally got a referral to a great urologist. No one had ever put any of my symptoms together, despite my complaints. But still, I'm pretty upbeat and try to be very positive in my posts. I am a fan of natural and alternative treatments. I still take several conventional meds, and I recognize that they have their place, but I am open to natural methods that might replace any conventionals I'm taking. My mind's open, but I lean toward the natural way, as that is what I've been most successful with. I'm also a Usui Reiki Master and a Karuna Reiki (R) Master. I'm also Wiccan and consider myself extremely spiritual, rather than religious. I LOVE MDJ and am SO grateful that it's come into my life! I also have a lot of resources on green cleaning, am changing over all my cleaning stuff to green/non-toxic products, AND I have a lot of herbal resources I've been using as well! I can't wait to see what you guys have and to share my own info with you. I welcome PM's and any suggestions anyone has to help me feel good on a day to day basis. Goddess knows I could use it! *hugs* all around. Here's hoping we can all feel great! Jen P.S. Since there's no place to put it, I'm on Twitter--look me up if you want. My username is @fluffyluggage. I also have a FB account--feel free to ask me about it. If you live in the Atlanta, GA, area and want to learn more about paranormal investigation, let me know. I run a team of investigators, and we're always looking for new members and cases. **Note that my livejournal account is friends-locked, so if you want to get in, I request a PM--either here or there is fine. If you want me to follow you back on Twitter, let me know who you are by sending me a PM here or a DM there. :) |
My Awareness Ribbons
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"Lyme Disease Awareness" |
"In support of sleep disorders and melanoma awareness." |
"I have CFS, and I feel it needs a lot more attention and research." |
"Headaches and Disability awareness" |
"I have severe asthma, and I got it as an adult. I feel more research is needed" |
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"mental health awareness. just because it's invisible doesn't mean it doesn't exist" |
"breast cancer awareness" |
"I have FMS, chronic pain, adult-diagnosed ADHD, and have been a victim of domestic violence and emotional abuse. there are a number of reasons this ribbon has meaning for me" |
"autism spectrum disorder awareness" |
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| Awareness Ribbons | ||||
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My Hugs
 | Just sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone... |
| Just checking in with a soft gentle hug, & hoping the Fibro beastie isn't bugging you too much. |
| Sending gentle hugs to all in our Raynaud's group and hoping everyone is enjoying the weekend and feeling well :-). For those I haven't met yet, my name is Jen (jj351) and I am thrilled to have recently become Raynaud Disease Group Leader. I look forward to getting to know everyone! |
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My Diary
fluffyluggage
Hmm...well, I guess this'll be the misadventures of fluffyluggage, eh?
Hmm...well, I guess this'll be the misadventures of fluffyluggage, eh?
| Title | Date | Views | Comments |
| Decisions, Decisions | 05/08/2010 | 822 | 5 |
| Dying a little more each day... | 04/13/2010 | 788 | 7 |
| Kids... This is a toughie | 04/06/2010 | 515 | 3 |
| If the migraines don't kill me... | 04/05/2010 | 535 | 2 |
| It's been a while... | 04/04/2010 | 460 | 1 |
| OMG! Great news!! And a rough weekend... | 11/19/2009 | 596 | 1 |
| Nice little scare | 11/21/2008 | 709 | 3 |
| Dr. stalking on the internet!! | 10/28/2008 | 960 | 4 |
| kicked in the gut | 10/21/2008 | 629 | 0 |
| pain is...good? | 10/20/2008 | 641 | 0 |
My Health Topics Contributions
I started discussions in the following health topics:
10 Tips, bill of rights, Bone Pain, bones, communication, congrats, coping, Digestive Disorders, disclaimer, fms, Foods, general info, HELP, herbal, Intro, Muscle Pain, natural remedies, new diagnosis, New Member, OAB, Off topic, remedies, ssdi, SSI, suffering, Support, thanks, uroliths, welcome.
10 Tips, bill of rights, Bone Pain, bones, communication, congrats, coping, Digestive Disorders, disclaimer, fms, Foods, general info, HELP, herbal, Intro, Muscle Pain, natural remedies, new diagnosis, New Member, OAB, Off topic, remedies, ssdi, SSI, suffering, Support, thanks, uroliths, welcome.
