|Member Since||08/24/2008 06:07 PM|
|Last Online||11/05/2013 01:13 PM|
|Occupation:||100% Disabled by RSD|
|A little about me:||I married 'way over my head' to my darling bride for over 25 years. We have two girls who are 11 and 8 years old. I want to live to give these girls away to their husbands and I want to hold at least one of my grandchildren. That is in God's hands if that happens.
We moved to Florida because I do better in warmer climate. My wife is a native Floridian before we got married. We found an RSD doctor who has treated RSD for over 20 years. He has saved my life.
If I can help you in any way, please let me know. Anything that I say is my opinion. I am not a medical doctor or a trained pain management counselor.
But I care about you as we struggle together to live a life as close as we can to "normal".
I am gratefule. I am blessed. As I awake every morning, it is beneficial to begin my day with gratitude for the wonders of life around me.
In times of pain, stress, and financial hardship, it is sometimes easier to appreciate the small things that we previously took for granted in our lives.
On this Day of Thanks-giving, I wish to give Thanks to all of my Friends here at MDJ.
You have each in your own way made a difference in my life and for that I am truly grateful.
May your day be blessed with low stress, low pain, and tender loving care.
|“Life has many ways of testing a person’s will, either by having nothing happen at all or by having everything happen all at once.” – Paulo Coelho
I am sending this hug to all of you who have befriended me on MDJ. When I first came here, I had no idea how much a part of my life you would become. I want to acknowledge you ~ each one of you specifically ~ for the role you have played in my battle with Complex Regional Pain Syndrome. If I did not have such good friends who create and hold space for this purpose, who respond to me in times of despair and in times of joy, and who walk this path with me, I would be much less than I am, for your presence beside me on this path fills me with riches beyond belief, and lift me up when the body is weak and the spirit is low.
November is CRPS Awareness Month. In honor of that, I also would like to share a little bit about what CRPS is (not all of my friend have CRPS), and to encourage everyone to do something ~ large or small ~ to contribute to raising awareness about this condition.
"CRPS is a rare chronic neuroinflammatory disorder. There may be as many as 50,000 new cases of CRPS diagnosed each year. Most people with the disease typically see at least five physicians before being accurately diagnosed." Source: RSDSA.org pamphlet 'Could this be CRPS/RSD'
CRPS is a progressive disorder which currently has no cure. It affects the Central Nervous System, that is, the brain and spinal cord. It sets up a chemical reaction in the body causing inflammatory cells to act on the peripheral body, which over time degrades the body. It also changes the way the brain is organized (neurological plasticity), so that memory, sleep, pain, touch, temperature, swelling, hair, skin and nail growth, joint movement, bone health, and internal organs can all be negatively affected.
This year President Obama has put money toward brain research in what is called the "Brain Initiative". On their web site they state:
"The Initiative promises to accelerate the invention of new technologies that will help researchers produce real-time pictures of complex neural circuits and visualize the rapid-fire interactions of cells that occur at the speed of thought. Such cutting-edge capabilities, applied to both simple and complex systems, will open new doors to understanding how brain function is linked to human behavior and learning, and the mechanisms of brain disease."
For the month of November I have asked the members of my live support group to bring a guest to our meetings. I am also participating in a fashion show which will have a segment on CRPS, showing videos of CRPS patients describing how the condition has changed their relationship with clothing!
I invite you to take some action to bring more awareness to this sometimes crippling, and always overwhelming disease. If you do not know what to do, you can obtain free brochures from the National Institites of Health to distribute to your physicians, and friends. There may be people who have this condition, but have not yet been diagnosed. Such an action may change the course of someone's life.
http://www.ninds.nih.gov/disorders/ reflex_sympathetic_dystrophy/ detail_reflex_sympathetic_dystrophy.htm
In closing, I would like to offer this affirmation:
My heart is filled with promise, peace, and love.
I wish that your heart, too, may find peace amid the craziness of this world. For despite the war, violence and hatred, it is still a beautiful place. And life is good.
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