|Member Since||12/17/2011 10:22 AM|
|Last Online||10/07/2013 08:29 AM|
|A little about me:||In 2009, at the age of 51, I started having problems chewing. In the 8 months it took to diagnose as MG, my only symptom was weakness in the jaw. Then, while on the standard 4x60mg of mestinon, my symptoms became worse to include a droopy eye and difficulty talking. One morning I woke up and couldn't swallow my meds. 10 days and 5 IVIG treatments later, I was released from the University of Washington Hospital.
Since Sept. 2010, I have gone from 80mg/day of prednisone to none and even went off mestinon. Then in early 2012 I relapsed a bit and went back on mestinon/prednisone and added Imuran. My symptoms have been well controlled with no jaw weakness and are limited to general fatigue and vision difficulty.
I count myself lucky everyday that I am beating MG.
My wife and I participate in the Northwest Chapter of the MGFA Support Group.
I'm not much of a blogger but I will try to check this site often and help/advise if I can.
|Group hug from Disney World :)
|Happy November! I wanted to say Welcome to our new members and Thank you to our "experienced" members. It is ALL of you togehther that make this such a warm and welcoming place to visit.
If you have a good neuro please share them in our forum "name and location of good neuros". If there is something on your mind you would like to see covered, please start a discussion or you can always PM me.
I hope everyone has a wonderful month!
|Happy Halloween :)
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My Recent Posts
|Hospital, Very low IGg, waitin...||02/11/2013|
|CT Scan of Thymus, Reaction to...||10/13/2012|
|Seattle Area MG Support Group ...||10/06/2012|
|carple tunnle and MG||10/02/2012|
|Fatigue, Sleep and MG||09/16/2012|
|Origins of Myasthenia Gravis? ...||09/02/2012|
|Origins of Myasthenia Gravis? ...||08/31/2012|
|Waiting for a proper diagnosis||06/19/2012|
|Here Are Links to MG Resources||06/09/2012|
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