jkryan
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| Rank | New Member |
| Online Status | OFFLINE |
| Member Since | 10/11/2011 04:25 AM |
| Last Online | 06/26/2012 07:04 AM |
| Gender: | Female |
| Birthdate: | 05/11/1963 |
| City: | Chicago |
| State: | Illinois |
| Country: | United States of America |
| Occupation: | Computer specialist, writer, fimmaker |
| Website: | http://www.facebook.com/RareHeadacheDisordersSupportGroup |
| Blog: | http://www.facebook.com/RareHeadacheDisordersSupportGroup |
| A little about me: | I am 48 years old and have had Trigeminal Autonomic Cephalgia headaches, specifically CPH for the past 11 years and 6 months. I also have trigeminal neuralgia and fibromyalgia. Also, something is up with my pituitary gland. My brain seems wired to keep me in agony. NO medication has worked for long, not even indomethacin. I have had a deep brain stimulator put into my hypothalamus and it worked fabulously for over two years, but now something has gone awry so I have a lot of pain now that I am trying to get under control through pain meds. I am NOT ready to give up on the neurostimulator though! I am going to get a second opinion as soon as possible. Other than that, I am the proud mom of a young lady that has Down Syndrome and she is an angel on earth. I enjoy reading, writing,photography, filmmaking and am a complete computer geek! I have filmed and edited hours of interviews with headache sufferers but have had to put the project aside because of the economy and the return of the headache pain. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Courage is not the absence of fear, but rather the judgement that something else is more important than fear. ~Ambrose Redmoon |
My Awareness Ribbons
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"I have CPH headaches, which affect the trigeminal nerve on the right side of my head and neck." |
"I have fibromyalgia and also chronic pain from CPH headaches." |
"My daughter has Down Syndrome. She is 25 now and a true angel on earth - a very special young woman!" |
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| Awareness Ribbons | ||||
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My Hugs
 | Happy month of spring, my loverly bunch of coconuts! If you have sunshine, dance....If you have snow or rain, do a sun dance. :D |
| Hi my dear peanut gallery! It's already February, can you believe it? Month of hearts and flowers and hope you all have an abundance of those in your lives. You have my heart for sure. <3 ummm... about the flowers....lol have to use your imaginations for those. :) |
| Merry Christmas to you all, my friends. For those who don't observe Christmas, Happy Holidays to you! Wishing you all the best of times and a pain free, (ok, low pain) low stress week. |
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I started discussions in the following health topics:
CPH.
CPH.
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My Recent Posts
| Flu Shot Flare Up... | 10/23/2011 | ||
| Help me!!! | 10/14/2011 | ||
| Anyone have a neurostimulator? | 10/14/2011 | ||
| Flu shot reaction? | 10/13/2011 | ||
| Help! Need a doctor in Western... | 10/12/2011 | ||
| New to group - hello everyone | 10/12/2011 | ||
| New to group - hello everyone | 10/11/2011 | ||
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