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MBbeatsMG
MBbeatsMG
Rank New Member
Online Status OFFLINE
Member Since 12/17/2011 10:22 AM
Last Online 10/07/2013 08:29 AM
A little about me: In 2009, at the age of 51, I started having problems chewing. In the 8 months it took to diagnose as MG, my only symptom was weakness in the jaw. Then, while on the standard 4x60mg of mestinon, my symptoms became worse to include a droopy eye and difficulty talking. One morning I woke up and couldn't swallow my meds. 10 days and 5 IVIG treatments later, I was released from the University of Washington Hospital.
Since Sept. 2010, I have gone from 80mg/day of prednisone to none and even went off mestinon. Then in early 2012 I relapsed a bit and went back on mestinon/prednisone and added Imuran. My symptoms have been well controlled with no jaw weakness and are limited to general fatigue and vision difficulty.
I count myself lucky everyday that I am beating MG.
My wife and I participate in the Northwest Chapter of the MGFA Support Group.
I'm not much of a blogger but I will try to check this site often and help/advise if I can.
My Awareness Ribbons
  "I am winning my battle with Myasthenia Gravis"
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My Hugs
mom2mba gave me a Hug
03/03/2014 11:42 AM
a HugHey everyone! They say spring is on the way. I'll believe it when I see it. I notice there has been little activity for the past few days. Is there anything you would like to see covered? Is there anything you need me to do that I'm not doing? Please let me know and I will try to do what is needed. I know that everyone can't be here every day but if you haven't posted in a while please let us know how you are doing.
Thank you all for everything you do here. It makes a difference.
Hugs to all,
Cyndi

mom2mba gave me a Hug
02/13/2014 11:53 AM
a HugI just want to wish everyone a Happy Valentines Day tomorrow. I hope your day is relaxing and peaceful.
(I sent this today cause I am not sure if I will be online tomorrow. My parents and one of my grandsons are coming up.)

Magicpinkdrink gave me a Hug
01/28/2014 06:31 PM
a HugGroup hug because...well...we all deserve a good hug once in a while :) Hope everyone is doing well :)

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