|Member Since||10/19/2011 12:34 PM|
|Last Online||02/29/2012 07:20 AM|
|A little about me:||Born with Klippel feil syndrome. Have no probs until i collaspsed at work on a night shift early feb this year. Ever since have had head and neck pain, the pain is worse than i gave birth to my two sons! Still having dizziness at times and feels worse than before. Doctor s saying not related to klippel feil but IM not convinced! Been ok for thirty years no pain at all. Drive a car, been a nurse and had two kids. Noe being reffered to addenbrooks in cambridge but had to practically beg to get asecond opinion. Any body out there that can relate to this or offer any ideas would be apprecited thanks for reading.|
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"my nana died of breast cancer. She was my support, my love, my inspiration to live life to the full.Though last in my book never last in my thoughts.To the bravest women i ever met xxxxxxxx"
"my son is 7 and is on the autisic spectrum . He faces lots of challenges but copes so well and is a inspiration and we are so proud of him and how he progresses through life."
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|Big group hug to all of our KFS family! Happy Rare Disease Day!
|I may be a day late, but circumstances are rapidly changing. I wanted to wish you all a very Merry Christmas, and a Happy New Year! This group means so much to me, and I thank you all for being part of it!
|Wishing you a healthy 2012 with lots of people, helping people!
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