PKD2010
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| Rank | New Member |
| Online Status | OFFLINE |
| Member Since | 06/14/2011 02:14 AM |
| Last Online | 08/17/2011 12:52 PM |
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"I wear this ribbon for my cousin who suffered from Neurofibromatosis her whole life after being diagnosed at a very young age. She passed away in 2009 and I will never forget her smile :)" |
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My Hugs
 | Wishing you a healthy 2012 with lots of people, helping people! |
 | Hi! Thank you for sharing your story & your advice. It's very helpful. Wow @ you having to learn to walk all over again. Yikes! But I'm glad to hear that you've survived this. When I get the help I need, I'm sure I'll find out if there's pressure on my lungs and/or heart. To be honest, I'm assuming it is already. I can't breathe @ many times. If I stand up too long (like working)... Once I sit down, It is HARD to stand up straight & when/if I force myself to stand up... I have to put my hands on my hips to hold my torso up so that I don't lean forward. And... While doing this, I notice myself automatically holding my breath, because it's difficult to breathe. |
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| PKD and American Indian | 06/14/2011 | ||
| hi. | 06/14/2011 | ||
| I have PKD and started dialysi... | 06/14/2011 | ||
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