kshepie gave me a Cheer Up 06/16/2012 06:49 AM

Welcome to the group - It is so difficult to learn how to manage your energy. Those levels change on a daily and sometimes hourly basis. I try to not overdue it. Today I'm really cleaning my bedroom so I will start my stripping the bed and getting a wash going, then I will sit or go on the computer for 15 minutes. I actually set a timer-then go do some more for maybe a half hour - rest - then continue until the job is done. It takes me 4 to 5 times longer to do this kind of a job then it did before. It continues to be frustrating but I just have to do it. You will find new ways to do things and most importantly try and keep your spirits up.

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My Diagnosis....
For me the battle began in my 20's during pregnancy with some ill side effects. Then told I had an underlying disease that would not effect me until later in life. I pushed it aside never remembering those days at the neurologists. Then as the 40's approached I began feeling weekness like a stroke on my left side and falling. Not sure my legs were going to do what I wanted them to do. After several months of testing coming up with the diagnosis of ALS. They sent me to a wonderful doc who looked into my eyes and told me things were not so bad as my family doctor thought. I then began to cry as I knew with God's help I could handle anything. I have been on mestinon for 9 years and had a thyectomy @ 7 years ago. Which helped me lessen the dosage of Mestinon. Then the 50's approached and I started with double even triple vision. Treated with predinose corrected the vision within 10 days but getting off the predinose has been difficult. Now 1 1/2 years I am backing off the predinose but adding the cellcept to try to free me from the predinose. So I am leaning on the Lord for healing and strength.

I started discussions in the following health topics:
Cellcept vs Predinsone.

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