violett
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| Rank | Group Leader |
| Online Status | OFFLINE |
| Member Since | 08/17/2008 09:09 AM |
| Last Online | 05/18/2013 07:58 AM |
| Gender: | Female |
| Birthdate: | 06/29/2009 |
| State: | Illinois |
| Occupation: | writer |
| Website: | http://www.violettoler.com |
| A little about me: | My husband and I feed many species of birds. The hummingbirds sit on my finger to feed if I am very patient and quiet. We enjoy living and walking in the woods where we live. My cat, Maxine, was living as a feral in the woods behind our house. I tamed her, and now she has changed from a wild cat to a sweet lap kitty. I have Exfoliative Dermatitis also known as Erythroderma (ED), a rare autoimmune disease that attacks the skin and affects my quality of life greatly. It makes me very ill at times. Other symptoms, besides the red, painful skin are similar to those of Fibromyalgia or Lupus. I also have Type 2 Diabetes, IBS, and arterial spasms (these are all under good control). These diseases are not who I am. I will not be defined by my illness. The first response I get from strangers, is a question about my red skin. I find that if I joke about it, everyone can laugh, and then move on to a normal conversation. I like to say I am an authentic red-neck woman. If I am at ease with my appearance, others readily accept me as I am. There is no cure for ED. For seventeen years, I have been fighting it through research, nutrition, and exercise. Remission is a possibilty, but becomes more remote with each passing year. MDJ has lots of info and members ready to share experiences and give a word of encouragement. I'm so glad I found this site! |
My Awareness Ribbons
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"For Ruby and Josephine, my 2 mothers. Both had breast cancer." |
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My Hugs
 | * Wishing you songbirds to welcome each morning, Wishing you flowers to brighten each spring, Wishing you laughter, and sharing and caring, And all of the joy that each new day can bring! Happy Mother's Day |
| Remember that May 10th is Lupus Awareness Day....show your support by wearing PURPLE!!! |
| Sending out a gentle BIG BEAR HUG to all.... Cinco de Mayo is tomorrow, big celebrations throughout our Florida resort town tomorrow Remember the past and remember, too, more recent past- if unhappy with what happens, if is in the past you cannot change it so no need =to stress out or worry about such- Remember the serenity prayer Also live the present, look forward to the future TODAY is the first day of the rest of your life Enjoy, spring into summer is here... Have a nice weekend! |
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My Diary
Learning to Live with Erythroderma
Exfoliative Dermatitis (Erythroderma)
Exfoliative Dermatitis (Erythroderma)
| Title | Date | Views | Comments |
| Complications | 10/24/2012 | 272 | 3 |
| Preparation for Humira | 10/21/2012 | 241 | 1 |
| Skin Biopsy Results - pictures of red skin | 10/13/2012 | 301 | 0 |
| Erythroderma progression and description | 09/29/2012 | 307 | 0 |
| Unending Saga | 09/07/2012 | 217 | 1 |
| Narrowband UVB Phototherapy | 08/07/2012 | 384 | 2 |
| 5 biopsies | 07/27/2012 | 256 | 1 |
| New Doctor for Erythroderma | 06/23/2012 | 307 | 1 |
| Iliopsoas | 03/28/2012 | 389 | 1 |
| Red, peeling skin | 03/04/2012 | 747 | 2 |
My Health Topics Contributions
I started discussions in the following health topics:
Ablation, advocates, arrhythnias, Byetta, chronic skin problems, congestive heart faioure, diabetes medication, Diabetes Type 2, Erythroderma, Erythrodermic Psoriasis, Exfoliative Dermatitis, fatty liver, Flu Shot, Food, healing chronic skin problems, Health Information, health tips, Ichthyosis, medical advice, medical health, Medical Treatment, medical treatment advice, milk allergy, non traditional treatment...
Ablation, advocates, arrhythnias, Byetta, chronic skin problems, congestive heart faioure, diabetes medication, Diabetes Type 2, Erythroderma, Erythrodermic Psoriasis, Exfoliative Dermatitis, fatty liver, Flu Shot, Food, healing chronic skin problems, Health Information, health tips, Ichthyosis, medical advice, medical health, Medical Treatment, medical treatment advice, milk allergy, non traditional treatment...
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My Support Groups
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My Recent Posts
| Trivia question | 05/16/2013 | ||
| My first roses of summer | 05/15/2013 | ||
| My first roses of summer | 05/15/2013 | ||
| My first roses of summer | 05/15/2013 | ||
| My first roses of summer | 05/15/2013 | ||
| Today, Maxine says... | 05/15/2013 | ||
| Unlisted/unpublished number IS... | 05/15/2013 | ||
| Do you remember Studebaker car... | 05/13/2013 | ||
| Today, Maxine says... | 05/13/2013 | ||
| Today, Maxine says... | 05/12/2013 | ||
| To Our Pet Moms | 05/12/2013 | ||
| Have a Blessed day | 05/12/2013 | ||
| Cute cartoon | 05/11/2013 | ||
| Cute cartoon | 05/11/2013 | ||
| Leg Cramps? | 05/11/2013 | ||
My Articles