myladylumps
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| Rank | Member |
| Online Status | OFFLINE |
| Member Since | 03/31/2011 05:20 AM |
| Last Online | 03/26/2013 02:16 AM |
| Gender: | Female |
| City: | San Diego |
| State: | California |
| Country: | United States of America |
| Occupation: | Owner / Contract Loan Processing Co |
| A little about me: | I am a 46 years old female and recently diagnosed by Dr. Herbst with Type III DD in early December 2010. I was also enlighten that it is rare to see this disease in thin/lean people as myself. Excruciating pain and brain fog is my daily life :O( Still cannot wrap my head around DD. |
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"I am survivor of Domestic Violence as a young child growing up and as young married adult. Love should not go hand-in-hand with toxic/abusive behavior. Also, I live with physical chronic pain daily with DD. Life Stops for No One!" |
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My Hugs
 | Hi my precious LadyLumps!! So good to hear from you. I will look for you on Dr Karen's site. I hope that you are feeling better. Miss you..Hugs, Grandma Sylvia |
| Hi Peeps..I want to thank each of you for making 2012 such a productive year. I hope 2013 will be even better! Your participation is helping many! |
| Hi My Lady!! I was just thinking of you today. We miss you in the group. Damien is sending me some brochures and that is the best Christmas present. I wish you a Happy New Year and hope that you are doing better. Hugs, Grandma Sylvia |
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My Diary
My Lady Lumps
Today is 03/31/2011 and I finally registered to get to know others who are like me with this Dercums Disease. I realized this is much bigger than what I had anticipated, and that I am out of my league in wrapping my head around this disease and need support. I finally was diagnosed by Dr. Herbst (by the way she is amazing!) recently in early December 2010 and I actually have another appointment next week in 04/05/11 (cannot wait to see Dr. Herbst again!). I give all my thanks and love to my Auntie Midge who reconnected with me a few years ago when my sister was dying with liver cancer and my mother at the same time was diagnosed with breast cancer (rough times). My Auntie Midge was the one who opened my eyes to what was possibly going on with my body, etc. (she has this too, but has not been officially diagnosed but has an appointment with Dr. Herbst in August of this year), and suggested that I make an appointment with Dr. Herbst. Bottom line, Dr. Herbst diagnosed me with Type III DD and my body is covered from partically head to toe with my "lady lumps" (that is what I named my DD disease) barely have one inch or space in my body that is not sportin a lump (have some few on face, but not as horribly bad as the rest of my body). Also, I am "thin" which to my understanding with DD is "rarely" seen in thin people. The excruciating pain I live with and brain fog is killin me over here. I went from a vibrant, extremely active, and sharp quick-minded person, to someone who I don't know anymore and have to re-think and re-do my whole life on a day to day basis. I actually feel very teary writing this down for the first time. Wow...I am at a lost for words.
Today is 03/31/2011 and I finally registered to get to know others who are like me with this Dercums Disease. I realized this is much bigger than what I had anticipated, and that I am out of my league in wrapping my head around this disease and need support. I finally was diagnosed by Dr. Herbst (by the way she is amazing!) recently in early December 2010 and I actually have another appointment next week in 04/05/11 (cannot wait to see Dr. Herbst again!). I give all my thanks and love to my Auntie Midge who reconnected with me a few years ago when my sister was dying with liver cancer and my mother at the same time was diagnosed with breast cancer (rough times). My Auntie Midge was the one who opened my eyes to what was possibly going on with my body, etc. (she has this too, but has not been officially diagnosed but has an appointment with Dr. Herbst in August of this year), and suggested that I make an appointment with Dr. Herbst. Bottom line, Dr. Herbst diagnosed me with Type III DD and my body is covered from partically head to toe with my "lady lumps" (that is what I named my DD disease) barely have one inch or space in my body that is not sportin a lump (have some few on face, but not as horribly bad as the rest of my body). Also, I am "thin" which to my understanding with DD is "rarely" seen in thin people. The excruciating pain I live with and brain fog is killin me over here. I went from a vibrant, extremely active, and sharp quick-minded person, to someone who I don't know anymore and have to re-think and re-do my whole life on a day to day basis. I actually feel very teary writing this down for the first time. Wow...I am at a lost for words.
| Title | Date | Views | Comments |
| Finally response and results | 07/05/2011 | 257 | 6 |
| More bad days then good :O( | 06/02/2011 | 356 | 2 |
| 2nd time blood work was much smoother! | 05/30/2011 | 242 | 0 |
| ARGHH!!! have to re-take the blood samples again | 05/20/2011 | 156 | 0 |
| Dercum's Disease update | 05/15/2011 | 646 | 3 |
| 2nd follow up visit with Dr. Herbst | 04/11/2011 | 280 | 0 |
My Health Topics Contributions
I started discussions in the following health topics:
Decurms Disease.
Decurms Disease.
My Support Groups
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My Recent Posts
| Hello my fellow DD friends an ... | 03/18/2013 | ||
| Hello my fellow DD friends an ... | 03/18/2013 | ||
| Hello my fellow DD friends an ... | 03/18/2013 | ||
| Hello my fellow DD friends an ... | 03/03/2013 | ||
| Dr. Herbst update about "new" ... | 08/10/2012 | ||
| Dr. Herbst update about "new" ... | 08/10/2012 | ||
| Twitching?? | 08/06/2012 | ||
| Twitching?? | 07/29/2012 | ||
| Twitching?? | 07/29/2012 | ||
| Twitching?? | 07/29/2012 | ||
| Dr. Herbst's Recommendatons fo... | 05/04/2012 | ||
| Dr. Herbst update about "new" ... | 05/04/2012 | ||
| Dr. Herbst update about "new" ... | 04/27/2012 | ||
| Dr. Herbst update about "new" ... | 04/20/2012 | ||
| Dr. Herbst update about "new" ... | 04/20/2012 | ||
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