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grandmasylvia"MDJ has been "a soft place to fall" for me as Dr Phil says. I have this very painful rare disease Dercum's Disease and take comfort in finding others here who share their knowledge and compassion. Many
members have helped me just by understanding my anguish and validating
my pain. We are working together to encourage research toward a cure.
" (grandmasylvia)

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twilight37
twilight37
Rank New Member
Online Status OFFLINE
Member Since 06/30/2012 01:47 PM
Last Online 07/03/2012 05:37 PM
A little about me: Hi! I am so glad to finally have some people to talk to that seem to understand what i am going through. i am 38yrs. old single mom with a sixteen yr. old daughter. I will get right to it. I am low income so the doctor i go to will not order certain necessary tests for MS. He has done cat scans and MRI's but only the basic tests. I have to whine and plead to get any kind of support. He says i have fibromyalgia/osteoarthritis due to hand/finger swelling and stiffness. I have horrible facial pain on one side, and if i talk to much (i work at a school so i am forever talking to the kids), and i also have tingling in toes, leg pain, neck pain, shoulders feel like boulders on them sometimes and back pain. I have muscle spasms as well. You name it i have it. I feel like i have lost function in my right hand and drop things and things fly out my hands. My doctor put me on celexa first, that worked on my pain for a month. i was on it a yr. before the pain got so severe , i called the doctor and screamed at him that he better do something about this pain, i cannot keep missing work and i cannot even raise my bed sheets without pain. He then put me on cymbalta. that just made me so drenched in sweat i had to leave work and change clothes. so after tons of whining and pleading they put me on lyrica and tramadol . I feel much better, but it does not help all the time. But for now, this is the only medicine i can cope with and make it through my work day. I feel like my own boyfriend doesnot really understand and he is much older than me and my mother who is 62 says to stop complaining, i am not even that "old" yet to have those pains. I feel like people think i am crazy and i really am miserable alot of the time.
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