|A little about me:||MDJ has lots of info and members ready to share experiences and give a word of encouragement. I'm so glad I found this site!
I have a rare autoimmune disease, Pityrus Rubra Pilaris (PRP), that attacks the skin and affects my quality of life greatly. It makes me very ill at times. There is no cure, but after 19 years, I believe I am finally headed for remission because I'm seeing great improvement.
I also have Type 2 Diabetes and arterial spasms (these are under good control).
The first response I get from strangers, is a question about my red skin. I find that if I joke about it, everyone can laugh, and then we can move on to a normal conversation. I like to say I am an authentic red-neck woman (as you can see in my picture). If I am at ease with my appearance, others readily accept me as I am.
This picture is on a good day with a mostly white face and much lighter red skin than when it is flaring. On bad days I just lie around and rest. On good days, I run like the wind, well, to tell the truth, I run like an old lady, but I can accomplish a few things.
I believe my healing is coming from prayer, support of family and friends, eating lots of fresh vegetables and fruits, and an antidepressant that helps to calm my skin.
My husband & I enjoy walking in the woods and feeding the birds, especially the hummingbirds. I also can get butterflies to sit on my hand. What a thrill to hold these small, beautiful creatures!
We just moved last year from our log cabin in the woods and miss it a lot. Now my walking is done on town sidewalks.
|My Thanksgiving day ended with a full belly, a warm heart and a grateful soul. I'm truly blessed. I hope that you had a wonderful holiday as well. Enjoy the weekend!
|(((((((HUGS FOR YOU)))))))
Glad to hear that you are doing so much better. That's encouraging for me.
I started with this crazy rash in May. I have seen 3 dermatologist since then, and have under gone 5 biopsies..the last time thinking it was Prp,,but it came back negative. I started with a small rash, that continued on and bt the middle of July it was from head to toe. The worst part was in July n August where my skin was peeling off in sheets. Now I'm still itchy and flaking everywhere. Also have problems with feet splitting and cracking .sometimes it's hard to walk. Also my palms and soles are very thick . I'm hoping for a Christmas miracle. :)
Learning to Live with Erythroderma
Red Skin Diseases
Red Skin Diseases
|PRP Getting Better & Better||10/01/2013||69||1|
|Another flare of PRP||08/03/2013||157||2|
|Headed for Remission! (before/af...||07/25/2013||207||1|
|PRP Prednisone Reaction||07/09/2013||300||2|
|Preparation for Humira||10/21/2012||362||1|
|Skin Biopsy Results - pictures o...||10/13/2012||506||0|
|Erythroderma progression and des...||09/29/2012||489||0|
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