|Member Since||08/12/2008 07:32 PM|
|Last Online||05/10/2011 06:51 PM|
|Occupation:||Admin because I have to. Artist/Poet because I love to.|
|A little about me:||I have been diagnosed with Chronic Epstein Barr as well as Chronic Neurotoxin Disease (CND). I am a super creative person but have had difficulty following my passions in art and poetry. I was originally suffering from major brain fog and very bad equilibrium problems to the point where I was having difficulty just walking from one place to another in my home. It seems that CEBV and Chronic Neurotoxin Disease work hand in hand to wreak havoc on the body.
I have been to many doctors in the past few years only to have them scoff at me or tell me that my symptoms are my imagination. I have been told that having CEBV just means that you have had Mononucleosis in the past and you cannot get it again. Very wrong. I have learned that the higher the CEBV numbers are, the more pain and discomfort you have in your body and the more difficult it is to function in life. I have finally found a doctor and medicines that are helping me. My message to others who are struggling for answers is please DO NOT GIVE UP SEARCHING. Get the numbers down from CEBV and your pain and other issues from CEBV will subside. They have for me. To anyone with fibromyalgia, I would suggest getting your CEBV numbers checked. If they are high, there is your reason for all the pain and discomfort. If you get the numbers down, the pain and discomfort will subside.
After over fifty years of many different problems, it is a great feeling to know that I am finally on the right track to getting healthy. I look forward to making acquaintances with folks here on this site and I would love to answer any questions I can about my past symptoms and my recovery road. I hope I can provide answers, support, or help to others and spread information of what I have learned through being sick.
Chronic Neurotoxin Disease (CND) is a bit scary but it makes a lot of sense. My doctor told me I am a canary being that because of my genetics, I am one of those that is first affected by the air, water, and soil around them. Looks like I have had CND most of my life, probably since my symptoms first showed up at about seven years old. That's when I learned to swim in the river and I grew up swimming in canals around my home. Nobody realized at the time that all the pesticides and fertilizers sprayed on crops were running off in the water and made contact with us when we swam. I started having skin problems so severe that what started as a rash in the folds of my arms spread to other places and became boil-like sores full of puss. It was so bad I couldn't close my arms and my mother used to make me soak my skin in Hexol every day after school but it didn't help. I had skin problems all of my life. I was put on tranquilizers when I was seven because the doctors thought that the skin problems were caused by my being too high-strung (their words). I didn't like the way the tranquilizers made me feel so I wouldn't take them. Can you imagine putting a seven year old child on tranquilizers because they are too high strung? At 18, I was again prescribed tranquilizers because the doctors said I was going to have a nervous breakdown because I had the shakes. I would faint at work and would be taken to a sick bed in the bathroom. I would shake so bad, my teeth would chatter but I wasn't cold. I knew that if I started thinking tranqulilizers were a remedy I would be addicted the rest of my life or dead and I didn't like either one of those choices. If I was having problems because of being too high-strung as they said, what pill in the world will permenantly change that? My life has been a battle to stay well fighting not only my body's health but the ignorance of some doctors. I have learned to be very proactive and not be intimidated by doctors who don't like you to ask questions or out-and-out question their authority by pointing out their ignorance on some subjects.
I started meds for Neurotoxin Disease about one year ago. It seems that toxins hide in fat cells and as fat cells multiply so do the toxins. And when the toxins fill up your body they go to the brain because your brain is 60% fat. The medicine works like a sponge to remove toxins from the cells so they can be eliminated and not stay in your system to cause bad side affects. After four days on the meds, I was feeling like a new person and my brain functioned again.
I have learned that if all people with Alzheimer's were tested for neurotoxins and treated for neurotoxins, many would NOT have symptoms of Alzheimers anymore. That is because, they have neurotoxin disease, not Alzheimers.
If you think about the wildlife that is affected by neurotoxins, what we are doing to our planet is very scary. The news hardly covers it but many marine mammals and other creatures from the sea are washing up on the shores of both the east and west coasts. There have been studies done showing that their brains were destroyed by neurotoxins.
If you check out the state of Florida there is evidence that toxins are moving up the food chain. Fish, birds, and even alligators are dying because of toxins. We humans are just as susceptible to neurotoxins from the environment.
I have been called a canary because I have a genetic defect I was born with so I have no protection to help my body rid itself of toxins. But as a canary I am hear to say that what has happened to me with neurotoxins will eventually happen to everyone, genetics or not, because of what we have done to our environment.
I never used to think much about it until I had to fight to get my health back but I now understand the importance of sounding the alarm for people to wake up. Miners carried canaries into the mines because canaries were the first to die deep in the mines to warn the miners that there wasn't enough oxygen to breathe.
As for the CEBV, I have been taking Olive Leave Extract by a company called Seagate and my levels have dropped significantly from 20 times the norm down to four times the norm. They have stayed at about 430 for a year now. I know how important it is to get those numbers down because there is a connection to other more serious illness even though many doctors that I had seen in the past said that having high levels of CEBV was nothing to worry about. That is very wrong.
Before OLE, I had so much inflammation, I could hardly walk because of the pain and now I am close to being pain free. I will make sure to update regularly so others can benefit from my experience.
I now take my neurotoxin meds twice a day but only during the work week, not on the weekends. I had my blood work done this year again and my CEBV levels are still around 430 but I now have antibodies to fight infection which I did not have a year ago. I must admit that I was a little disappointed that my levels were still higher than they should be but at least I have antibodies now and I am feeling good.
I do need to stay out of the other building at work because I get sick every time I spend over a half hour in that building. An air purifier has been purchased which seems to help but I still get headaches when I am there too long. Then I get brain fog and start walking tipsy, dragging my feet. At this point, I have to be careful I don't fall because I think I am picking up my feet but I am dragging them so on top of having equilibrium problems, I trip myself and that's not good, especially on stairs but it's even bad on flat ground. I have taken some pretty serious falls in the past and thankfully, I haven't broken anything. My bones just crack a lot when I move.
I have had a couple of mild flares of CEBV recently but all in all, I am doing pretty good. I am walking fairly normally most of the time now and I have learned to recognize the signs of toxicity in my body and start my toxin meds straight away. I have been able to keep toxins from destroying my functioning so far and am so very grateful that I found a doctor who understands about CEBV and Neurotoxins. I pray that there will be more doctors out there who aren't afraid to go the extra mile for patients to help them get better.
If you are discouraged because you aren't getting the help you need, please know that there is hope. You must be very proactive with your health and just keep on searching until you find someone with the knowledge to help you get on the road to recovery.
I am here to say I am a survivor of CEBV and I refuse to let it or chronic neurotoxin disease control and destroy my life. I have way too many things I want to do and I refuse to let these illneses have control.
Please stay tuned for future developments.....
Last updated 10-22-10
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