|Member Since||12/14/2011 05:07 PM|
|Last Online||02/01/2012 02:08 AM|
|Country:||United States of America|
|Occupation:||Department Head Data/Constituient Management|
|Blog:||Mia's Sunny Side Up|
|A little about me:||I'm a Wife, Mother to 4, Step mother to 3 & a Gammy to the "Worlds cutest grandson. I work full time as a Department head over Data/Constituient management. My Husband sits on the Pastoral staff at our church. So just like you I run 100 miles an hour & have little time, Little patience with my health issues, which keep me from living life to it's fullest :( In 1990 I found myself in emergency room thinking I was dying while trying to pass kidney stones. A IVP showed I had congenital medullary sponge kidney's, I was told I would battle stones for the rest of my life!( Between you & I.. Kidney Stones are straight from HELL! I would give birth to a baby with no pain medication any day in exchange of having to pass kidney stones) In September 2009 I was diagnosed with a Congential
Pulmonary AVM/Fistula. I had embolization coilization surgery. My surgeon placed 4 metal coils into my left lung pulmonary artery also utilized glue
to shut down AVM. In 2010 a Upper GI Scope
found 2 more AVM's in my Duodeum (small intestines) Im having to seek treatment outside Ok because there just doesnt seem to be any Dr's specializing or knowledgable in AVM care. Im currently being checked for more AVM's. Recently I'm suffering from headaches, neck, leg pain and suddenly dealing with Crazy BP jumping sky high sporadically then dropping to normal. I'm also nauseated 24 hours a day&, exhausted & dealing with a crazy reflux cough. it's really difficult when suddenly you just can't do everything you were once able because of pain & just flat worn down.
So Please be my friend ;) I'm open to any friends
that can offer any advice, encouragement or direction medically.
My Awareness Ribbons
"Suicide Prevention, My Father committed suicide at 57. Suicide has left a big void within my family. 8 grandsons & 3 granddaughters will never know their grandfather."
"Everyone needs to take care of their HEART! Without a HEART we are cold & lifeless!"
""For My sister who is battling Lupus""
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|Hope every one is having a happy and stone free Friday!
|I am sorry I have been offline. My spleen ruptured and I have spent The. Last 45 days in the hospital. I want to welcome all the newbies to Kidney support.
|I have been away a bit, writing and dealing with a big crisis as my beloved son ran away from home. He is ok, and settled in a nice house and still at school. I am slowly getting myself back. I hope you are well and I did get the hugs and wishes, it was lovely and I felt your support, thanks you. How are you going?
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