MDJunction Member Profile of Dnette

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"for my husband who is living with bipolar dissorder" (amberjacks1) Wear a ribbon

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Dnette

Hits	131
Online Status	OFFLINE
Member Since	01/18/2008 18:43:35
Last Online	08/19/2008 05:25:40
Last Updated	01/18/2008 18:46:55
Rank	Member

My Ribbon

Ribbon		Date	Why I wear this ribbon
	Purple Ribbon	01/18/2008	FM

About Awareness Ribbons

General

Gender:	Female
City:	Porterville
State:	California
A little about me:	I was diagnosed with FM a year and a half ago, I actually diagnosed myself, by accident through researching pain on the internet. My Doctor was pissed when I told him I thought I had it and he said "I hate that damn internet" then after a battery of tests and x-rays, he said I have Fibro! I think I have had this since I was a teenager, just didn't know what was wrong, always had back problems, always prone to bouts of depression and anxiety, and then the most exciting for me, all the wierd crazy symptoms that were random and unrelated to anything, I thought. Morning sickness, brain fog, memory loss, morning stiffness, severe fatigue, feet problems, clothes don't feel good, hives. It was all there. Right after I found out what was wrong with me, my husband of 20 years ran off with another woman and I crashed hard. Spiraled out of control, and could not seem to get back. I absolutely could not function for months. I am lucky to have a great medical staff on my side. They helped me through everthing and are still there anytime I need them. Which I still do. I went back to work after about 4 months, but after 8 months of working I crashed again and am now out for another 3 months minimum. I am always experiencing new symptoms. I am loosing the use of my right arm, something is wrong, and it hurts like hell, can't even put the dishes away with out feeling like my arm is going to rip in half at the elbow. Anyway, I have lived with back pain for so long that I am used to it, so I think it is just moving around to get my attention. "Hello, I am still here!!!" Last year it was my left wrist, fixed that after months of wearing a brace and taking anti infamitories, with a cortizone shot. Thought I was going to die that shot hurt so bad, I cried and called my mommy. I am 41 by the way. But after a few days my wrist quit hurting. I struggle most with fatigue and depression. I am in an I don't even care anymore state right now, and it sucks. I am giving up and am to tired to fight this stupid syndrome anymore. Well thats enough about me for now. Thanks for listening, as most people get that glazed look in their eyes when you try to explain what you feel like. I know you know the look.

My Hugs

Give Dnette...

Friends who hugged me:

sundazey123 gave me a Hug

03/07/2008 11:30:31

Hi Dee! Sorry I haven't written this week. I've been sooooo busy!!! It's raining here, but I'm still going out to do some shopping for my parents' 50th anniversary party! We're having it at my house. There are only going to be 10-12 people, but I want to make it memorable for them! :) Wish me luck! Have a great day! It's next Saturday!

sundazey123 gave me a Hug

03/03/2008 11:13:55

Here's a great big warm fuzzy hug for ya! Hope you have a beautiful day! :)

sundazey123 gave me a Hug

02/27/2008 16:21:30

Exactly--they're just fishing for reasons not to honor the insurance benefits that I've been paying for. I'm afraid they'll just close my case when they see the words depression, anxiety, or anything related to psychology/
psychiatry. I guess I'm supposed to handle all the pain and cognitive issues without frustration, depression, and anxiety. They are like computers. They don't have any compassion or understanding. One day, someone in their family or they themselves will face the same thing. Then, I bet their tune will change.

I'm taking the depakote for migraines. It has really helped. At the beginning of the school year, I was having trouble finding words, forgetting where I was going, turning into the wrong road or even house, I was thinking I had petit mal seizures. I went to the neurologist and he upped the depakote to see if that would help. It got worse. He decided to run a series of tests. One was a computer test which I flunked miserably. (Remember, I teach in a computer lab, right?)He said it didn't make any sense. He just thought maybe I was having a bad day. I told him I was having a fine day, but he just wanted to wait. I had an EEG done and he didn't see any evidence of seizure activity. He was going to send me for more tests and I missed my last appointment. (One of the tests was where they inject a dye into your veins and look at your brains vessels). I haven't rescheduled it. I'm tired of doctors. I feel like I could probably figure it out better than they can if I could only have access to the tests they use.

I could'nt get the specialist, primary, psych, or neurologist to take me off the depakote. You see, the specialist gave it to me to begin with. The neurologist upped it. He didn't think I was worse. He wanted to give it more time. I guess I'd have lost every strand of hair on my head by the time he decided to change it. Not only that, everyone noticed how bad I was shaking from it. They'd say what's causing that? EVERYBODY noticed. I think that may have been the first indication to my parents that I wasn't just making up stuff so I could stay home.

