belinda1217
| Website: | http://www.belindafreeepilepsyinfoforall.freehosting.net |
| A little about me: | I've had epilepsy 49 years till they found out what was wrong with me. Had brain surgery in 1982 in Montreal Canada and I have the VNS.I can't get it removed. Meds didn't control me,and I'm med resistant to a lot of meds and allergic to about 5. I take Tegretol 900MG aday. Clonazepam 1/2Mmg a day Topamax 400MG a day. I've taken 21 different AEDs the latest being vimpat, and it seems I'm allergic to it.I started back itching again like crazy. I tried finding out nothing had changed, and that I was allergic to vimpat also. On February 9th 2009 I had a Lumbar Fusion and June23rd 2011 I ended up getting a heart pacemaker which is helping to control my seizures really good. I learned the reason why meds didn't help me is because I have A FIB an d they can cause seizures. I had pacemaker put in June2011. I only had like hand full after it was put in and small ones. I had 2 seizures in January 2013. |
My Awareness Ribbons
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"I've had epilepsy since I was 2 yrs old and know others with epilepsy.I also have asthma, allergies and heart problems.I just went another month without a seizure.After going 4 1/2 month seizure free longest I'd gone since 1991. I went another 1 1/2 months sz free after that another 1 month." |
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My Hugs
![]() | Continue to hang in there Belinda. You are very special..... |
![]() | Just sending out a quick hug to everyone. I know the struggle can really wear you down, but there is always a light at the end of the tunnel...you can and will get better...should you fall...we will help you dust yourself off and pick yourself up...You are each and everyone of you worth it...Lots of love to everyone... |
![]() | tipical, it just starts to get warm, turn the heating off then ice age starts again? :P joys of uk hope you have a good weekend and alls good for you |
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My Health Topics Contributions
I started discussions in the following health topics:
chestpains, heart pacemaker, painful shoulder, rape survivor, Seizures.
chestpains, heart pacemaker, painful shoulder, rape survivor, Seizures.
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My Support Groups
Accidents Support Group
Addiction Recovery Support Group
Alzheimer's Disease Support Group
Arthritis Support Group
Asthma Support Group
Bipolar Support Group
Brain Injury Support Group
Chronic-Intractable Pain Support Group
COPD Support Group
Dementia Support Group
Drug Addiction Support Group
Dual Diagnosis Support Group
Dysfunctional Families Support Group
Emotional Abuse Support Group
Environmental Allergies Support Group
Epilepsy Support Group
Fatty Liver Disease Support Group
Lyme Disease Support Group
Menopause Support Group
New Daily Persistent Headache
Pacemaker and Heart Disease Support Group
Parents of Bipolar Children Support Group
Rape Support Group
Seizures Support Group
Self Esteem & Positive Thinking Support Group
Sexual Abuse Support Group
Undiagnosed Symptoms Support Group
Urinary Incontinence Support Group
Addiction Recovery Support Group
Alzheimer's Disease Support Group
Arthritis Support Group
Asthma Support Group
Bipolar Support Group
Brain Injury Support Group
Chronic-Intractable Pain Support Group
COPD Support Group
Dementia Support Group
Drug Addiction Support Group
Dual Diagnosis Support Group
Dysfunctional Families Support Group
Emotional Abuse Support Group
Environmental Allergies Support Group
Epilepsy Support Group
Fatty Liver Disease Support Group
Lyme Disease Support Group
Menopause Support Group
New Daily Persistent Headache
Pacemaker and Heart Disease Support Group
Parents of Bipolar Children Support Group
Rape Support Group
Seizures Support Group
Self Esteem & Positive Thinking Support Group
Sexual Abuse Support Group
Undiagnosed Symptoms Support Group
Urinary Incontinence Support Group
My Friends

My Recent Posts
| Had a TIA in october of 2011 | 05/06/2013 | ||
| been almost 4 years in septemb... | 05/01/2013 | ||
| Mood Swings with Depakote | 04/29/2013 | ||
| Mood Swings with Depakote | 04/28/2013 | ||
| saw neuro yesterday he put me... | 04/26/2013 | ||
| once again my seizures have in... | 04/23/2013 | ||
| I'm new and want to meet and h... | 04/22/2013 | ||
| Another Survivor | 04/22/2013 | ||
| My daughter has seizures | 04/19/2013 | ||
| My daughter has seizures | 04/19/2013 | ||
| My daughter has seizures | 04/18/2013 | ||
| My seizures have increased | 04/04/2013 | ||
| My seizures have increased | 04/03/2013 | ||
| My seizures have increased | 04/02/2013 | ||
| My seizures have increased | 04/02/2013 | ||
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