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lymebytes
lymebytes
Hits 336
Online Status OFFLINE
Member Since 05/13/2007 19:41:46
Last Online 08/29/2008 12:47:01
Last Updated 07/26/2008 15:05:23
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My Ribbon
RibbonDateWhy I wear this ribbon
lime_green_ribbon.gifLime Green Ribbon 05/16/2007Lyme Disease Awareness
About Awareness Ribbons

General
Gender: Female
Website: http://www.truthaboutlymedisease.com/
Blog: http://www.truthaboutlymedisease.com/about.html
State: California
Occupation: Education of Lyme Disease
A little about me: 6 people in my family have Lyme Disease, diagnosed after my Lyme and co-infections came back positive through Igenex. None of us has the same set of symptoms.
I live in California a state where most MD's think Lyme Disease is a "back East" disease. My family is living proof that is false, in fact I have read Northern Cal is the 3rd highest endemic region for LD.
I have suffered a horrific, painful neuro case of LD. I have had Bartonella and both HME and HGE Ehrlichiosis, although Biaxin cleared Bart and HGE.
I was misdiagnosed by 12 MD's, everything from anxiety to Fibromyalgia and then an MD gave me a cortisone shot that disseminated the disease like wildfire from scalp to feet and the shots reactivated dormant viruses as well.
I figured out for myself (by studying lyme stories online that I had LD). So sick and in disbelief, I have turned my misery into my "ministry" and my only desire now is to is educate and help others as I continue down the road to wellness myself. I have written several articles at publichealthalert.org (monthly Lyme newspaper. My story has been published twice, once in Public Health Alert and Joyce Meyer Ministries monthly magazine reaching 3 million people. My entire story and families can be read at my site (Author's Bio) and other patient stories (contribute your story too if you'd like) at: http://www.truthaboutlymedisease.com/

There is much to learn about this disease and to educate others I have put in around 8000 hours of study and written over 100 articles for my website under the forum index at "Everything You need to know about tick borne disesases".

Peace and Prayers to all with this devastating disease.
My Hugs
Give lymebytes...

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Your message:

Friends who hugged me:
ConnieD gave me a Salute
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07/28/2008 17:39:42

Thank you for your hard work and dedication. I refer people to your website quite frequently. I'm back on my feet after being really sick for ten years. I love learning about this crazy disease. I'm ready to stand up for all of us 'lymies' if I am ever called to do so. Thanks again for your work.

jaime1978 gave me a Hug
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02/15/2008 08:30:19

haha, you put a smile on my face my little banana :) Thanks for the hug :) call me today!

Jenn56 gave me a Hug
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12/02/2007 16:47:23

Hi,i do have a llmd,he is said to be the best in N.Y.Dr Visconti has lyme him self he has been fighting over 20years,The picline was my very first treatment it was in my arm 4 three months.And then i was put on ceftin as soon as it came out and that was one year ago,still on ceftin 1500mg aday.My llmd has tryed to change it up in the past but i seem to feel my best when im on the ceftin,but lately alot of old symptoms are coming back the brain fog is nuts,sometimes i look at people and i hear them but im in my own world.I just started work a month ago,im not sure how long it will last.I just wish i was givin a break,i just feel so weak,and im so sick of being sick,Thanks 4 listening JENN

tina.r gave me a Hug
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12/02/2007 16:29:08

I just checked out your web pages, great source of info!
Thanks a lot for what you are doing for us!!!!!!!!!!!
Tina

Jenn56 gave me a Salute
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12/01/2007 20:24:26

I have to say it seems like u no your stuff when it comes to lymedisease im truly amazed,i want to ask u about lyme and the heart,i never had any problems with my heart in my life,but when i got sick my heart became my biggest problem at times i cant deal with it i keep thinking that this is gonna kill me.About 10 weeks ago i had to have a few ARRYTHMAIS removed,they also say that i have pvc,my heart was beating over 180 bts a min.There were one or two arrythmais that they could not get,so they had to put me back on heart pills(Metoprolol)i also take Co Q10 300mgs aday.And i aso get really bad vertigo,dizzyness,i feel like im gonna pass out im on (Meclizine)4 that,im not sure if the whole passing out thing is from my heart or the lyme or alittle of both.And do u no anything about the RIFE?If u could help me out that would be great,any advice u may have,o ya,i have over 40 symptoms of lyme but the pain in my chest,heart and breast hurt me most and have a hard time breathing and the black floaters and the blurred vision is insane,could u please help me sort this out THANKS A MILLION JENN

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My Support Groups
lymebytes is a member of the following Support Groups:

GroupMember Since
Lyme Disease Support Group01 December 2007
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My Forum Posts
Recent Forum Posts
DateSubjectCategoryHits
29 August 2008DR H IN CA ISN'T ALL HE'S CRACKED UP TO BE!General & Support27
26 July 2008Anyone Against Samento?Medicine & Treatments541
26 July 2008Talking Babesia Blues - Lyme Co-infectionGeneral & Support117
26 July 2008Anyone Against Samento?Medicine & Treatments541
26 July 2008so scared...is chronic lyme curable?General & Support205
26 July 2008NO POSTING OF DOCTORS NAMESGeneral & Support200
26 July 20082nd opinion/2nd test neg! Please help!Medicine & Treatments120
25 July 2008picc lineGeneral & Support42
02 December 2007Testing for LymeGeneral & Support326
02 December 2007Testing for LymeGeneral & Support326
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