rosey77
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| Rank | New Member |
| Online Status | OFFLINE |
| Member Since | 12/19/2010 09:23 AM |
| Last Online | 12/22/2010 02:12 PM |
| Gender: | Female |
| Birthdate: | 10/29/1984 |
| City: | Alma |
| State: | Michigan |
| Country: | United States of America |
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"I wear a blue ribbon because I want to support individuals who have narcolepsy like myself." |
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My Hugs
 | Wishing you a healthy 2012 with lots of people, helping people! |
| BIG hug for you & yours! We wish you an amazing 2011, May all your wishes come true & all your troubles fade away. We hope that together our community will continue to prosper and help so many all over the globe. People helping people at its best ;-) |
| Thank you! It has been a difficult 6 months. I was relieved to have a diagnosis-an explanation for the years of unexplained symptoms and proof I wasn't crazy... at first. Then the realization I will always have narcolepsy and this problem has no quick solution freaked me out. I see photos of me 7 years ago when I felt ALIVE and I see now the past 4 years was a foggy confused mess and I don't want to be in self pity but I am angry-it is like Narcolepsy is a thief who stole years from me and I never had a say. My meds help and I have hope it will get better and easier to manage but I am scared what my future holds. ... So do have any encouraging or inspiring words of wisdom after having lived 4 years post diagnosis? Did you feel the same way I do now? Are you a mom? I have a lot of guilt not being able to be as active with my son as I used to be. And I worry I will be a disappointment to him. Again, thanks for letting me know I am not alone. Take care |
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