|Member Since||07/20/2011 01:11 PM|
|Last Online||05/21/2013 01:18 PM|
|A little about me:||I have been suffering a "lonesome journey" with lyme since about 1998. Family just does not understand that how we look on the outside is opposite to how we feel on the inside so support is either minimal or forgotten.
When a friend you dont see in a week says "how ya doing" or "are you feeling any better" with a big smile, I know that this "friend" is clueless to what I have said to him/her about Lyme, and they are not at all aware of this disease - or they have based their question on how I look when they see me. (Hope that makes sense). Most of us "look" normal, but ask me about my insides! Ask to see my medical file.
I was finally diagnosed after years of docs and pills, but still, cannot get the help I need because the PICC line is outside of my reach, (like so many others) financially.
I don't know how long I have had this disease because I was exposed to hundreds of doggies as a youth. I grew up in a kennel atmosphere. No, not with the dogs, but our house was near the dog cages. We had between 500-800 dogs on site.
I remember pulling ticks off me all the time. I later went on to work as a vet tech, later later, worked for no kill shelter. The point being? I had ticks up the gazoo throughout my lifetime! I had bullseyes and sometimes No bullseyes and thats no bull.
Today, I live in an area where there is nothing within driving distance for aggressive treatment so thats a bummer too! I live near a "self boasting" hospital that claims to have one of the top infectious disease doctors. But he refused to even see me after my GP sent my 4" file to him. He said I did not meet the guidelines he embraced from the CDC.
My family does not know what to do with me. I basically have no support, so be thankful if you do!! I hope to make new friends through this website. Those who feel the pain I feel, especially those who suffer with the nightmare of "brain fog".
I will get through this because of my faith in God's gospel. I am a pastor and I believe God is sovereign in all of this.
My prayer is for justice; that the IDSA will be forced to re-write the protocols and extend the treatment for for this disease until people are better. What a shame that someone in the insurance business making 500,000 may lose some profits so many can get treatment.
I just want to get better and go back to work!
|Just sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone...
|Sending hugs and prayers to you, my fellow Lyme Warriors.... Let us stand strong and united this weekend for Worldwide Lyme Disease Protest day... Let us speak the truth... the ugly, shocking, scary, unbelievable truth... Let us be heard... and Let us be healed. *hugs and prayers* purple
|Hugs to all my fellow Lyme Warriors and Lyme Supporters :)~~~~~~~
Until the site problems are cleared up. ~~~~~Please use the GREEN REPLY button instead of the quick reply box when responding to a post.~~~~~
hugs and blessings, purple
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