salijackt
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 07/23/2011 12:40 PM |
| Last Online | 04/21/2012 06:21 PM |
| Gender: | Female |
| State: | Ohio |
| Occupation: | Student |
| Website: | http://www.crpsresearch.com/ |
| Blog: | http://painphoenix.blogspot.com/ |
| A little about me: | I have multiple diagnoses, but I refuse to let them keep me down! I am a fighter and am going to school to study Neuroscience, with a particular focus on chronic pain/CRPS as well as it's correlation with mental illness like depression and anxiety. |
My Awareness Ribbons
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"I support finding a cure for CRPS/RSD!" |
"Mental Illness" |
"For friends with Fibro, Chiari, and who have suffered abuse" |
"PCOS" |
"Suicide Prevention" |
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"Closest thing to the zebra striped ribbon for Ehler's Danlos." |
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| Awareness Ribbons | ||||
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My Hugs
![]() | Dear Members of the RSD Support Group, This hug comes from all of the new group leaders at the RSD Support Forum. We are sending you this to let you know that we have renewed our commitment to provide a safe and comfortable place for you, our members, to receive the love and support that is so needed when suffering from CRPS/RSD. Our new leadership team has developed a Mission Statement we would like to share with you: "To provide a safe and enjoyable environment for group members; encourage participation; and guide members to follow rules and terms of the site with a gentle hand." ​We see our main​ job ​as ​ ensur ​ing that this forum is a positive experience for all members: a place you can find friendship, learn about ​our condition, and find ​a safe ​ space to express your experiences ​and feelings​ . You can read about our new, simplified group rules here: http://www.mdjunction.com/forums/reflex-sympathetic-dystrophy-discussions/general-support/10635134-welcome-message-and-group-rules-for-the-rsd-support-group, and read about ​each of ​ our goals for the group in our leadership profiles here: http://www.mdjunction.com/reflex-sympathetic-dystrophy/group-leaders We hope that you will come on by for a visit, read some posts, write some posts, and make yourself at home with us. We are here to serve you! With Love, Peace, and Aloha, Howard, Jenny and Julie |
![]() | I am sorry I have been offline. My spleen ruptured and I have spent The. Last 45 days in the hospital. I want to welcome all the newbies to Kidney support. |
![]() | Dear Friends, I am writing to let you know that I have volunteered to co-lead the RSD Support Group. I feel very strongly that this syndrome is under-funded for research, that many doctors remain unaware of the symptoms of this condition (the average patient sees 5 professional medical providers before they are diagnosed), and also that the general public for the most part has never heard of this condition which afflicts 50,000 new patients every year in the USA alone. How many of you have tried to tell a friend of family member about your condition, and been met with a blank stare? I hope to make a positive contribution to this site through providing information in posts and continuing to expand our Resources section. I pledge to be here for you as a friendly ear, so that you know that you are not alone in your experience. I would like to see this group thrive as a welcoming community, where we can explore the ups and downs of this condition in a safe environment. We can make a difference in our own lives and in the lives of other CRPS/RSD patients by being better informed about the syndrome, and by sharing that information with our own community of doctors, friends and family. I am particularly interested in alternative and complimentary tools such as those used by Rev and offered at many pain management clinics ~ such as meditation, relaxation techniques, and volunteering to help others. There are things that WE can do to help ourselves reduce our own suffering. I will need your patience and a little coaching along the way as I am new to being a forum leader. I will sincerely appreciate any feedback from my co-leader Craig and from any and all members. If you have any suggestions or ideas, please feel free to contact me because this is OUR group, and OUR community, created and sustained by OUR participation. Thank you for this opportunity to be of service, Mahalo, Jenny |
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My Support Groups
Anemia Support Group
Bipolar Type II Support Group
Chronic Pain Support Group
Dealing with RSD & IBS Support Group
Depression & Chronic Pain Support Group
Ehlers-Danlos Syndrome Support Group
Hemorrhoids Support Group
Hypothyroidism Support Group
Insulin Resistance Support Group
Irritable Bowel Syndrome Support Group
Kidney Stones Support Group
Lactose Intolerance Support Group
Migraine Headaches Support Group
Parents of Bipolar Children Support Group
Polycystic Ovarian Syndrome Support Group
Reflex Sympathetic Dystrophy Support Group
RSD Caregivers and Supporters Group
Sensory Processing Disorder Support Group
Service Dogs Support Group
TMJ Support Group
Bipolar Type II Support Group
Chronic Pain Support Group
Dealing with RSD & IBS Support Group
Depression & Chronic Pain Support Group
Ehlers-Danlos Syndrome Support Group
Hemorrhoids Support Group
Hypothyroidism Support Group
Insulin Resistance Support Group
Irritable Bowel Syndrome Support Group
Kidney Stones Support Group
Lactose Intolerance Support Group
Migraine Headaches Support Group
Parents of Bipolar Children Support Group
Polycystic Ovarian Syndrome Support Group
Reflex Sympathetic Dystrophy Support Group
RSD Caregivers and Supporters Group
Sensory Processing Disorder Support Group
Service Dogs Support Group
TMJ Support Group

My Recent Posts
| To Go to the Doctor or not? | 11/26/2011 | ||
| To Go to the Doctor or not? | 11/14/2011 | ||
| To Go to the Doctor or not? | 11/12/2011 | ||
| The Best Psychiatrist | 08/18/2011 | ||
| Stellate Ganglion Nerve Block ... | 08/07/2011 | ||
| Stellate Ganglion Nerve Block ... | 08/07/2011 | ||
| Hello All! | 08/04/2011 | ||
| Our 30 yr. old daughter..could... | 07/27/2011 | ||
| Kinda Like EDS...But Not? | 07/27/2011 | ||
| hard time | 07/27/2011 | ||
| Hello All! | 07/26/2011 | ||
| Topamax | 07/26/2011 | ||
| CRPS | 07/26/2011 | ||
| Lifetime Member of the Hemorrh... | 07/26/2011 | ||
| Hello All! | 07/26/2011 | ||
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