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MDJunction to me

tomboykimi"What MD Junction means to me is a place where i can feel like im not alone. As someone with something as rare as hydrocephalus, it feels like im the only one in the world with it. When i came to MD, its like everyone has it. It doesnt feel like im alone. And that people need to hold up a sign to say what i have, because people know. And they understand. I can get questions answered from people who have been through it rather than from doctors or people who only can tell you from a physical standpoint. THat is what MD junction means to me." (tomboykimi)

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MoiraWolf
MoiraWolf
Rank Senior Member
Online Status OFFLINE
Member Since 02/18/2012 11:29 PM
Last Online 05/13/2013 01:10 PM
Gender: Female
Birthdate: 08/03/1964
City: Cheyenne
State: Wyoming
Occupation: disabled
A little about me: My name is Lea, but all my friends call me Mo, short for MoiraWolf, one of my first internet nicknames. I was raised on a farm in rural Arkansas and though my grandparents are gone, and I've moved away, my "home" is still the green hills of the Ouachita Mountains.

I was diagnosed with Fibro in February 2012, although I believe I've had Fibro my entire adult life, 25+ years. I got so tired of going to a doctor and being told it's a muscle spasm, take this pill for 10 days and you'll be fine. Or it's irritable bowel syndrome, or you have Seasonal Affective Disorder, or you have chronic fatigue syndrome, learn to live with it. I was so tired of partial diagnosis, and that no one ever looked at the "big picture."

Now, we've lost our house due to the economic downturn and me loosing my job because I could no longer pass a required physical. Hubby lost his job too, and the bank reposessed our house. We've moved cross country for him to find work, and as of now (the end of Feb 2012) we're currently living in a motel. We can pay rent, or deposits, but not both. I feel guilty a lot as he has to work and do the housework because even in one room, I don't feel like doing things most days. Most days I'm doing good to get out of the bed and sit and watch movies or TV and knit or spin.

Speaking of which, that's my new hobby. Spinning wool into yarn. To me it's so relaxing. I'm in pysical therapy now to loose my joints, which have gotten stiff cause I sit so much, and water therapy to try to limber me up and give me some more muscle strength without making me hurt so much. Althought, it wears me out and I usually take a 3 hour nap afterwards!

Naps, they are my friend. My sleep schedule is so screwed up. *sighs* Now I have the diagnosis, I have to try to learn how it affects me and how I can learn to live with it.
My Hugs
LinBC gave me a Hug
04/05/2013 04:08 PM
a HugI'm sorry you're struggling. You're in my thoughts and I would encourage a bit of meditation focusing on releasing the stress. I thank the universe every day that I have friends like you, those who know what I have and how hard it is to "swim upstream" a lot of the time. I'm here, I'm listening.

LinBC gave me a Hug
01/26/2013 11:14 PM
a Hugyou feel like you need a hug

KellyAnn gave me a Hug
01/22/2013 04:09 AM
a HugThank you all of my friends. I wanted to share the news that I am engaged. I have updates in my Diary. I am so thrilled and I want to share this with my MDJ family!!!

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My Diary
My place to vent!
I get frustrated, mostly at myself for not being able to do things I want to do, or feel I should do. Sometimes, I just have to vent. I tend to go on and on about a topic because to me, it's the best way to get it off my chest. I need a place to vent, cry, whine, feel sorry for myself (mostly because I have more of those days than "good" days) and whatnot. Read at your own risk!
TitleDateViewsComments
Denied again 11/06/2012  85 0
Anxiety kicking my ass 07/17/2012  256 0
Better day 07/07/2012  120 1
Raining 04/19/2012  142 2
Paying for it 04/02/2012  145 0
the hip 03/20/2012  172 0
Wool day 03/06/2012  161 0
Glad to have a place to vent 03/01/2012  182 0
Did too much 02/26/2012  162 0
Broncoscopy and apartment hunting 02/20/2012  208 2
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