One morning, I made boiled eggs for breakfast. I always pop the yolks out and we eat the protein part. My husband was staring at my hands. I had a half an egg white in my hand and it was just a-flopping! :) I said, " Nah, it's not got anything to do with my meds." That's when I decided to divide my dose in half on my own. Durn those doctors.

How has your day been? I hope good! I'll TTYL.

Suzanne

sundazey123 gave me a Hug

02/27/2008 07:14:54

Hey Denette, I'm so glad you are feeling better! I am feeling a lot better since I divided my dose of depakote in half. I think those doctors are trying to kill me! I couldn't get any of them to do it, so I did it myself. I may take myself off the stuff completely! Maybe that's why I hit bottom at school this year!

I'm glad your daughter got a job! That's a great one to have too! My M-in-L works at Wachovia and she loves it. She works the drive thru.

Your garden sounds great! I wish you could help me with my yard. Oh gosh, what a mess our back yard is after all the rain. That red clay is impossible and we just can't afford to dig it up and put good soil on top. Maybe someday.

My disability insurance is not paying like I thought it would. It's such a hassle. I'll be glad when it's all worked out. I must be really stupid, because every time I call, I get something different out of them (as far as how much they will pay). Right now, they are investigating my claim and are saying that I am past the normal recovery time for fibromyalgia and psoriatic arthritis. Good grief.

Thanks for your hug! You're such a great friend! :) I enjoy our chats! Have a wonderful day!

Suzanne

sundazey123 gave me a Hug

02/05/2008 20:11:23

Thanks for not giving up on me! I feel like giving up sometimes. I feel like I'm losing my mind. I can't remember anything. I'll have to write it in my diary later. The past couple of weeks have been a true test. I'm going to check out your diary too... :) Hope you're feeling good today!
Suzanne

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My Support Groups

Dnette is a member of the following Support Groups:

Group	Member Since
Fibromyalgia Support Group	19 January 2008

My Diary

Diary Description:	How I feel today
Diary Statistics:	Total entries: 7	Total comments: 9	Total combined hits: 240

– Tuesday, February 26 2008 –
I finally did it. I took the wrong pill!!! My Soma and Trazadone are in the same type of bottle, and the pills look the same. I have been worried abou...	3 23
– Wednesday, February 06 2008 –
Sore and tired I started Trazadone last night, my doc said it would help me sleep. Well, I went to bed early and could not get to sleep, so I got up for about ...	0 29
– Tuesday, January 29 2008 –
Spent After the upheaval of emotions yesterday, I had a restless night, forgot to take my Lexapro, and had pain today. Headache as well, crazy dreams ...	1 31
– Sunday, January 27 2008 –
Like giving up Got my child support order in the mail today. I get 0%!!! Thats right a big fat nothing! It seems that because I get a mere $362.00 ...	2 38
– Wednesday, January 23 2008 –
Feel a little better today I did something crazy and went a little overboard, but who cares it made me feel better. I just found out a lady I know is going to have a baby ...	0 32
– Monday, January 21 2008 –
Today I am tired I am so drained today, I think I am fighting a cold. My daughter and room mate have both been sick. Yuck! I havn't done a thing ...	1 42
– Friday, January 18 2008 –
1/18/08 Feeling lazy, but got the floor mopped, I have been trying to mop the floor for 3 days. Wow!! I deserve a nap! My arm hurts like hel...	2 45

Read Dnette's Diary

My Forum Posts

Recent Forum Posts
Date	Subject	Category	Hits
28 January 2008	My intro & I don\'t know what to do....	Introductions & Personal Stories	221
28 January 2008	Probably a long introduction	Introductions & Personal Stories	166
28 January 2008	My intro & I don\'t know what to do....	Introductions & Personal Stories	221
27 January 2008	weak bladder	General & Support	57
24 January 2008	Wanted to say Hello ! I am new here	Introductions & Personal Stories	96
24 January 2008	QUICK, INEXSPENSIVE< RELIEF this really works!!!!!	General & Support	177
24 January 2008	Mindfulness	Medicine & Treatments	130
24 January 2008	STRESS=FLAREUPS	Introductions & Personal Stories	235
21 January 2008	HAS ANYONE SEEN THIS	General & Support	565
21 January 2008	Thank you all	General & Support	64