|Member Since||08/17/2011 12:54 PM|
|Last Online||07/04/2012 10:47 AM|
|Country:||United States of America|
|A little about me:||iam new so forgive me but here is alittle about me i have a great family i live in michigan i still work but if things keep going the way they are i dont know for how long iam trying to keep my chin up but its hard my husband had a bad car accident not to long ago my grandbaby which lives with me as do her parents.my grandbaby has alot of medical problems from cleft pallet to perrie robins to what we just found out is Von Willebrand she is only 10 mo old and have really been living in detriot childrens hospital this past 10 mo.she is great always smiles.but to get on with me i know i have fms and possibley ra but all my blood test came back normal today my dr thinks iam making this up well i dont have health ins so its very diffacult to pay but iam going to my mamas dr in the morning she has gone to him for about 20 yrs this is my last hope iam so sick and hurt everywhere this sucks soooooooo much sorry to be a downer|
|Dear Members of the RSD Support Group,
This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD.
Our new leadership team has developed a Mission Statement we would like to share with you:
"To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand."
that this forum is a positive experience for all members: a place you can find friendship, learn about
condition, and find
​a safe ​
space to express your experiences
You can read about our new, simplified group rules here:
and read about
​each of ​
our goals for the group in our leadership profiles here:
We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you!
With Love, Peace, and Aloha,
Howard, Jenny and Julie
|Happy May 1st. I hope that you have a beautiful day and this is a good month for you. NEVER give up and take life one moment at a time. :)
|Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group.
I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare?
I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience.
I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family.
I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering.
I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation.
Thank you for this opportunity to be of service,
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