suziqueues
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 03/05/2007 11:29 AM |
| Last Online | 02/03/2012 08:36 AM |
| Gender: | Female |
| Birthdate: | 12/18/2009 |
| City: | Spicewood |
| State: | Texas |
| Occupation: | Project Manager |
| A little about me: | I am a mother of one beautiful, vivacious almost 3 year old girl. I have triumphed over migraines since childhood (although some so-called "experts" have suggested that they know when migraines ACTUALLY begin and I couldn't "possibly have had [them] that early"). I cannot stand doctors and people in general who operate under the pretense that they know everything that there is to know about ANY condition as, specifically in the case of migraine headaches, there is not a conclusive medical finding for causation at this time... but I digress. My migraines were under control until I became pregnant & since then I have struggled to stay migraine-free (and have gone through multiple doctors and treatment plans - even holistic - in my quest to do so). My father, mother, and sister all suffer from dibilitating migraine headaches (my sister now even has blindness associated with hers), so I know quite a bit about the condition, and I really know how it feels to be treated with utter distain from those who cannot possibly understand the pain you are in (and often are too busy to care but certainly have plenty of time to judge from the sidelines). I have particular expertise in this area when it comes to family members, extended or otherwise, who develop their own understanding of the situation you are facing through their own "keen" observations once a quarter and conversations amongst themselves without regard to medical expertise or actual discussions with the parties involved - particularly when certain medications are warranted. :) Know your rights, especially when someone makes a veiled threat to remove children from your custody when you have never done anything other than follow a physician's order and have NEVER been remotely neglectful, even to your own detriment. Think it can't happen to you? Neither did I. I welcome comments and open conversation for those who just need to heal (like I do). It's really hard to be in pain, even harder when you have no support from those who are supposed to be closest to you. Unfortunately, it happens more than any of us want to admit, as it seems to be a condition of humanity to believe the absolute worst about a person rather than trying to walk a mile (or a block) in his/her shoes. I believe that the pain related to the mis-treatment of us by others is actually much more excruciating than the migraine episodes as migraines do eventually cease. I'd love to hear how others have dealt with disdain from "loved ones." It has torn my family apart - literally. Oh, I also have PCOS and am bipolar. I actually requested that the migraine support group be created here on MDJunction because there was nothing out there in the vastness of the WWW. I know that I need support from others going through something similar, so I cannot possibly be alone in that desire. Love to all & hope to hear from you soon! ;) |
My Awareness Ribbons
| "I have suffered from severe migraine headaches for most of my adult life. I want to see more exploration in this field, especially where women and pregnancy are concerned." | |
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 | Wishing you a healthy 2012 with lots of people, helping people! |
 | Suzi, I'll say a Rosary for you 2night, my Dear... Mateo |
| I am 37 years old and have suffered from cluster migraines since I was 14, but chronically for over two decades. For a good portion of those two decades I have dealt with chronic pain by creating a facade of well-being to convince myself and others I could cope while at the same time taking out everything from my life that was not absolutely necessary to my survival. I gave up my academic studies and my career of choice, convincing myself less pain would compensate for less passion. Perhaps it did, but unfortunately, treatment for chronic cluster migraines is never a long term solution. It involves trying out numerous medications that never seem to last very long (if they work at all) and juggling medications to help with active cluster migraines so that I do not hit a rebound headache. For a long time I existed like this, and I survived. One thing no one says is that chronic cluster migraines kill, but they do. My mother died from a brain aneurysm in 2003 after a 10 day POUNDER. You may not have a stroke, or seizure or heart attack, but with enough years of daily cluster migraines and cluster phases you will become quite indifferent to your own survival - if not actively trying to end it. No one mentions that we have a far greater chance of killing ourselves rather than having a stroke. Or that we would adamantly wish for a timely stroke just so we do not have to endure one more day. I got to this point myself after taking numerous short term leaves of absence from work, which did little except make my work situation far worse and increase my level of guilt for not being able to sustain full-time work. Unfortunately, pain is not sufficient reason to call in sick or to go on long term disability, or at least that is how we are treated. Finally I decided calling in dead ought to do it. Someone might think that this is terrifying to contemplate such a thing. What was far more terrifying was surviving the attempt and realizing that absolutely nothing changes. It was like I, as the patient with uncontrolled pain, had absolutely no vote in my treatment or my ability to work. How I was treated in the workplace (which ranged from threats of demotion to being fired if I called in sick to being forced to come in with a full blown CLUSTER migraine), that treatment frustrates me and makes me furious. Yet I can do nothing about it. Therefore upon my return to work, I have to tow the party line. What enrages me though is the complete disinterest in the ER or with my doctor, such that I was simply expected to deal with such continual pain without any assistance or consideration for the strong mental and emotional price for enduring it. I fear if chronic cluster migraine patients are at such a risk for suicide we might want to reconsider how we are treating them because obviously something is failing each and every one of us. It is not about 'coping' with pain, it is about pain management and our very survival. I do not work anymore, I am a disabled VETERAN on pain management for my Clusters. I also have Parkinson's Disease and Bipolar Mania. In fact I am in a Cluster Phase right now, going on a 4 day POUNDER... suziqueues, I would love to chat sometime and compare WarStories. Much Love, Mateo |
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My Diary
suziyanta
The days of my life with daily recurring headache and frequent migraines, PCOS, and manic depression; dealing with life, family, and utter hopelessness (at times). Looking for courage through support and sharing with others.
The days of my life with daily recurring headache and frequent migraines, PCOS, and manic depression; dealing with life, family, and utter hopelessness (at times). Looking for courage through support and sharing with others.
| Title | Date | Views | Comments |
| 04SEP2009: Current Prescriptions & OTC | 09/04/2009 | 383 | 0 |
| 19AUG2009 | 08/20/2009 | 402 | 0 |
| 18AUG2009 | 08/19/2009 | 544 | 0 |
| Rediagnosed as bipolar??? | 07/20/2009 | 517 | 0 |
| Missing in Action | 07/20/2009 | 471 | 0 |
| Why is it so hard for people who "love" us to feel compassion - or just treat us like human beings? | 06/16/2009 | 456 | 0 |
| Kat5150 gave me the hug that brought me back to MDJunction. | 06/14/2009 | 472 | 2 |
My Health Topics Contributions
I started discussions in the following health topics:
marital problems.
marital problems.
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Migraines, PCOS, and Bipolar... Oh, My!!!
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My Recent Posts
| Wellness and Chiropractic Care | 09/22/2009 | ||
| pre-op questions | 09/22/2009 | ||
| Nicotine and Migraines..... | 09/15/2009 | ||
| Neuro appt help..what Neuro sa... | 09/04/2009 | ||
| HELP!!!!! please!!!!! | 08/27/2009 | ||
| surgery for migraines | 08/25/2009 | ||
| Cronis Daily Migraines | 08/23/2009 | ||
| Migraine & other related Disor... | 08/21/2009 | ||
| Hi, I'm new here | 08/21/2009 | ||
| surgery for migraines | 08/20/2009 | ||
| Migraine & other related Disor... | 08/20/2009 | ||
| Migraine & other related Disor... | 08/19/2009 | ||
| What Is Important to You? | 08/11/2009 | ||
| Tired of the pain | 07/30/2009 | ||
| Tired of the pain | 07/29/2009 | ||
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