My Photos
No photos added
My Support Groups
ADHD Support Group
Advocates Support Group
Anemia Support Group
Anxiety Disorders Support Group
Asthma Support Group
Back Pain Support Group
Chronic Fatigue Syndrome Support Group
Chronic Headache Support Group
Chronic Pain Support Group
Chronic-Intractable Pain Support Group
Costochondritis Support Group
Death in the family Support Group
Depression & Chronic Pain Support Group
Depression and FMS Support Group
Depression Support Group
Dry Eyes Support Group
Dry Mouth Support Group
Environmental Allergies Support Group
Fibro and Chronic Fatigue Support Group
Fibro Challenges Support Group
Fibromyalgia Support Group
FMS & IBS Support Group
FMS and Migraine Headaches Support Group
GERD Support Group
Healthy Eating Support Group
Healthy Nutrition Support Group
Hives Support Group
Holistic & Alternative Therapy
Insomnia Support Group
Interstitial Cystitis Support Group
Irritable Bowel Syndrome Support Group
Lyme & Fibromyalgia Support Group
Lyme Challenges Support Group
Lyme Disease Support Group
Migraine Headaches Support Group
Multiple Chemical Sensitivity Support Group
Obesity Support Group
Obsessive Compulsive Disorder Support Group
Occipital Neuralgia Support Group
Overactive Bladder Support Group
Panic Attacks Support Group
Paranormal Support Group
Peptic Ulcers Support Group
Peripheral Neuropathy Support Group
Permanently Disabled Support Group
PMS & PMDD Support Group
Post Traumatic Stress Support Group
Protomyxzoa Rheumatica Support Group
Raynaud Disease Support Group
Sciatica Support Group
Self Esteem & Positive Thinking Support Group
Service Dogs Support Group
Social Security Disability Advice Support Group
Stress Management Support Group
Tinnitus Support Group
TMJ Support Group
Tooth Grinding Support Group
Undiagnosed Symptoms Support Group
Vertigo Support Group
Advocates Support Group
Anemia Support Group
Anxiety Disorders Support Group
Asthma Support Group
Back Pain Support Group
Chronic Fatigue Syndrome Support Group
Chronic Headache Support Group
Chronic Pain Support Group
Chronic-Intractable Pain Support Group
Costochondritis Support Group
Death in the family Support Group
Depression & Chronic Pain Support Group
Depression and FMS Support Group
Depression Support Group
Dry Eyes Support Group
Dry Mouth Support Group
Environmental Allergies Support Group
Fibro and Chronic Fatigue Support Group
Fibro Challenges Support Group
Fibromyalgia Support Group
FMS & IBS Support Group
FMS and Migraine Headaches Support Group
GERD Support Group
Healthy Eating Support Group
Healthy Nutrition Support Group
Hives Support Group
Holistic & Alternative Therapy
Insomnia Support Group
Interstitial Cystitis Support Group
Irritable Bowel Syndrome Support Group
Lyme & Fibromyalgia Support Group
Lyme Challenges Support Group
Lyme Disease Support Group
Migraine Headaches Support Group
Multiple Chemical Sensitivity Support Group
Obesity Support Group
Obsessive Compulsive Disorder Support Group
Occipital Neuralgia Support Group
Overactive Bladder Support Group
Panic Attacks Support Group
Paranormal Support Group
Peptic Ulcers Support Group
Peripheral Neuropathy Support Group
Permanently Disabled Support Group
PMS & PMDD Support Group
Post Traumatic Stress Support Group
Protomyxzoa Rheumatica Support Group
Raynaud Disease Support Group
Sciatica Support Group
Self Esteem & Positive Thinking Support Group
Service Dogs Support Group
Social Security Disability Advice Support Group
Stress Management Support Group
Tinnitus Support Group
TMJ Support Group
Tooth Grinding Support Group
Undiagnosed Symptoms Support Group
Vertigo Support Group
My Friends
My Recent Posts
| New to group | 04/01/2011 | ||
| minimally invasive back fusion | 04/01/2011 | ||
| Fed UP | 04/01/2011 | ||
| Myelogram before my laminectom... | 04/01/2011 | ||
| triple thorasic laminectomy pa... | 03/31/2011 | ||
| Degenerative disks in neck | 03/31/2011 | ||
| ENOUGH IS ENOUGH | 03/31/2011 | ||
| ENOUGH IS ENOUGH | 03/29/2011 | ||
| Somebody please help me. | 03/27/2011 | ||
| Welcome to the Fibro and Chron... | 03/27/2011 | ||
| New & Depressed | 03/27/2011 | ||
| Hello everyone I am new here! | 03/27/2011 | ||
| New and frustrated | 03/27/2011 | ||
| insurance sompany who think th... | 03/27/2011 | ||
| frustrated | 03/27/2011 | ||
My Articles
No articles published