|Member Since||11/19/2011 02:55 PM|
|Last Online||05/20/2013 09:45 AM|
|A little about me:||Dignosed Oct. 2011 with Complex Regional Pain Syndrome. Only good thing is at least now I know what to call it.
July 2011 I broke my left foot [4 bones]by dropping something heavy on it. Once the Dr. had X-rays showing all had healed he said the pain was all in my head. The pain and swelling continues as if it was the 2nd week. When I returned to my family MD he sent me to a different Orthopaetic who dignosed me on the first visit.
Since then I have gone to a physical theropist and had sympathic pain blocks in my spine.
I joined this forum to learn and find others who suffer with pain when there should be none.
My Awareness Ribbons
"To show those who suffer that I care and will help fight for a cure to end this."
"My heart bleeds for them."
"My heart and money goes out for these families."
"Wear this in support of family members who are suffering even now."
"Had 3 strokes so I wear this to encourage others who find themselves or family members hit by strokes stealing parts of them away."
"O, how we all suffer, I wear this purple for us all. Praying for Gods Grace to be poured out on us."
"To show my Grandson that he is Loved."
"Wearing this for all my high school friends who came back hurting in more ways than one AND for all those friends who did not get to come back home with us."
"Wearing this to encourage and let them know I care."
"Wearing this for the friends I know who suffer through so much. ALSO in support of transplant donors."
|Add as Friend|
|Give a Hug|
|Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
that this forum is a positive experience for all members: a place you can find friendship, learn about
condition, and find
​a safe ​
space to express your experiences
You can read about our new, simplified group rules here:
and read about
​each of ​
our goals for the group in our leadership profiles here:
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie
|Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group.
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
|HI... Everyone... I hope you have seen the changes that have occurred to the group. This group has been changed to a "Caregivers support group" I hope that this will not effect anyone in a bad way, as this is to give a place for those that are trying to help and care for us to come for help... So please if you are not already.. join the "Reflex Sympathetic Dystrophy Support Group. here at MDJ. http://www.mdjunction.com/reflex-sympathetic-dystrophy
As this is the place for those that have RSD to go for help and support.
Please tell you family and friends and those that are trying to help care for you to join this group and hopefully they will learn more about what is going on with you, and how to best help you....
My Health Topics Contributions
My Support Groups
My Recent Posts
|Need a doctor in Tennessee who...||02/16/2012|
|Leaders, can u add a search en...||01/25/2012|
|New RX for Morphine & Elavil||01/25/2012|
|Leaders, can u add a search en...||01/25/2012|
|Has anyone tried Suntan Beds f...||01/25/2012|
|Has anyone tried Suntan Beds f...||01/11/2012|
|Intro - trigger terms present||01/11/2012|
|Are Mornings hard for anyone?||01/06/2012|
|My RSD pain and nobody believe...||01/02/2012|
|Winter is harder||01/01/2012|
|Christmas, How with the pain||12/29/2011|
|Winter is harder||12/29/2011|
|Just spent 5 days in the hospi...||12/29/2011|
|Christmas, How with the pain||12/08/2011|
No articles published