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Rnaus2
Rnaus2
Hits 167
Online Status OFFLINE
Member Since 05/25/2008 22:45:31
Last Online 11/16/2008 16:36:19
Last Updated 11/09/2008 21:43:00
Rank New Member


My Ribbon
RibbonDateWhy I wear this ribbon
black_ribbon.gifBlack Ribbon 05/25/2008I wear it because there is no ribbon for Celiac Disease, so as of now, the black ribbon is a symbol of Celiac Disease Awareness...because I said so. :)
About Awareness Ribbons

General
Gender: Female
Website: www.myspace.com/rebeccanaus4
Birthdate: 08/05/1986
City: Honolulu
State: Hawaii
Occupation: Student and Server at The Cheesecake Factory
A little about me: Hi there. My name is Rebecca (Becky) and I am 22 years old. I currently live in Honolulu, Hawaii. I attend Hawai'i Pacific University where I am pursing a bachelor degree in environmental studies. I am a server at The Cheesecake Factory in Waikiki. Working at a restaurant like this is EXTREMELY DIFFICULT when you have Celiac! I have always been a health-nut. I always tried to eat a well-balanced diet (full of whole grains, fruits, veggies and minimal red meat), worked out a lot, took vitamins, got a lot of sleep, had a healthy social life. But something was wrong with me...I was getting sick every two weeks, without fail. If it wasn't a cold, it was the flu. If it wasn't the flu, it was some unexplained intestinal disorder. Or it was a sinus infection...at least once a month, I was sick, and it was getting out of control. Nobody could explain why I was constantly ill, especially because my diet was so well-rounded. My family and friends were getting worried about me. I am in the hospital about 4 times every winter because I am so sick so often. Last winter, I was in the ER for this bizarre, unexplained intestinal disorder that was causing me to become extremely dehydrated. The doctors couldn't even figure out what was wrong. On top of that, I was anemic, pale, moody, constantly tired, somewhat depressed and my nails were weak, brittle and peeling. I had a feeling I had some major vitamin deficiency, but what? One day, my younger sister (19 years old) was diagnosed with celiac disease. No one in my family had ever heard of it, and we didn't know how to approach it. However, the diagnosis explained her being underweight, her frequent, violent nose bleeds, moodiness, dizziness and anemia. Right away, fearing I had the same thing, I went in for a blood test. Sure enough, a week later, the test results came back positive for celiac disease. This past summer, I also chose to go in for a biopsy, just to confirm it. I was put under, and they took tissue samples from my stomach and intestinal track. And again, sure enough, the biopsy results came back positive too. After some thought and discussion with my family, it is becoming quite apparent that my father is the source of the disease. Both he and his brother have had violent, unexplained illnesses for several years. My dad was tested, and although he tested positive as a carrier of the disease, he does not suffer from it...gee, thanks dad. I have been on this new, tasteless gluten-free diet for only about 6 months now. Somtimes I still feel like I am in a sense of denial, and it's been so hard for me to accept that I'm not as healthy as I thought, and that I actually HAVE A DISEASE at 22 years old. Every morning, I wake up, and have to remind myself... "You have a disease, and can never eat bread again." Granola, whole-grain bread and Honey Bunches of Oats, pasta, pizza, Dos Equis Lager were among my favorite foods/drinks, and knowing I will never be able to eat them again just kills me. Eating doesn't seem so enjoyable anymore, it's just something I NEED to do to live. I will accept any recipes, advice, stories etc that anyone has. I'm open to anything. Seeing as how everything I accepted as normal, and took for granted for the last 22 years of my life has been turned upside down, I'm desperate for advice. Don't hesitate to contact me. The email is: rebeccanaus4@yahoo.com and my AIM is: SaveTheBread4 (Ironic!! See? I loved bread so much, even my sn is about bread!)Thanks!

Love, Becky
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Friends who hugged me:
acalicutie gave me a Hug
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05/29/2008 23:26:28

Yo, what it be like, Becky - right back atcha - thanks so much for the hug - this week has been particularly difficult - thanks for thinking of me. Karen :-)

pirouet gave me a Hug
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05/27/2008 12:25:47

Hi - the diagnosis is tough, I know. It'll take some time to accept that you have celiac but there's so much food (and better!) out there to eat. Over time you will miss the wheat foods you love now less and less. Look forward to chatting w/ you!

murraynz gave me a Hug
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05/26/2008 12:18:46

I had a waitress n Paddlewheeler restaurant in Laughlin Nevada tell me it is okay to have white bread instead of the wheat bread because it does not have wheat I wanted to ask her if she left school when she was 6 years old
Has any one else had silly waiter or waitress stories

murraynz gave me a Hug
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05/26/2008 12:15:44

Thius may be a repeat I heard that 97% of people in USA with celicac disease are unaware that they have it That is a huge percentage and a large group It shows the deceitfulnees of this masquerader By the way Please avoid these C D unaware restauarnts who often have wheat hidden in their food Sizzler Olive Garden and Applebees

acalicutie gave me a Hug
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05/26/2008 09:53:01

Hi Becky - nice to meet you - hang in there - I've changed my ribbon to black because of you! LOL - take care - acalicutie (Karen)

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My Support Groups
Rnaus2 is a member of the following Support Groups:

GroupMember Since
Celiac Disease Support Group25 May 2008
My Diary
Diary Description: Diagnosed with Celiac Disease on May 22nd, 2008. Gluten-free diet started on same date. This has not been easy so far...
Diary Statistics: Total entries: 4 Total comments: 2 Total combined hits: 218
– Sunday, November 09 2008 –
What gives??! Advice please!
Please give me some feedback on this post! I really need it!  Today I went to a farmer's market, and there was a bakery selling bread. They h...
1
22
– Friday, October 17 2008 –
Thanksgiving is just not going to be the same this year...
This year will be my first Thanksgiving with Celiac Disease. I'm  not looking forward to it. I keep thinking about all the foods I loved to e...
0
21
– Thursday, June 26 2008 –
Gluten Mishap!
Two days ago, I went out to lunch with a few friends. I ordered a salad that had gorgonzola cheese on it. I am aware that bleu cheese contains gluten....
0
71
– Sunday, May 25 2008 –
::Sigh::
I don't know what to make of this diagnosis. It's like my life has been turned upside down. I know it could be so much worse, but I still find...
1
104

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